Category Archives: smell and Parkinson’s

Smelling Parkinson’s

Below is an email I have permission to post from a wife who has the unique ability for smelling Parkinson’s. She reports below that when her husband (who has Parkinson’s symptoms) was using the new Vielight Gamma device she was unable to smell it, but when he interrupted use, she could not detect the Parkinson’s smell.

I interviewed the inventor of this new device on the radio show and posted his interview here on the blog for those of you who need more information about what she is talking about when she refers to the “Vielight machine.”  https://blog.parkinsonsrecovery.com/photobiomodulation-therapy.

Robert Rodgers PhD
Road to Recovery from Parkinsons Disease
https://www.parkinsonsdisease.me

Dear Robert:

My partner has Parkinsons.  I have been with him for nearly 4 years. And he has had a strong smell, not pleasant, since that time – until using the Vielight machine.  After 3 days I noticed that his smell wasn’t there – I didn’t know he had started using the machine – it took him a few weeks to work it out! and have the confidence to try, but I did notice ‘no smell’ and when I asked him, found he had started.  I think he felt a bit more energy too.  He has been using the machine on alternate days.

About a week ago the smell had returned, not strongly but enough to notice, I said have you been using the machine? “Not for a few days” so he has started again, and no smell!

Have been meaning to feed this back to you and was reminded by posts on Facebook about a woman in Scotland who can ‘smell’ Parkinsons.

https://www.facebook.com/bbcscotlandnews/videos/1792632370760973

Keep up the good work!

Yatro

Able to Smell the Roses Again – Finally!

Dear Robert,

I write to you on behalf of my mum, Carol, who was diagnosed with Parkinson’s just 3 years ago.  She has asked that I carry out her correspondence since she feels she becomes anxious when working at the computer (may be a symptom of her Parkinson’s?).  At the time of diagnosis she was led to believe life was all down hill from there on and felt very scared, vulnerable and of course depressed.  She is reluctant to start on dopamine medication as is the type of person who looks toward trying more natural therapies where possible.

 

It was only by accident that while browsing the internet one evening she stumbled accross your web site (we’re from England, UK) and the rest is history. From listening to your weekly programmes, she has grown in confidence.  The incredibly useful information and advice you give is made all the more inspiring by your optimistic and encouraging style.

 

She has also been inspired by two guests in particular on your programmes – John Coleman and Sharry Edwards.  She followed advice regarding the potentially irritating affects of wheat and since giving up wheat/gluten 6 weeks ago she has noticed she has started to regain her sence of smell.  Only this morning she remarked how she was able to smell the roses in her garden for the first time in years!

 

After listening to your most recent programme on voice anlysis, my mum has decided to take the wonderful oportunity to download the Parkinsons Voice profiling software programs for free to process her own voice profile.

 

Once again, a big thank you for all your hard work and encouragement – it is very much appreciated –  please keep it up!

 

Rachel and Carol.

You can access my explanation of voice profiling below in the most recent radio show that was aired this week. Since airing the show, I have heard from one individual who has taken the voice profiling classes offered by Sound Health. She reports the classes are very challenging and demanding – much like earning an advanced degree. She also reports it has been a fascinating journey of discovery.

The show below previews an offer from Sound Health that expires June 15th. Be sure to listen now if you are drawn to learn more about voice profiling.

Robert Rodgers, Ph.D.
Road to Recovery from Parkinsons Disease

Listen to internet radio with Parkinsons Recovery on Blog Talk Radio

Loss of Smell and Parkinson’s

By way of introduction to the correspondence below from Hanne Koplex, I thought you might first like to know something about her. The information was taken from the 12 Melisa Conference in Prague.

“Hanne Koplev, a Danish veterinarian, who also had studied acupuncture … stopped working as a veterinarian in 2001 because of Parkinson’s disease, presumably caused by exposure to mercury and copper. In collaboration with private clinics she “challenged” 15 Parkinson patients with Dimaval (DMPS) and 3 patients with penicillamin in order to prove exposure to mercury and copper, respectively. Some were later treated with chelators and improved.

Hanne indicated a number of exposure sources: mercury from dental amalgam; copper from intense pig farming, intrauterine inlays, cooking-vessels, copper tubing and amalgam; manganese from welding; lead from gasoline:

The Parkinson patients that I have seen were all heavily exposed with amalgam in their teeth, and sometimes also gold. The only exception was a dentist from India, working in Sweden, with no amalgam in his teeth, but exclusively amalgam in his work.”

Hanne Koplex submitted for posting the following fascinating summary of her ongoing study that clearly links toxins to the loss of smell for persons with Parkinson’s.

Please note that intoxication with Mercury can be followed by symptoms as loss of smell.

My article about Parkinson’s disease is not updated since 2005. The corresponding diagram can be found at this link: http://www.snowboat.no/Diagram15.03.2006.PD-1korr.pdf (This diagram from 2005 contains only 18 patients.) Today I have collected test results for about 72 Parkinson patients.

All except two patients, who were or had been medicated with anti-psychotic medication, were found intoxicated with heavy metals. The most common result is a combination of chronic intoxication with Mercury, Lead and Copper. Copper could be a special Danish problem due to pollution from agriculture production.

The article has been used at The MELISA-congress in Prague concerning “Toxic Metals as a Key Factor in Disease”. http://www.melisa.org/popup/12-group-summary.php

Please note too, that in some patients with Parkinson’s disease the sense of smell is changed. Putrid smells are sensed very strong, and pleasant smells as ex. flowers can not be sensed. Some of these patients would (wrongly) answer, that they have a very good sense of smell.

The sense of smell have be restored after (years of) detoxification in one of the patients with loss of smell.

And note too the way that mercury can enter into the body and destroy the sense of smell.

Best regards.

Hanne Koplev
Veterinarian

The links Hanne provides in the summary above contain information about toxins and Parkinson’s that is illuminating. If you have Parkinson’s and have not yet explored with your health care providers whether toxins may be a factor that is contributing to your symptoms, may Hanne’s study inspire you to explore this possibility with greater zest and zeal.

Robert Rodgers, Ph.D.
Parkinsons Recovery

Resources

Cruise to Alaska
Jump Start to Wellness
Parkinsons Recovery Chat Room
Symptom Tracker
Parkinsons Recovery Radio Network
Aqua Hydration Formulas
Alternative to Cataract Surgery

Books

Road to Recovery from Parkinsons Disease
Pioneers of Recovery

Five Steps to Recovery
Meditations for Parkinsons

Phantom Smells Anyone?

Question:

I have experienced the loss of the ability to smell for a number of years even though I was diagnosed with PD only three years ago BUT I often have phantom smells (wires burning, ammonia, permanent wave solution, smoke and other smells I can’t describe.) I wonder if I am alone in this or have other PD patients experienced this.

Thank you.

Sharon

Response:

How about it folks? Anyone else experiencing phantom smells like those Sharon describes above? Please write in a comment to let Sharon and the rest of us know your experience with phantom smells.