Archive for April, 2010

Apr 29 2010

Misdiagnosis of Parkinson’s Disease

Published by under misdiagnosis

When Ron was diagnosed with essential tremor, the neurologist he saw said it was Parkinsons & so medications were prescribed that he has been taking ever since. A few months ago I decided to contact his old neurologist for a second opinion, as I didn’t like what the medications were doing to him & I wasn’t totally convinced it was Parkinson’s.

His doctor asked  that he be off his meds for 48 hours & at the first visit he said I stick by my original diagnosis of essential tremor, however I want to see you again after taking medication. He was nice enough to see him 4 times in a 25 hour period,(a couple of glasses of wine were part of his prescription after the second visit, since alcohol slows down an essential tremor). He wanted to be absolutely sure & at the final visit on the second day he was convinced it was essential tremor & parkinsonism.

He is off the medication that as the doctor says “dumbs you down” & is weaning off the leva dopa, carba dopa, as it helps a little, but not enough to continue. We are also upping his amount of CO10 & will continue supplements.

Our daughter was the first to notice the difference when he called to say we were home. She noted his voice was clearer & had more modulation in it.

I just thought I would pass this on as I understand misdiagnosis is not uncommon. I should have been listening to my intuition & only wish we had gone for that “second opinion” sooner.

Regards

Margaret & Ron

One response so far

Apr 28 2010

Heavy Metal Poisoning and Parkinson’s Disease

Published by under heavy metals

The link of an article below is about a man who had heavy metal poisoning and was able to heal completely after heavy metal chelation.

http://www.sciencebasednutrition.com/case_studies/Parkinsons-KC04-05.pdf

I believe that most if not all people with PD or most diseases are caused from toxicity of some kind, and if they can chelate or detox their body, it will allow the body to function as it was designed to do and heal.

I am on my 3rd day of heavy metal chelation, so I will keep you posted on my progress.

I just thought you might have an interest in this article to give people with a PD Diagnosis more hope.

Take care,

Melanie

No responses yet

Apr 24 2010

Myofascial Release and Parkinson’s Disease

Published by under Myofascial Release (MFR)

I was so happy to listen to your radio segment with David Howell, April 15, 2010 on Myofascial Release.  I’ve been using it on myself for over 4 years.  I am diagnosed with PD symptoms for 5 yrs but probably have had symptoms for 8.

I developed trigger finger in my thumb, and was interested in a therapy I could do myself other than the usual icepack, cortisone, etc therapy the doctor prescribed.  I wanted to know and understand the root cause.  I ended up on the internet of course and typed in “trigger finger” and saw a book called “The Trigger Point Therapy Workbook Second Edition, Your Self-treatment Guide For Pain Relief. by Clair Davies, NCTMB“.

“Trigger Point Therapy” is another name for Myofascial Release.  The book is very user friendly and well written.  I’ve also self-treated myself for stiff neck and shoulder pain, so common with PD, and just recently a groin pull.  I am not a massage therapist.  I can understand better after reading this book how PD, emotional and physical stress could breed trigger points very easily.  A PDr is constantly out of whack (tense muscles)  and one unbalanced area puts severe strain on another part of your body you might think is in no way connected.  They call this “referred” pain.

For instance, you may have excruciating wrist pain (Referred Pain), but the cause (Trigger Point) is further up your arm and even the muscles in the base of the neck. I don’t like to wait for the  PD stiffness to evolve to jammed up trigger point aches and pains.  I combat muscle stiffness so I don’t have to use trigger point therapy with daily at home simple yoga, tai chi, and 3lb dumb bells.  Also I do walking and breathing meditation.  Knock on wood, I am without any pain on a daily basis.    So thank you from the bottom of my heart for featuring this not well heard of therapy in the PD community.

Monica

No responses yet

Apr 22 2010

Electromagnetic Treatments for Parkinson’s

Published by under electromagnetic treatments

Here are some Internet sites that describe the benefits to Parkinson’s patients derived from pulsed electromagnetic treatments. There are a number of types of electro-medicine, both internal and external, that have proven to be very effective. They are well established and in common use around the world.

http://www.marconews.com/news/2009/mar/26/recharging-the-body/
http://www.pulsepowernow.com/results.html
http://www.pulsepowernow.com/demo.html
http://www.pulsedenergytech.com/equine-photo-gallery.html
http://www.youtube.com/v/Znmmq2RXlQ4

Marshall

No responses yet

Apr 17 2010

Heavy Metal Chelation and Parkinson’s

Cruise is coming up, isn’t it?  Wish I could have joined you, but had other obligations to pay for, one is my upcoming heavy metal chelation.

Just wanted to let you know that I have been testing for heavy metal for over 7 years now and nothing ever showed up on lab tests.  I kept having a nagging feeling that a big part of my symptoms were caused from heavy metal poisoning, but I couldn’t get anyone to prove it.

I kept searching and found a naturopathic doctor who consented to another urine test, but this time he used the chelating agent MDSA to pull the metals out of my tissues.

The results confirmed my feeling of years.  Extremely high levels of Mercury, Lead and Uranium.  He said in all of his practice, he has never seen such high levels and promptly started me on a heavy metal chelation.  I’m now on a two week regimen to support my organs from permanent damage prior to the chelation.

He said that while he can’t promise a definite correlation of symptoms and heavy metals, he does feel there is a huge relationship.  He also so that he can’t promise complete relief of symptoms after chelation and removing these heavy metals from my body, but he said he feels confident that my symptoms will improve, and my symptoms shouldn’t worsen and my body should be allowed to heal, once the mercury is gone.  He said that with my levels of metals, it may take up to a year to completely chelate.

I will keep you posted.  I just thought you might be interested in knowing my most recent finding, and possibly an option for some of your other followers.

Again, thanks for all you do and continue to do.  You are amazing!  Such a gift to humanity, not only those with a PD diagnosis.

Take care,

Melanie

No responses yet

Apr 15 2010

Wean Off Medications

Published by under medications

Question:

Lately, I have been contemplating the weaning of myself from my PD medications. Presently I take 100 mg of Levodopa Carbidopa 4 times daily and I take  Requip for  restless leg syndrome, five times daily.(The Levodopa is a fairly low dosage.)  I am also on  Azilect 1 mg 1x daily. This is the highly touted drug that is supposed to slow down PD.

Motivating me first and foremost to stop my meds, is that I do not like putting chemicals into my body and I have been taking Lev/Carb  for 12 years now. Secondly I have read that if you keep supplying your body with pill form dopamine, it relies on that, and it will not try to make dopamine on its own.

In the future, I would like to try and free my body of pill form chemicals, and  put my body back to work for itself. I know that this would have to be done gradually and carefully and working with a doctor under his/her  guidance. And it would involve lots of  work on my part. And I do remind myself  too, that it could be risky–and at this moment I am fending off symptoms quite well.

My neurologist he cautions me  saying that I am doing so well, why change anything? He says that first of all PD patients like myself, whose symptoms start with a tremor, tend to fare better than others. (And I am thankful for that). But mostly he stresses that MY MEDS are the biggest contributing factor for my  ‘wellness’, and that THEY are what is making the difference for me. So, no encouragement from him whatsoever.

I just wondered if,  in your work, with PD, Roger, have you ever encountered or heard of anyone else who has set out on a similar  journey : without meds and using alternative therapies, and whether they have been successful, or  not.  If so I would be interested in hearing their stories. And do you or your colleagues have any comments?

Thanx

Ms X

Response:

Your vision is clear about what you want to see happen with your medications. You have precisely what you need to manifest your heart’s desire: a clear vision, solid focus and unwavering determination. There will always be people who question your decision. This happens with any change you have decided to initiate.

You ask if there are any other people who have pursued a similar path. I know of many people on a path of reducing meditations and/or alternating their program in one way or another. Keep listening to my radio program! You will hear stories of people who are weaning themselves off medications that are no longer serving their best and highest good.

Please listen to my radio program interview with Pharmacist Randy Mentzer who gives a play by play description of how he helps people wean off of medications. http://www.blogtalkradio.com/parkinsons-recovery. The challenge of course is that side effects of certain medications can begin to be far worse than the symptoms the medications are formulated to help.

Randy tells me if a person is taking three medications, there is a good chance there are drug interactions and drug depletions. If a person is taking five, he says there is a 100% chance of drug interactions and/or depletions.

It takes a serious commitment on your part. And as you aptly point out, you have to work very closely with a doctor who supports your decision to wean off  medications. It is also important to acknowledge the role that supplements have in whatever decisions you make and whatever approach you pursue.

Robert Rodgers, Ph.D.
Parkinsons Recovery

Resources
Dehydration Therapy: Aquas
Parkinsons Recovery Membership
Parkinsons Eye Problems
Vibroacoustic Therapy
Jump Start to Wellness
Parkinsons Recovery Radio CDs
Parkinsons Recovery Chat Room
Symptom Tracker
Parkinsons Recovery Radio Network
Daily News about Parkinson’s Disease

Books
Road to Recovery from Parkinsons Disease
Pioneers of Recovery
Five Steps to Recovery
Meditations for Parkinsons

One response so far

Apr 15 2010

Opportunity to Participate in 23 and Me Research

Published by under 23 and me

I am helping to advance research in Parkinson’s by participating in the 23andMe Parkinson’s Community. I’m asking you to consider publicizing this research program to help in the fight against Parkinson’s. All that is required for people diagnosed with PD is $25 (regular cost to join 23andMe is over $400), a saliva sample and the ability to answer questionnaires over the Internet. 23andMe hopes to get 10,000 people with Parkinson’s involved–they are almost halfway there already!

More information about the program is available at www.23andme.com/pd/. When you’re ready to sign up, request a discount code at www.23andme.com/pd/codereq. You can contact 23andMe at pd-help@23andme.com if you have any questions.

Thanks,

Angela

No responses yet

Apr 13 2010

Fungus Infections and Parkinsons

Published by under candida,steps to recovery

Question:

I would like to know if there is any information available about a connection between Parkinson’s and Candida Albicans?

Dorothy

Response:

I am convinced there is a direct link between fungus infections in the body and the symptoms of Parkinson’s.  I am also convinced there is a powerful connection between thoughts and the prevalence of candida yeast infections in the body.

I discussed the connection during my Parkinsons Recovery radio program which aired on May 7, 2009. You can listen to the full program by visiting the radio program page, and then scrolling back almost a year to my May 7th, 2009  program. The program is titled “Five Steps to Recovery from Parkinson’s disease.”

Once you arrive on the radio program website you will have to scroll back through the programs that have aired. At the bottom of the page there is a link that says “previous programs.” Keep clicking on that link until you roll back to this particular program.

I begin with a discussion about the profound relationship between thought forms and the symptoms of Parkinson’s which is the theme of my book Five Steps to Recovery. I then discuss the connection between candida (or yeast infections) and thought forms. Once you locate the program and start listening, hang in there. I begin discussing the link about 5 minutes into the show.

To hear the program (or download it) visit www.blogtalkradio.com/parkinsons-recovery.

You will also note there is a category link at the right of this blog titled “candida.” Click on that category now and you will see several articles on the topic of candidate.

You won’t find this information anywhere but here at Parkinsons Recovery!

Robert Rodgers, Ph.D.
Parkinsons Recovery

Resources
Dehydration Therapy: Aquas
Parkinsons Recovery Membership
Parkinsons Eye Problems
Vibroacoustic Therapy
Jump Start to Wellness
Parkinsons Recovery Radio CDs
Parkinsons Recovery Chat Room
Symptom Tracker
Parkinsons Recovery Radio Network
Daily News about Parkinson’s Disease

Books
Road to Recovery from Parkinsons Disease
Pioneers of Recovery
Five Steps to Recovery
Meditations for Parkinsons

No responses yet