“I have just listened to “Jumpstart“. May I first encourage you to run that “2015 Jumpstart for Australia”; I’ll be the first to sign up.
More important still, I believe you touched on the dominant reason people do not have faith in their ability to recover and take control of their well being.
It is that first, damning “trauma” that accompanies every diagnosis of any form of Parkinson-ism; the inevitable statement in one form or another;
“It is degenerative and incurable, you won’t die of it but you will die with it”
I was diagnosed 5 years ago and have had definite success “following my instinct” in a number of ways; including visiting Dr Walton-Hadlock in Santa Cruz, “medical” QiGong, acupuncture and, not-so-simple-with-tremors, meditation.
It is my certain experience that each advance is reversed by the perpetual “echo” of that statement that I have now heard from three eminent neurologists and read in almost every book and website …”degenerative and incurable”.
You probably know there is a hospital in Putney, UK, that was established in the 19th century to treat neurological diseases. It was called “The Hospital for Incurables” until 1995 when enlightenment struck. The detrimental and counter-productiveness of that name was acknowledged and the name was changed.
Imagine being admitted under the archway emblazoned with with the original name – your “inevitable” fate.
Yet 20 years later no such enlightenment has struck amongst “Parkinson’s Specialists”, the very professionals whose hospital was re-named in recognition of the self-fulfilling damnation of the categorization “Incurable”.
I write in hope that you, a man of influence in the realms of this horrible, life denying disease, be inspired to arouse your multitude of followers, the “patient advocate and support organizations and those medical professionals aware of the values of “alternative” cures and self-motivation, in a campaign to cease and revoke the terms “degenerative and incurable”.
It is 20 years since UK’s “Hospital for Incurables” was renamed “Hospital for Neurological Dis-abilities” . Surely time to bring enlightenment to the neurological establishment by a campaign presenting the facts and recognizing the dreadful harm and hopelessness these terms impose on their patients.
In gratitude for your work.”