May 24 2008

An Encouraging Report from One Man who Takes Sinemet with Mucuna

What happens if you take Sinemet and Mucuna

 at the same time?  The following account was

written by Max. Max forwarded the following

account to me this week and gave me permission

to make it public. Max has Parkinson’s and

lives in Canada.  

 

 

 

 

 

Robert Rodgers, Ph.D.
Parkinsons Recovery

 

 

 

 

 

“I’m  53 years old (or young).  I was diagnosed
with PD back in March 2001. I had a minimal
exposure to PD meds back then, just long
enough (one month on Sinemet) to see an
improvement. That convinced me that I have PD.
Whatever PD is.”

“I started taking lots of vitamins, antioxidants,

eating better, exercising the best I can,

meditating, acupuncture, Ti-Chi, tried PDrecovery,

Chi-Gong, visualizing techniques, energy work,

etc. etc. I’m sure it all helped, but eventually

I needed a walker and could barely take care

of myself.”

 

“By February of 2006, 5 years later, I was having

a hard time using a walker and was looking

into getting a wheelchair. I couldn’t take it any

longer, so I regrettably broke down and decided

to take Sinemet. “

 

“In about a week, Sinemet started to work. And in

about a month, I was a completely different person.

I could walk, got my balance back, started to gain

back my normal weight and I could even ride my

mountain bike again.”"

 

“But in only 6 months of taking Sinemet, I found

it was taking longer and longer to kick in, not lasting

as long and sometimes it wouldn’t kick in at all.

Sometimes I would take 1 1/2 tablets of

Sinemet CR 200/50, at a time, with no effect at all.”

 

“Talk about being scared all over again. I knew

getting on Sinemet would be a limited ride,

but I never thought it could be this short for me.”

 

“When I heard about “Mucuna Pruriens” 

(Zandopa also called HP-200), a natural herb from

India, in the fall of 2006, I got very interested.

The first time I tried it, I felt some improvement.

In about two months, I gradually reduced my

Sinemet CR 200/50 from 5 tablets a day to

only 1 tablet a day (break it into 1/3’s) and

I take it with Mucuna. ”

 

“I feel like this “Mucuna” (Zandopa) is

REALLY HELPING me a lot. I take it

3 or 4 times a day and can pretty well

function normally when the herbs kick in –

not bad considering that I was ready

for a wheelchair. When the herbs wear off,

my PD symptoms still come back,

but not nearly as bad as before. ”

 

“I’ve been taking Mucuna and Sinemet for

the past 1 1/2 years. I’m currently taking

1/2 a tablet of Sinemet (200/50) with

1 tsp of powdered Mucuna (Zandopa)

3 or 4 times a day. In 3 hour intervals.

I also take Ashwaganda & Brahmi. I try

not to take anything in the evening or

before I go to bed. I like to give my body

a break and give it a chance to build up

its own dopamine over night. It seems

to work because I can go for an hour

walk in the morning before I take my herbs.”

  

“I purchase Zandopa directly from India:    

http://mall.coimbatore.com/bnh/zandu/zandopa.htm

 

“From my own personal experience,

if anyone with pd wants to try Mucuna,

I recommend that you take it slowly.

You might want to get some small

measuring spoons, the kind used for

cooking. I’ve started taking a level

1/4 tsp of powered Mucuna (Zandopa)

3 times a day for the first week.

A 1/2 tsp 3 times a day for the second week.

And I worked my way to 3/4 tbsp 4 times a day

by the 4th week. ”

 

“I also gradually reduced my Sinemet

from 4 (200/50) tablets per day to only

one pill a day in a couple of months.

I break the Sinemet pill into quarters.

I take the Sinemet at the same time as

the Zandopa 4 times a day.”

 

“It works best if you take it at least

1/2 hour before meals or at least

1 1/2 hours after a meal. I mix the

Zandopa in half a glass of water.

I use a small hand held blender to

mix it, it gets rid of the sludge at the

bottom. Personally I don’t mind the

taste, but I do add some juice to it

(cranberry, etc.)”

 

“I’m doing all this on my own right now,

but you should let your doctor know

what you’re doing.  I keep a record

(date, time of day, amount, when it

kicked in, faded out, and effects

(good or bad) meals time, etc.”

 

“Just take it slowly. If you feel anxious,

hyper, antsy, or have a lot more energy

than normal, you know you’re taking too

much.”

 

“I space the doses by three hour ’till

the next one. I take just enough to be

normal without feeling anxious. It works

extremely well for me; I’m really surprised

more people with pd don’t take it.” 

 

“My pd hasn’t gotten any worse in the past

1 1/2 years of taking Mucuna. If anything

I’ve gotten better in some areas.

 

I no longer have any balance problems,

haven’t been constipated for over a year now.

No longer have any tremors unless I’m stressed.

Can ride a bike, jog, walk normal etc. when

the herbs are in my system. But I did have to

increase my intake of Mucuna. I’m not taking

 level tsp. And 1/2 a tablet of Sinemet (200/500)

3 or 4 times a day.”

 

“I’m not having any negative side effects at all

from taking Mucuna. My body has adapted to it.

I believe the body can repair itself, taking Mucuna

is a natural plant product. It  helps me regain my

strength so I can take care of myself. A great

website on Mucuna is:”

 

http://www.parkinson.org/NETCOMMUNITY/Page.aspx?&pid=459&srcid=379

 

Robert Rodgers, Ph.D.
Parkinsons Recovery

 

 © 2008 Parkinsons Recovery

 

 

7 responses so far

7 Responses to “An Encouraging Report from One Man who Takes Sinemet with Mucuna”

  1. johnon 25 May 2008 at 2:33 pm

    I used sinemet for two weeks ensuring that it did relieve most symptoms…confirming for me, PD.

    I stopped the sinemet and took Solary’s dopabean two pills (equivalent to 100 mg of levodopa) three times per day. I got an Rx for “lodosyn” (the other name for carbodopa…which gets it past the blood/brain barrier.)

    I also have been using the zandopa. I use a minigram scale which I bought from ebay for about ten dollars…so that I take about 90mg of the powder, along with the lodosyn. Seems to work so far, after about 5 months. Haven’t enough experience withe sinemet to compare side-effects.

    At this time I don’t endorse for anyone else…I just trust that this might be a better route, than the synthetics…for me.

  2. johnon 25 May 2008 at 2:37 pm

    Revised comment: I used sinemet for two weeks ensuring that it did relieve most symptoms…confirming for me, PD.

    I stopped the sinemet and took Solary’s dopabean two pills (equivalent to 100 mg of levodopa) three times per day. I got an Rx for “lodosyn” (the other name for carbodopa…which gets it past the blood/brain barrier.)

    I also have been using the zandopa. I use a minigram scale which I bought from ebay for about ten dollars…so that I take about 2.2 g of the powder which should be equivalent to 88 mg of levodopa, along with the lodosyn. Seems to work so far, after about 5 months. Haven’t enough experience withe sinemet to compare side-effects.

    At this time I don’t endorse for anyone else…I just trust that this might be a better route, than the synthetics…for me.

  3. Adam Korneskaon 09 Jan 2009 at 2:05 pm

    Hi John,

    Thanks for posting your experiences. My dad too happy with Mucuna (Zandopa), althought its a bit difficult to get here in Poland. He usually orders it from UK (www.zandopa.co.uk).

    I will keep posting about his progress.

  4. Anum Anwaron 12 Sep 2010 at 8:28 am

    AOA Kindly Can Dr.Rabert Rodgers please tell me your email so i can contact you personally .Will be highly grateful.My Mom has PD and i am highly releived by reading this because her Sinemet dose is increasing and she is going from better to worse.

  5. adminon 12 Sep 2010 at 9:00 am

    Hi:

    My email is robert@parkinsonsrecovery.com

    Robert Rodgers

  6. Joseon 26 Apr 2011 at 6:45 pm

    Hi, thanks for share your experiences, I’m starting to take Zandopa, I would like to have more information about it, I tell my experience in the next days or month, thanks again.

    Jose

  7. adminon 27 Apr 2011 at 6:51 pm

    Questions about medications need to be answered
    by experts in that area. I suggest you email Randy
    Mentzer who is a compounding pharmacist. He is
    always the resource I use for my own questions
    like these that pertain to medications.

    randyrphconsulting@gmail.com

    Robert Rodgers, Ph.D.
    Road to Recovery from Parkinsons Disease
    http://www.parkinsonsdisease.me

Trackback URI | Comments RSS

Leave a Reply