Category Archives: pain

Pain and Parkinson’s Disease

I am in the first stage of Parkinson’s disease, but lately I have excruciating pains on both my shoulder. The neurologist said it is not the disease. I am wondering if it is arthritis or what

Eva

Response

Clearly, the pain in your shoulders is present and creating a significant challenge at this time regardless of whatever name that might be attached to it. I think it helps to acknowledge your body is sending out a signal that something is out of balance and merits a little tender loving care.

I think it is wise to let the doctors apply labels to what is happening which is necessary for them to prescribe medications. That is what they are trained to do.

Do people who currently experience the symptoms of Parkinsons experience excruciating pain too? Yes, some clearly do and it is one of their primary symptoms. To acknowledge this, I invite you to click on the category to the right of this blog entitled “Pain” and you will see a number of other people have written in with a similar question. Of course, you will also see the responses I have formulated, which in general suggest a number of approaches that have been successful for other people.

There are other options that can be entertained which involve delving into the underling cause of the pain.  For example, consider the possibility you are taking on too much responsibility on your shoulders. That would certainly create the pain that you describe above. Once you have some idea of the underlying cause of the pain – you can pursue therapies that are well equipped to address the problem.

Know that there are many options available. You are invited to read some of the other discussion on pain here by clicking on the category pain to the right. Keep scrolling down – this post will be at the top once you click on the category to the right.

Robert Rodgers, Ph.D.
Pioneers of Recovery
http://www.pioneersofrecovery.com

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Treatments for Muscle Tightness and Pain

Just joined your group, and want to know what is the best way to control muscle tightness and pain in the left lower back area. I recently started taking requip prescribed by my movement disorder neurologist starting on a low dosage to get my body used to it.

Any other suggestions? Nothing seems to be helping.

Regards

Paulette

Response:

Just to clarify at the outset Paulette – I am a researcher type doctor (Ph.D.) not a medical doctor (MD) so I am not qualified to diagnose or treat medical conditions. I can report from a research point of view that magnesium has helped many people find relief from the symptoms you describe. A relaxing and inexpensive magnesium therapy is Epson salt baths.

Consider also finding an energy healer who has cranial sacral training.  You might well find an energetic therapy would provide significant benefit.

I also suggest that you keep a sharp eye out for guests I am having on my radio show (www.blogtalkradio.com/parkinsons-recovery). I am hosting a number of medical professionals over the coming weeks who could answer all your questions. You can always contact my guests directly to get answers as well. The radio shows I have aired and will soon broadcast report remarkable discoveries that are helping persons with Parkinsons relief from their symptoms,

Also consider attending the 2012 Parkinsons Recovery Summit in Cincinnati June 22 and 23. There will be a critical body of professionals in attendance who can provide you with answers to all of your questions. There will also be a critical core of highly qualified energy healers who will be available to provide treatments for the pain and muscle tightness that is so problematic right now.

www.summit.parkinsonsrecovery.com

Welcome to Parkinsons Recovery!

Robert Rodgers, Ph.D.
Pioneers of Recovery
www.pioneersofrecovery.com 

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Parkinsons Disease Treatment Options

Angela Wensley was a guest on my radio show on October 28, 2010. You can listen to the show by visiting http://www.blogtalkradio.com/parkinsons-recovery.  Angela wrote a thorough update describing the treatment options she has pursued. Her update is posted below. Robert Rodgers, Ph.D.

This update is intended not only for my friends and family, but also for people who have been diagnosed with Parkinson’s disease (PD). Please feel free to pass this on to anyone that you may know who has a diagnosis of PD as they may find some of the information helpful. I was diagnosed with the symptoms of PD in May 2007, over 3 1/2 years ago at age 59. At the time of diagnosis, I was informed that not only was the cause unknown (“idiopathic”), but also that it was irreversible and progressive. Initially, I questioned the diagnosis but any doubts were resolved when I traveled to Los Angeles in September 2007 for a PET scan that confirmed (in medical-speak) that there was: moderately decreased dopamine accumulation into the posterior putamen on the left side of my brain, consistent with PD. Since then, I have come to accept the diagnosis as my symptoms have become rather “classic”. In particular, I have tremours in my right hand and these have become increasingly worse as the years have progressed.

The progression of my PD symptoms has not been linear, but instead I experience it in waves with definite peaks and valleys. The symptoms can be pronounced for a number of days interspaced by days of calm where I am almost symptom-free. Over time, however, the general trend has been a gradual progression downward (probably corresponding to dopamine depletion in the part of my brain responsible for motor activities) with the valleys becoming more savage and the peaks becoming shorter. In addition, there can be variations in my tremours during the day. When I am relaxed, I have no tremours. When under stress, or excitement, or cold, the tremours become more pronounced.

The worst situation is “White Coat Syndrome” whenever I visit a medical doctor or a neurologist. On those occasions, my tremours are effectively out of control. Other PD symptoms such as impaired arm swing, problems with gait, problems with balance, and constipation are so far in the mild category. Besides tremour, the other most bothersome PD symptom for me has been “micrographia.” As I can no longer move the fingers on my right hand, my ability to write has decreased to the point where I have ceased keeping a daily journal, something that I had been doing since the 1980s. Also, typing has become difficult and slow. Luckily, Dragon voice-activated software has come to my rescue and I now dictate most of my communications (such as this update).

I plot the progression of my PD every three months using the Parkinson’s Disease Rating Scale (PDRS) from 0 to 100 on the website www.PatientsLikeMe.com where my patient name is “Dawn Angel”. My current rating is 7. It has been as high as 14. My human tendency is to self-evaluate when I’m feeling good so it is possible that my PDRS is higher at some times.

So far, I have avoided taking any of the Parkinson’s medications (with a brief exception of one month after I was first diagnosed when I took Mirapex, a dopamine agonist that for me had dreadful side effects). To me, the PD medications are a last resort. Since they will only provide a certain number of years of effectiveness it seems reasonable to forestall taking them until it is absolutely necessary, that is, when having the symptoms is no longer preferable to the side effects of the meds. I have been able to work for three years post diagnosis but I’m at the point where it may not be possible to continue working as a freelance consulting engineer. I haven’t had any jobs since June 2010, so it is difficult to say if it is time for me to retire.

RESOURCES

I am fortunate to have two outstanding neurologists on my side, Andrew Wolfenden and Jon Stoessl, although I only see them once a year. Stoessl is the director of the Pacific Parkinson’s Research Centre. I see him at the Movement Disorders Clinic at the University of British Columbia in Vancouver. With Western medicine offering only drugs that mask the symptoms of PD and unable to otherwise treat the condition, it is inevitable that a person diagnosed with PD will seek out alternative forms of medicine. My naturopath Caleb Ng

www.mountainviewwellnesscentre.ca/

is a valuable part of my team. Ideally, a person diagnosed with PD should have a team of practitioners, including at least one neurologist, their GP, a naturopath, a physiotherapist, an herbalist, a massage therapist, a personal trainer, a psychotherapist, and others. The reality, however, is that no “team” really exists. My personal trainer may know my chiropractor, and my naturopath may have met my neurologist, but this is not team behaviour. The cold truth is that each patient is pretty well left to their own devices. So one must be proactive and become better informed, often more so then their practitioners. We are the keepers of the complete story.

There are many very good publications on PD available in book form. Some that I have found to be exceptional are:

1. Jill Marjama-Lyons and Mary J. Shomon, “What Your Doctor May Not Tell You About Parkinson’s Disease,” Warner Books (2003).

2. Gretchen Garie, Michael J. Church, and Winnifred Conkling, “Living Well With Parkinson’s Disease,” Collins (2007).

3. David A. Grimes, “Parkinson’s: Everything You Need to Know,” Firefly Books (2004).

4. Geoffrey Leader and Lucille Leader, “Parkinson’s Disease: Reducing Symptoms with Nutrition and Drugs,” Denor Press (2009).

5. Laurie K. Mischley, “Natural Therapies for Parkinson’s Disease,” Coffeetown Press (2010).

6. Abraham Lieberman, “100 Questions and Answers about Parkinson’s Disease,” Jones and Bartlett (2003).

7. David H. Anderson, “How to Tame Parkinson’s by Keeping Fit,” Authorhouse (2005).

8. John Ball, “Living Well, Running Hard,” Authorhouse (2005).

9. Arthur W. Curren, “Dumb Bells and Dopamine,” Authorhouse (2006).

Downloadable books from the Internet include:

1. John C. Coleman, “Stop Parkin’ and Start Livin’: Reversing the Symptoms of Parkinson’s Disease,” available for a fee from www.returntostillness.com.au

2. Robert Rodgers, “Road to Recovery from Parkinson’s Disease,” available for a fee from www.parkinsonsdisease.me

3. Janice Walton-Hadlock, “Recovering from Parkinson’s Disease: Understanding its Cause and Mastering and Effective Treatment,” available for free from www.pdrecovery.org/ (I do not necessarily endorse the concepts or opinions of the author but found it a compelling and worthwhile read; too bad she won’t converse with anyone that has been on PD meds such as Mirapex for a month!)

There are almost unlimited resources available on the Internet. By far the best PD website is www.PatientsLikeMe.com that has over 5000 members with PD.

My “Dawn Angel” profile there has been browsed over 7000 times at the time of writing this update.

PD PREVENTATIVE MEASURES

The various measures I have taken in my attempts to slow the progression of PD are listed below in approximate order of effectiveness (my perception). The regimen I am on is constantly changing but the overall goal remains the same: to feel as good as I can.

1. Exercise.

2. Physiotherapy

3. Neuroprotective supplements

3. Diet

4. Chelation

5. Brain therapies

Exercise

The initial diagnosis of PD scared me so much that I decided I had to get into the best possible physical shape to be able to combat the progression of PD. I also engaged a personal trainer, Julie Beenham, to keep me honest. I have seen Julie since June 2007 and would consider our sessions the single most effective measure I have taken against my PD. Within a few months, I had dropped over 40 pounds through a regimen that included running every morning for 5 miles (running for my life) plus extensive workouts in the gym in the afternoon in addition to my sessions with Julie. While my initial reasoning was correct in terms of my being better prepared to withstand the ravages of the disease, I have since found out that intense physical exercise can also have neuroprotective benefits. All the more reason to keep it up. I counsel other people with PD to start exercising and keep at it even when they don’t feel like it.

My exercise regimen has varied significantly over the years, particularly with the seasons, but exercise still remains the most effective method I have found for relief from the symptoms of PD. I have also had to accommodate changes to my body thanks to Mr. Parkinson. For example, I have nearly-constant pain in my right hip that now prevents me from running or from using certain equipment in the gym. When I find I can no longer do one thing (use an elliptical training machine) I do whatever I can to keep that it. A “toe crest” helped keep the toes on my right foot from curling under; I still use toe sleeves to prevent the formation of corns. When these measures weren’t enough I found something else that I could use: a stationary bicycle. I will continue with this practical approach as long as I am able. Whenever possible, I indulge in two of my favourite sports, tennis and kickboxing. Not bad for someone who’s 63 years old!

Gym

Currently, my gym workouts consist of roughly 30 minutes of cardio, 30 minutes of weight training, and 30 minutes of stretching. As mentioned above, the cardio originally was done on an elliptical machine but now I use an upright bicycle. Weights involved a number of machines but also free weights (dumbbells). I have found that stretching is an important component of any exercise regimen and worth the time taken for it.

Personal trainer

I see my personal trainer Julie twice a week for one hour each time. In our ever varying routine, she has me attempt a number of balance exercises. I can balance on my left leg very well but balance on my right leg is problematic. Standing on a wobble board is possible but is becoming an increasing challenge for me. We do part of each session with my eyes closed which seems to be helpful. Each session ends with stretching, the best part!

Tennis

I had given up playing tennis in 2005 after a rotator cuff injury made it impossible for me to raise my right arm (I am right-handed) out to the side and overhead. Little did I know that a “frozen shoulder” is often a sign of PD. In 2008, on the advice of a friend who had seen an amputee play tennis again after switching to his left arm, I resumed playing tennis as a lefty. When my right arm finally came around in 2009, I morphed into an ambidextrous player with both right and left handed forehands. We bought a condo in a tennis community in Delray Beach, Florida that we visit twice a year for a month each time and were I can indulge my tennis habit. Back home in the relatively cold Northwest I see a tennis coach on a weekly basis and play indoors during the winter.

When I play tennis, my PD symptoms also take a vacation although videos show that I am clearly compensating for any impaired movement. Nonetheless, my footwork is good as is my ability to run and make shots from either side of the court. Why this is so is not really clear to me. Perhaps doing something that one really loves is conducive to generating dopamine, the neurotransmitter in short supply in the brains of people with PD. I suspect that it has something to do with the repetitive nature of the game and the delightful sense of vibration when the ball is well struck. For this reason, I prefer “tennis therapy” with a coach feeding me shots, to actually playing a game. I have noticed that on those rare occasions where I summon up extra energy through adrenaline (which consumes dopamine) I pay for it later in terms of a short-lived exacerbation of my PD symptoms. The trick is to learn how to stay relaxed while playing the game.

Kickboxing

It was Julie my personal trainer who introduced me to kickboxing. The kickboxing I do is not in the ring (!) but rather with a partner holding pads or in a gym with a kickboxing circuit. In the summer I am able to set up a punching bag outdoors in the carport but most of the time I now go to “30 Minute Hit”, a local kickboxing circuit. There is something about the contact and the vibrations from the punches that help calm the symptoms of PD. Besides, it just feels good to hit someone! There is clearly some adrenaline production involved with kickboxing as my tremours are usually set off for several minutes after I complete the circuit.

Physiotherapy

Since my diagnosis with PD, I have seen a number of physiotherapists. I am relatively good at following orders and did whatever exercises they recommended, with satisfactory outcomes. Initially, my focus was to regain the use of my right arm. More recently, I have been addressing the progressive effects of PD on my body.

Prolotherapy

As mentioned above, I had given up playing tennis in 2005 after a rotator cuff injury. After my diagnosis with PD in 2007, I worked very hard on regaining the function of my right shoulder. I underwent two months of prolotherapy from a naturopath where dextrose was injected into my tendons (hurt like hell) to promote improved blood supply and healing. In this regard, the prolotherapy was very effective, although I still had to follow up with more than a year of intense physiotherapy. There is still some residual pain in my right shoulder and a tendency for the femur to sit outside of its socket, but for all intents and purposes I have regained a full range of motion. I continue to receive physiotherapy on my right shoulder.

Intramuscular stimulation

In 2009, I began to see Dan Sivertson, a physiotherapist who practices “Intramuscular Stimulation” (IMS), a therapy developed in Vancouver BCwww.istop.org/. IMS is a form of “scientific acupuncture” where the needles are inserted into the problem area such as tight or shortened muscles, without application of electric current (I have little time for non-scientific or traditional acupuncture that relies on mythical meridians to determine where the needles should be placed.). The results of IMS have been amazing and muscles that I thought had been irrevocably tightened have loosened up. There has also been a significant reduction in pain, especially in my right hip. IMS must be considered as part of a complete physiotherapy package that includes myofascial release and massage.

Currently, Dan and I are working on improving my posture. One of the progressive features of PD is the gradual tightening of muscles that progressively cause a stooped posture. With weekly sessions of physiotherapy and daily posture exercises we are keeping the ravages of PD to a minimum at least as they affect my posture and mobility.

Chiropractic

While some people regard chiropractic as a pseudoscience, my experience has been that it is very effective for treating lower back pain. I have had lower back pain for at least 30 years, well before my diagnosis with PD. Whenever I put my back “out” I see a chiropractor as soon as possible and usually a few adjustments set me right. In the past, I used to go for physiotherapy and it took over a month to get any benefit. Chiropractic is faster and more effective than physiotherapy for relief of lower back pain, in my opinion. In addition to chiropractic, exercises to strengthen my “core” help me to recover quickly from recurring back injuries.

Myofascial release

Deep tissue massage is another form of physiotherapy that I have found to be beneficial for PD. In 2010, I had a package of 10 sessions of Hellerwork. Over a couple of months, my Hellerworker Melissa Patton accessed and massaged all accessible fascia of my body. Despite the intensity of the bodywork, the sessions were soothing and felt heavenly.

Air splint

I am currently experimenting with an inflatable splint of the kind used for retraining of stroke patients by immobilizing spastic limbs. The splint is used to straighten my right arm and eliminate the crook in the elbow. I use it three times a day for 10 minutes at a time. It feels good to have my arm straightened.

Minimal contact therapies

There are a couple of therapies that have reportedly had good effect on people with PD. One of these is Bowen Therapy. I have had several sessions of Bowen and found them very relaxing but did not experience any lasting effects. I did, however, find that osteopathy was effective. I have seen in osteopath in New Zealand on a few occasions when I was working there and found his techniques to be effective in reducing lower back pain as well as being very relaxing. If there was a local osteopath, he or she would be in my “team” of caregivers.

Neuroprotective supplements

Neuroprotective supplements are also referred to as “anti-aging” supplements or “mitochondrial enhancing agents” and are taken in addition to the conventional antioxidants (such as vitamin C, beta carotene, vitamin E, and selenium). Most of these supplements are taken orally; the very powerful antioxidant glutathione must be taken intravenously. While I am normally very skeptical of practices that come across as pseudoscience, I can appreciate the rationale for taking supplements that could protect the brain.

The first neuroprotective supplement I began taking (in 2007) was co-enzyme Q-10 after I read that a small clinical trial had revealed that it slowed the progression of PD. Subsequent, larger, studies have not found any beneficial effect on PD but I was willing to go with at least the chance of a good result. I have since learned that the ubiquinol form of co-enzyme Q-10 is superior to (and more expensive) the ubiquinone form.

In 2008, I chanced upon “The Better Brain Book” by neurologist David Perlmutter http://renegadeneurologist.com. The book contains a chapter on maintaining brain function using antioxidants and other compounds that facilitate the functioning of existing neurotransmitters. The protocol recommended by Perlmutter for PD patients is more extensive than that recommended for normal people who simply wish to improve their brain function.

I am currently taking the following neuroprotective supplements:

– Alpha lipoic acid* (time-release) 1200 mg per day.

– N-acetyl cysteine* 600 mg per day.

– Phosphatidylcholine 420 mg per day.

– Phosphatidylserine* 100 mg per day.

– Acetyl l-carnitine* 500 mg per day.

– Co-enzyme Q-10* (ubiquinol) 600 mg per day.

– NADH 5 mg per day.

– DHA + EPA (omega-3*) 660 mg +330 mg two times per day.

– Glutathione* (intravenous) 2500 mg per week.

* Recommended by David Perlmutter.

The glutathione IVs are administered by my ND, Caleb Ng. The protocol is that recommended by David Perlmutter. By the way, there is a video with David Perlmutter showing the near-miraculous effects of glutathione injections on people with PD http://www.glutathioneexperts.com/benefits-glutathione.html that to me seems to be a startling example of the “placebo effect.” I have never experienced anything even remotely resembling the improvement rapidly shown by the people in the video but again, my PD symptoms are not as advanced as those shown in the video. If glutathione has any effect on my symptoms, I believe that glutathione has produced a small (1-2) decrease in my PDRS.

In addition to the special mitochondrial enhancing supplements, I take vitamin C in both in time-release form and also as mixed ascorbates (total 4800 mg vitamin C per day), vitamin D drops (4000 IU per day), selenium drops (260 mcg per day), and zinc drops (30 mg per day) and others. I have my blood work checked regularly and have near-ideal results (all parameters within reference ranges). For years my cholesterol was chronically high and required meds for regulation; now it is excellent (high HDL and low LDL) without meds. Also, I used to be on meds for high blood pressure; now my blood pressure is close to ideal (typically 110/65) and I no longer take meds.

Although it is difficult to say whether all of these supplements are having any effect on my PD, I figure that at least I am extending my life!

Diet

The first alteration to my diet was to eat mostly organic foods to minimize the amount of pesticides that I was incidentally ingesting. Pesticides have been implicated with PD in some cases so I was not about to take the chance that my PD was unrelated to pesticides. I also began eating more fish and less red meat. In 2009, I heard about Donnie Yance, an herbalist in Ashland, Oregon, who had a protocol for treating patients with PD. I read his paper, “Parkinson’s Disease and the Use of Botanical and Nutritional Compounds” and was impressed withhis knowledge. In July, 2009, I traveled to Ashland and saw one of his associates, Jason Miller who has become my herbalist.

Botanicals

Jason provides me with a number of proprietary botanical formulations marketed under the Natura brand from the Centre for Natural Healing in Ashland, Oregon www.centrehealing.com. These contain botanicals that have been known to have a beneficial effect on PD, including:

– Mucuna pruriens (a natural source of levodopa)

– Hyoscyamus niger (henbane)

– Withania somnifera (Ashwagandha)

– Turmeric

– Green tea extract

– Piper methysticum (kava kava)

– Panax ginseng

– Bacopa monniera

– Scutellaria lateriflora (skullcap)

Of these botanicals, the first two on the list are perhaps the most potent. Mucuna pruriens is a natural source of levodopa and has been found to be more effective than synthetic levodopa in clinical trials. I have experimented with not taking the Mucuna and not noticed any difference, although perhaps I am not yet at the stage of my PD were levodopa is necessary. I am currently in a trial of titrating in with Hyoscyamus niger that is supposed to be effective against the tremours of Parkinson’s. So far, at 30 drops a day of a 1:10 tincture, it seems to have appreciably mitigated my tremours but it is too early to confirm it as effective at this time. Any beneficial effect is overwhelmed if stress rears its ugly head. Stress trumps hyoscyamus every time in the tremour department.

In addition to the above botanicals I also use products such as Natura “Beyond Whey” and “NanoGreens” that, amongst a host of other ingredients including frozen blueberries, make up a morning smoothie that I make every day. The Centre for Natural Healing also prepares a custom “tonic for me that I take twice a day. The tonic contains ginkgo, gotu kola, milk thistle, orange peel, kava kava, liquorice, skullcap, and other botanicals.

Gluten-free, dairy-free, and sugar-free diet

In 2009, I traveled to Melbourne Australia where I met John Coleman, a naturopath who has recovered from PD. Of course, I was very interested in doing whatever he did to recover. Amongst his recommendations was a change in diet to gluten-free, dairy-free, sugar-free (and others). I saw John again in 2010 and he said that I was doing well and to stay the course. He said the last of his symptoms to go was the tremour. This gives me some heart as tremour is the most bothersome of my symptoms.

In their book, “Parkinson’s Disease: Reducing Symptoms with Nutrition and Drugs,” Geoffrey and Lucille Leader advocate a gluten-free and dairy-free diet for people with PD. I am not lactose-intolerant nor do I have a gluten intolerance (this has been confirmed by genetic testing with www.23andMe.com) but their reasoning is compelling. It is possible that people with neurological disorders such as PD are much more sensitive to lactose and gluten than are people without those disorders. Luckily for me, we live in an age where it is possible to btain gluten-free and dairy-free foods readily. My favourite gluten-free bread is “Udi” available from Whole Foods in the US (but alas not in Canada). I substitute almond milk for regular milk. Dining out can be a problem; however, I travel a lot in my work and have found that the chefs in hotel and other restaurants are more than willing to meet my dietary requirements.

Adrenal support

In early 2010 I had a saliva test to determine my free cortisol rhythm. Samples were taken at 8 AM, noon, 5 PM, and at midnight. My cortisol levels for morning, noon, and afternoon where all markedly depressed (only the midnight sample was normal), indicating (according to the report) marginal HPA (hypothalamuspituitary-adrenal) performance. I purchased an excellent book, “Adrenal Fatigue,” by James Wilson that help to explain the significance of my results. Low cortisol, or hypoadrenia, is normally characterized by fatigue, difficulty rising in the morning, a desire for caffeine, feeling run down and stressed, etc. Other than perhaps a desire for a daily cup of coffee, I have none of these symptoms. Indeed, I seldom experience fatigue and still consider myself as a high-energy person. Yet, people with hypoadrenia have a reduced ability to cope with stress. Interestingly, people with PD report that their symptoms are aggravated in times of stress. There has to be some sort of connection between the symptoms of PD and impairment of HPA performance, but so far discussions with my neurologist and endocrinologist have not revealed any knowledge by them of any connection.

The danger is that people with hypoadrenia are on the borderline of having adrenal fatigue (no cortisol). When cortisol reserves are too low, and a stressful situation occurs, one may not be able to produce enough cortisol to handle it. Adrenal fatigue has been responsible for high-performing individuals “crashing” and becoming effectively bedridden for months or years, too fatigued to do anything. Not wishing to come down with adrenal fatigue, I have begun taking an adrenal support botanical supplement (“Restorative Formulations Adrenal Px LOPB”) and have also tried adrenal cortex extract (“Adrenal Stress End”).

Hydration

I have tried the Aquas formulas available from John Coleman in Australia. These homeopathic remedies are supposed to enhance cellular hydration. I have a problem with homeopathy. If an infinitely diluted amount is good for me, then not taking it all should even be better! Yet, John Coleman swears by the Aquas and he has recovered from PD, so there may be something to it.

Red wine

Geoffrey and Lucille Leader recommend elimination of alcohol from the diet. John Coleman, sensible man that he is, recommends 1 to 2 glasses of vintage red wine a day. I am on John’s side. Drinking fine red wine has been a passion of mine since the 1970s and one that I am loath to give up especially since I have a wine cellar containing approximately 2000 bottles! Of course a big part of the enjoyment of red wine is the bouquet. Reportedly, loss of the olfactory sense is a common complaint in people with PD and is liable to occur early in the progression of the disease. I noticed no such impairment (and can still guess in a blind tasting that a bottle of Bordeaux is a fine old Burgundy!). For now, I enjoy each bottle of fine wine as if it were my last. To me, joy = dopamine. Also, there must be some benefit from the resveratrol!

Constipation

As PD also affects the autonomous nervous system, constipation can be a severe problem. Since my diagnosis with PD I have had some problems in this regard especially when I travel over multiple time zones and upset my daily rhythms. Currently, I have it under control with the simple addition of one or two rehydrated prunes to my morning smoothie plus a level teaspoon of organic psyllium fibre. These seem to be enough to keep me regular.

Hedonism

I stayed strictly on my gluten-free and dairy-free diet for over a year, but recently had the opportunity to travel to France for a combination of business and pleasure. I temporarily abandoned my diet and indulged myself for a full week in French gastronomy, eating foie gras, croissants, baguettes, rich cheeses, and just about everything else that the French are famous for. The consequence was that I had not felt better in over three years! Now, I am not so strict about my diet and allow myself the occasional indulgence.

Chelation

In 2008, a urine test for heavy metals revealed excessive concentrations of lead and mercury and other metals such as manganese. I have been undergoing chelation off and on since then and currently receive one treatment per week from my ND Caleb Ng. The treatments involve a small IV of EDTA solution. For any benefits to be realized, numerous treatments are necessary. Heavy metal poisoning (especially manganese) has been implicated in PD and welders are one profession that is at higher risk for PD. Since I spent many years working closely with welders and breathing welding fumes, I have no doubt ingested my fair share of iron, manganese and other metals. Interestingly, a CT scan of my brain failed to reveal any abnormal concentration of manganese. Note: the claimed benefits of chelation for PD have yet to be established through rigorous clinical trials.

Brain therapies

This section covers a number of therapies that may be useful for maintaining mental functioning and postponing the dementia that may occur as PD progresses.

Positive attitude

It is difficult to remain positive when confronted with a disease of no known cause and inevitable progression, yet this is precisely what must be done. Depression is one of the predominant symptoms of PD. If necessary, it may be necessary to take an antidepressant. One that has been recommended to me is duloxetine.

Body-mind psychotherapy

For several years in the 1990s, I had training in Hakomi body-mind psychotherapy arising out of the deep desire to know myself. I still keep in touch with my teacher, Ron Kurtz http://hakomi.com/. I regularly see a therapist,Mahmud Nestman, a Sufi who is familiar with the methods of Hakomi. In our explorations one useful technique is called “taking over”. In one session I had Mahmud take over (literally, with his hand) a tightness I felt around my heart.

When he did so, I was able to go in deeper into my own unconscious and to gain some valuable insights as to why the tightness was there in the first place. I have invariably noticed that during our sessions my tremours at first become almost uncontrollable but then they disappear, leaving me in a most serene and quiet and still place. Stillness is priceless.

The science of happiness

For several years I was an active member of the Ken Keyes community based in Coos Bay, Oregon. Ken was the author of the “Handbook to Higher Consciousness,” “The Power of Unconditional Love,” and many other books. For a number of years, I taught “Living Love” workshops in the US, Canada, and New Zealand. These teachings have served me well, particularly now that I have the symptoms of PD. I take responsibility for my own feelings. Nothing or nobody has ever made me upset are unhappy: I do it to myself. This is good news as the only person I am capable of changing is myself.

Neurofeedback

I have had six sessions of neurofeedback, also referred to as biofeedback from Mike de Jong, a PhD psychologist. During the first session and EEG was done to determine those parts of my brain that had abnormal brainwave patterns. Mike determined that my dorsolateral prefrontal cortex was deficient in theta wave output. Subsequent sessions (one hour each) involved application of a single electrode at the position on my head corresponding to the dorsolateral prefrontal cortex. I was provided with headphones to listen to the sound of surf while my eyes were closed. Whenever my brain produced Theta waves I could hear the surf; when no theta waves were being produced all I heard was static. At first, I struggled to hear the surf, but later just let my brain do all the work of figuring it out. After six sessions, some progress is being made. If I didn’t think there was some benefit to this I wouldn’t continue. Typically, it takes 20 sessions to realize any permanent benefit, so I have some time to go.

Meditation/relaxation

For many years, I was an adept meditator and meditation was the most important part of my day. Since my diagnosis with PD, however, I have found it very difficult to get into a meditative state. Sitting cross-legged is agonizing. Instead of stillness, I have tremours. By re-casting meditation as relaxation, I can derive some of the benefits, primarily reduction in tremours and tension. I have found that electro-cranial stimulation (see below) is a good substitute for meditation.

Electrio-cranial stimulation

In electro-cranial stimulation, a small electric current is passed through electrodes attached to my earlobes that produces a mild tingling sensation. Sessions are either 20 minutes or 60 minutes and are very relaxing, almost to the point of putting me to sleep. Tremours also appear to take a nap.

Neurocognitive screening

In 2010, I participated in a neuropsychological screening evaluation at the Movement Disorders Clinic at the University of British Columbia. These tests revealed that my cognitive functioning was “broadly average to superior” depending on which test was being administered. I take this as a sign that I have experienced some cognitive impairment as I would have expected all the tests to result in a “superior” rating!

Defiance

If I had one final piece of advice for anyone who has been diagnosed with PD, it is to defy it. If it is a fight that Mr. Parkinson wants, it is a fight that he will get. The worst thing one can do is to deny it. As long as one remains in a state of denial, the PD will continue to progress. But as soon as you turn to face your tormentor and fight back, the PD will lose its grip over you. Mr. Parkinson may win in the long run but it will be a protracted fight and you will win many of the rounds. And, who knows, you may just beat him!

Afterward I hesitate to call this section “Conclusions” as my protocol is very much a work in progress, and the effectiveness of many of the measures has not yet been verified. I do not have time to wait for the development of a “cure” from conventional Western medicine. I will be dead long before any such treatment has passed through all the hoops and clinical trials necessary for its approval.

Currently, the treatment of last resort for PD is Deep Brain Stimulation (DBS) but it is only done when a PD patient is essentially incapacitated with an advanced form of the disease. How humiliating! For people with tremour-dominant PD the option is thalamic surgery, either in the form of thalamic DBS or thalamotomy. Canada’s medical system is unable to cope with the (growing) numbers of PD patients, so in the meantime I will do everything I can to prevent the progression of my PD to the point where surgery is even an option.

I am doing the best that I can to not be a burden on the medical system. What I am doing is also expensive. Canada’s medical system pays for my neurologist visits and little else. The PET scan, physiotherapy visits, naturopath visits, botanicals, and supplements are not covered. Yet if there was ever a time to start spending what I have saved, it is now. I would rather have quality of life than a fat bank account anyway. I’m currently working my way through my “bucket list” and having the time of my life.

Angela Wensley

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Pain and Parkinson’s Disease

Question:

Although this topic may have come up before, we haven’t gotten yet a satisfactory answer.  The question is whether you have found pain to be a significant symptom in people with other symptoms of Parkinson’s disease, and if so, what they do to find relief.

The second question is whether in people who take L-dopa, it is common for them to feel worse 20-45 min after taking the medication before finding relief.  Any suggestions or information you have on these two related questions would be very much appreciated.

Response:

Pain:

Yes, I have received many reports from people who report pain is a very troubling symptom for them among others. First, from what I have learned, people get relief from pain by meditating. Meditation allows them to override all of the thinking that surrounds the “meaning” of the pain. We all put a head on top of our head, which makes the experience worse. That is one reason I have been motivated to record the weekly series of meditations.

Second, my observation is that there is typically a thought form that is buried beneath the pain. Once that is cleared and released, the pain resolves. I will be interviewing Deborah Russell on the radio program next month who will be explaining how quantum healing is useful in this regard.

Third, a source of the pain is often unreleased trauma. Using one body therapy or another (we use cranio-sacral) helps with releasing trauma. Other therapies are helpful as well. Once the trauma is released, the pain resolves (if trauma is the primary causal factor)

Fourth, I just interviewed Lee Bender this morning who has had a considerble challenge with pain over the years. It is interesting you just happened to write in today! Go to Lee’s website and you will see what he does to get relief from his pain. I will be airing his interview next month.

Timing of Medications

As for the timing of the medications – this  is a tough one. Most people tell me that when they work closely with their doctor, they can adjust their medications so that the down time is minimized. I wonder about the reason for the emergence of pain before the meditations kick in. Perhaps the body is in a suspended state of withdrawal until the  new dose starts to work. Perhaps there is a temporary flare up of inflammation.

I hope others have their own two cents to offer so we can shed some light on this particular challenge.

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Learning to Live with a Chronic Disease

Florence Caplow is a conservation
botanist, Soto Zen priest, and writer.
For the last ten years her primary
practice has been learning to live –
with some kind of grace – with a
chronic and painful auto-immune
illness, diagnosed as Undifferentiated
Connective Tissue Disease.

The illness forced her to give up
full-time work. She has chosen to spend
several years without a home: in retreat,
in the mountains and deserts, and
wherever she’s called to be.

Florence talks about her interview with
Michael Sawyer, Zen priest with Parkinson’s,
who died in 2008. Michael told Florence that
the best years of his life were the last
five because of the joy he experienced
through his painting. Florence tells us Michael
was a true inspiration to everyone who knew
him. So is she.

EVENT: Learning to Live with a Chronic Disease
To hear the recording, click this link now …
http://instantTeleseminar.com/?eventid=7282578

Robert Rodgers, Ph.D.
Parkinsons Recovery
www.parkinsonsrecovery.com

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Pain in the Thigh. Pain in the Groin

Question:

My husband has been diagnosed with Parkinsons disease 7 years ago.  He is 80 years old. His latest symptoms are: burning and pain around the groin area, thighs and sometimes backside. The only way to make him comfortable is by taking Neurontin and Darvocet.  Confusion is then increased. Any suggestions?

Ready to give up,

Jeannette

Response:

First, let me give my customary warning: I am not a medical doctor and am not qualified to diagnose and prescribe. My response is founded on my research findings and should be taken to a medical doctor for further discussion and evaluation.

My first reaction to the description of symptoms is that the pain may be caused by lymph that is backed up and clogged around the groin area. The only way to move lymph out of the body is through exercise.

Does your husband get exercise every day?  I am guessing not.

What if exercising is too painful for him at this point?  It may be painful at the beginning, but if my guess is on target, the pain will subside when he begins to move. A great technique for moving lympth is to jump on a trampoline. Everyone should do it. You can purchase small ones for home use for $30-$40 in the U.S.

Another possibility is for him to use a body inverter which he can use to shift the body so that his head is lower than the feet. There are little valves throughout the lymph system that prevent the lymph from slipping back down, so when you place the body upside down, the lymph moves up and out. There is no organ that pumps the lump as there is for blood (which of course is the heart).

A total inversion would probably be unwise, but  positioning the body so that the head is lower than the feet can be helpful. Various health care practitioners might have such equipment you can experiment with. If he has other health problems, this idea might be unwise, so check it out with his doctor. 

The challenge for him is likely that the lymph in his body is a thick mucuous. Hydrating his body will be a great asset. Dr. John Coleman, ND,  recommends that everyone with Parkinsons hydrate their body using a homeopath remedy called the Aquas (www.aquas.us). The thirst mechanism for all older persons shorts out, so the body needs a backup signalling system that will helo the body tell him when to drink. At a minimum he should drink a lot of water.

My guess is that the more he can move his body, the more relief he will get from the pain. You of course might also want to examine very carefully the side effects of any medications he takes. This can also be a confounding factor which can directly contribute to the problem he is experiencing.

Finally, the sentence jumps out at me

Ready to give up.

I note that you do not say whether you are ready to give up or he is ready to give up. If he is ready to throw in the towel, then I would say to you – honor his wishes. A time comes for everyone when a decision is made to begin shutting down the body. Is this his time? If so, he will not move or exercise or do anything of the things necessary to relieve the pain.

Are you ready to give up? Believe me, this is totally understandable. It is so difficult to take care of someone you  love who is ill. If you are ready to give up, it is time for you to take a break from care taking. 

Take a short vacation with your friends. Get away. No one can take someone who is ill 100% of the time. Ill people take the energy away from healthy people. That is the natural process of what happens.

You need to get away to rejevenate yourself. This sounds counterintuitive, but by taking care of yourself, you are actually able to do a much better job of taking care of him.

My guess about the cause of the pain may be wrong and you will have to move to another possibilty, but I can  guarantee you that when he moves his body, he will feel better. It is the one surefire suggestion I can offer that I know will yield relief.

Robert Rodgers, Ph.D.
Parkinsons Recovery  

© 2009 Parkinsons Recovery

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Parkinsons Disease Diagnosis and Treatment for Pain

The following correspondence was
received from Marne. I thought this
would surely be of interest to others.

My husband was diagnosed in 2006 with PD. 
We had MRI’s, CAT scans, Xrays of his whole
spine & shoulder. Found several herniated disks
in the cervical & lumbar areas & arthritis
in his shoulder. For 3 years the neurologists
said there wasn’t anything we could do. 

We just recently (3 weeks ago) went to a pain
specialist who said the shoulder & right arm,
hip & leg pain (all of the right side) is
probably due to the herniations.  He recommended
an epidural steroid in his cervical spine area
to relieve the pain. 

My husband did the procedure & during the
injection he felt his entire right arm get
really hot as the medicine went down & he
even felt it in his legs.  He walked out of
that office being able to raise his arm & use
it for the first time in 3 years. 

He has no more shooting pains in his arms, neck,
back, shoulder, hips & legs.  What the Dr. said
was that his spine was really inflamed.  His only
symptoms are now down to a very slight tremor in
his right arm & not having full strength of his
right leg.  This may or may not be permanent,
only time will tell.  But what I now know is
that inflammation of the spine can be a huge
cause of the pain. 

And unfortunately once a Dr. knows your diagnosis,
he throws every symptom into the Parkinson’s bucket
& doesn’t look outside of the box.  This treatment
has been amazing overnight.  Now he can do the
proper physical therapy so that we can get his
body working again.  And, with God’s blessing, have
the pain stay away permanently.

Thanks so much for your letter. It is proven over and
over that everybody’s situation is unique.  It is
amazing what can happen when you begin considering
different causes for the symptoms and what miracles can
happen with a little experimention.  

PS:  My husband has been on Glutathione @ 4000 mgs/
push IV, 1X or 2X a week for almost 2 years now & that has
helped tremendously. A good website is
www.Glutathioneexperts.com
Take a look at the video by David Perlmutter. 

Another site that we are using is www.PDRecovery.org
Her treatment is quite simple and my husband is experiencing
some very interesting changes in his body…more feeling. 
The treatment is simple & FREE.  She has a very interesting
book that is available Free online on her site.  It’s worth
a read.

Robert Rodgers, Ph.D.
Parkinsons Recovery

© 2008 Parkinsons Recovery

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Natural Remedies to Address Pain and Rigidity

Question:

I am regularly following your website and very good
information about alternative approaches to combat Parkinson’s.

I was diagnosed with Parkinson’s about 3 years ago.
For over a year I have been taking Syndropa  (a combination
L-dopa/carbidopa) and Zandopa. However, over a short time
the beneficial effects of L-dopa have diminished so that now
it sometimes doesn’t help at all and when it does, only for
a very short period of time.

Most of the day I am  feeling bad, with little relief from
L-dopa. I have made life style changes with healthy diet,
low saturated and trans fat, less refined carbohydrate,
no processed food with variety of antioxidants and chlorella
green algae, L lipoic acid, N acetyl carnithine, gingko biloba,
vitamin A, E, C, B complex, selenium, zinc ; mitochondria
energy boosters like Co enzyme Q 10, NADH  and Bowen therapy etc.

I know that body needs time to heal and recovery  process
is zigzag. I have also started Aquas.

In spite of doing this I feel that my rigidity, muscle spasms
are increasing in my neck, shoulders, back. This is accompanied
by a feeling of other unpleasant sensations which are difficult
to describe but are all the same extremely. I feel a continuous 
abnormal sensation which aggravates after noon & becomes worse
at night especially in my forearms and  feet. Due to unpleasant
sensations, I can not sleep well and remain disturbed.

I don’t have any tremor, good gait, normal hand writing, good gait,
good hand eye coordination, decreased facial expression, little
difficulty in speaking, no slowness, no difficulty in initiating
movement, can ride scooter, less energy. During night hours my
legs become very heavy and my body drags.

My questions are 1) have you ever seen anyone like this  whose
primary symptoms are pain and a very unpleasant internal other
sensation, rigidity with no tremor; is it atypical: and if so

2) what helped, or what treatment or other plan would you recommend?

Response:

I need again to put my disclaimer at the top.
I am not a medical doctor, so be sure and consult
with your health care provider/doctor before making
any changes to your health care program. Take my
comments as information only to be discussed
further with your doctor. I am not qaulified to
diagnose or treat Parkinson’s or any disease.

Have I seen anyone like you?

I continue to be amazed at the variety of characteristics for each
person’s symptoms. Everyone has a unique situation and a unique
body. From my interviews, I would speculate that 20 – 30% of people
have symptoms that are somewhat similar to yours (though not identical!).

As a side note, the literature is clear that many people are
misdiagnosed. Estimates vary, but studies indicate that 
at least one out of five people are misdiagnosed. Neurologists
have a tough job diagnosing this disease. Many tell their
patients – I do not know, but we can try medication if you wish to
see what happens.

What helps?

My initial answer (which is probably what you were not expecting)
is experiment. The people who are getting good relief
experiment. Through experimentation they are able to figure
out what is most helpful to them. Many of the alternative therapies
do provide relief. The challenge is to find the therapies that
provide good relief for you and to find therapies that are
cost effective for you.

My second general suggestion for you is to begin looking in
different places for solutions. Let me suggest just a few
possibilities.

First, consider the possibility that the side effects of the
medication might be creating some problems for you. It sounds
like the medication provided good relief initially, but
that now it provides little relief. There are over 40 hormones
in the body, so it is possible that your body is struggling to
maintain a good balance.

If you decide at any point to reduce the dose, be sure to
consult with your doctor very closely. The process of going off
the medication is very tricky and can cause serious health problems.
It needs to be a very gradual and mindful weaning process which
can take a long time.

I am no expert on drug – drug interactions or depletions, but
I will soon be interviewing an expert in this area – Randy Mentzer.
Be on the alert for my announcement of his teleseminar. He is
an awesome resource when it comes to issues revolving around the
side effects of drugs. There may be some harmful interactions
from taking the particular the supplements and medications you are taking.  

Second, you do not mention an exercise program, Do you have one?
It can be a true challenge with your symptoms, but any movement
during the day will help relieve symptoms. Exercise gets the lymph
system moving and helps strength the immune system.

Third, you might look into detox programs. I note that you are
taking Aquas which is a core approach for detoxing. Great.

There are other detox possibilities you might want to consider.
I will be interviewing a number of naturopaths over the
coming months who offer a variety of approaches to detox your body.
Be on the lookout for approaches that work gently and tenderly.

Fourth, it may be the case that all of the wonderful supplements
you are taking are not being absorbed by your body. In other words,
the primary challenge you may be having is actually digestive.

Many people spend a ton of money on supplements, but because their
digestive systems are compromised, the supplements go in and come out without being assimilated by the tissues of the body. The entire
field of Ayurvedics is dedicated to helping people get their
digestive system back on track. You might find some interesting
possibilities if you investigate approaches that help your digestive
system come back on line. 

Fifth, I am currently writing about the underling meaning of pain which
has an emotional component. Be on the lookout for this explanation
as well. 

Finally, rest assured that you are doing everything right. Searching
for answers that work for you will yield huge benefits. One thing
most people do not realize is that when you start on the road to
recovery, it is common that your symptoms will be worse on some
days before they get better.  
 
Robert Rodgers, Ph.D.
Parkinsons Recovery

© 2008 Parkinsons Recovery

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