Before three years, I was diagnosed Parkinson with rigidity in neck, shoulders and back, less arm swing,slowness.
Thereafter I consulted a number ofÂ neurologists who diagnosed as stiff person syndrome or drug induced parkinsonism or due to depression.
Currently, I have following symptoms
1. Rigidity in arms, shoulders, neck back and whole body.
2. Within last one month intensity of muscle spasm in right shoulder increased which spread over neck, back with increase in rigidity.
3. Heavy legs, difficult to walk; body is dragged while walking
4. Spasm in right shoulder and upper back as a result the head is slightly bend over right shoulder.
5. Rigidity in right shoulder, upper back and neck create pain and very uncomfortable spasm like sensations which aggravate as day progresses.
6. Some times uncomfortable sensations in legs.
7. Anxiety with depressed mood.
8. Low energy level.
9. Restricted painful neck movement.
10 Slowness in hand writing; no much change in size of letters
11 Less arm swing
Things which I can not do:Â
Â Can not walk normally
Â Can not stand for long
Â Can not lift heavy luggageÂ
Â Can not drive car
Â Can not concentrateÂ
Â Do not like to read , mix with people
Â Can not sit for longÂ
Family history :
Â I have not undergone any surgery so far.
Â Congenital fusion of C6 to D1 vertebra
Â My mother had breast cancer and has undergone by pass surgery.
Â No PD in family.
Summary of health:
Lipid profile Normal
Renal profile Normal
Blood sugar Normal
Ultrasound of KUB Normal
MRI of cervical spine Presence of Arachnoid cyst at C7- D1 level;
size appox. 11x15x13 mm
Congenital fusion of C6 to D1 vertebraÂ
MRI Brain Normal
Glutamic acid decarboxylase test IgG Antibody serum Positive
NeurophysiologyÂ report Chronic partial lower motor neuron type of degeneration in the anal sphincter muscle with normal tone preserved
Thyroid profile Normal
Vitamin B 12 High
Â No tremor
Â Near to normal gait
Â All of aÂ sudden muscle spasm increased in last month.
Â Balance near normal, never fallen
Â Hand eye coordination good
Â Can cut vegetables, button shirt and handle coins
Â Can ride scooter
Â Normal 6-7 hrs sleep
Â No urination at night.
1. Lelodopa + Carnidopa 2 tab aÂ
2.Premipexaxole 05 mg three times a day
3. Lioceutical glutathioneÂ
4.Co enzyme Q 10 100 mg/ day
5. Vitamin B complexÂ
Inspite of taking these I feelÂ continuous Â feelings of rigidity in neck, shoulders, back and whole body. My legs have become heavy.
Please let me know whether my diagnosis of PD is correct and whatÂ should be the line of action..I wanted to do brain scanÂ and dopamine absorption test but they are not possible here.
Please advise me.
I am not a medical doctor so I am not qualified or trained to diagnose
or treatÂ disease or even speculateÂ on whether your diagnosis is right or
wrong.Â Â My perspective differs from the conventional approach of
diagnosis and treatment of disease.Â Let me explain myself.Â
Parkinson’s is what we call a garbage can diagnosis.Â
Because there is no definitive test for Parkinson’sÂ
it isÂ terribly difficult for even highly trained neurologists toÂ
diagnose Parkinson’s.Â Some researchers
even speculateÂ that one third of the people withÂ Parkinson’s
are misdiagnosed. Sometimes a neurologist will even
tell aÂ patient:Â
Â Â Â
Â Â Â Â Â “I am not sure whether you have Parkinson’s or not.”
So, let’s say there is a two thirds chance your diagnosis is correct
and a one third chance it is wrong.Â Â What does it matter whetherÂ
theÂ diagnosis is correct or wrong?Â With aÂ “diagnoseÂ then treat”
approach the key questionÂ turns on “what is wrong with
me and how do I fix it?”Â Â
I want to be fixed asÂ much as anyone, but I also
know there is something inherently wrong withÂ this
mindset.Â If IÂ holdÂ onto the thought that something is wrong
with my bodyÂ then that belief will eventually become true.Â I will
become sick. IÂ will become myÂ thoughts.
How do I know this is true? Easy. Just think about what happened
when you were first conceived. There was only one cell in the beginning.
How did that one cell become two cells? Answer: theÂ consciousness
and thought forms of the first cell created the second cell. And so forth.
These thought forms work theirÂ way up the chain asÂ cells multiply
andÂ we areÂ fully materialized in human form.Â
How about considering a different way to think and respond
to your symptoms?Â How aboutÂ acknowledgingÂ that yourÂ body is
actually working perfectly, exactly the way it was designed
to function?Â Â
Pain is a gift that is given by the body.Â Receive
the gift with open arms.Â Your body is simplyÂ giving youÂ
signals thatÂ it needs a little help in returning to aÂ
state of balance and health.Â Â
After all, most of the cells in your body are functioning perfectly.Â
Why not focus your attention on giving your healthy cellsÂ the
support they need to become stronger?Â Bodies with healthy cells
grow otherÂ healthy cells. The good news is that the body can
always rejuvenate itself.Â
I believe the key is to listen to what your body is telling you.Â
By the description of some of your symptoms it might be the case
thatÂ your body is very, very stressed and traumatized.Â
In our newsletter I regularly offerÂ information about many
different ways you can consider to address the stress andÂ trauma
that is trapped inside your body (if that, in fact, is the issue at hand).Â
All the best. May you find relief from your symptoms soon.Â
Robert Rodgers, Ph.D.Â
Â Â© 2008 Parkinsons Recovery