Category Archives: detoxes

Herbal Detoxes

What do herbal detoxes entail? What is involved when it comes to the physical sensations and outcomes? Here is a fascinating email account I received permission to post from Deborah.

Robert Rodgers PhD
Road to Recovery from Parkinsons Disease

Herbal Detoxes

I’ve been detoxing on herbs for 2 years now so detox pathways feel very familiar. I took 1/3 of my 300 mg dose, used a razor blade to cut the small white pill. Waited an hour to eat a light fruit snack. Fell asleep 9 pm. Awakened 11:45 feeling effervescent  bubbling and zapping sensations between stomach and liver back and forth almost gurgling with an intermittent stab of pain lasting only a second. I knew then that the immune boost I got from LDN was working! Then the sensation moved up esophagus this took awhile and then bam center of my brain. Internal brain tremors started as I calmly observed smiling at the work being accomplished. I didn’t have an early or heavy schedule so I just relaxed about sleep. I’ve been detoxing on herbs for 2 yrs now so detox pathways feel very familiar. I took 1/3 of my 300 mg dose, used a razor blade to cut the small white pill. Waited an hour to eat a light fruit snack. Fell asleep 9 pm. Awakened 11:45 feeling effervescent  bubbling and zapping sensations between stomach and liver back and forth almost gurgling with an intermittent stab of pain lasting only a second. I knew then that the immune boost I got from LDN was working! Then the sensation moved up esophagus this took awhile and then bam center of my brain. Internal brain tremors started as I calmly observed smiling at the work being accomplished. I didn’t have an early or heavy schedule so I just relaxed about sleep.
​
Fever kicked in for about a minute then gone! Zapping and bubbling continued moving arm, shoulder started tremoring furiously then stopped, then back to liver, stomach, another momentary fever and I fell asleep again. Woke 4:45 ran to bathroom with diarrhea.​ Went back to bad this time explosive diarrhea. Showered and cleaned lay down again feeling crazy head sensations, center the to ears, sinuses then skull. No more sleep just rest. The detox pathways just covered areas covered by vagus nerve, which interfaces with parasympathetic control of the heart and digestive tract. Oh yeah sensations went to my heart and a slightly longer fever persisted then faded. Don’t feel great this morning but ready to continue this battle to recover, thinking of possibly reducing dose to 75 mg as I’m not in a hurry  Recovery is a journey not a race and if too many pathogens are killed the toxic load is too much for the body to release. In that case it just recirculates through the body spreading more disease and we don’t want that!So why so many pathogens in my body? In a word trauma. From the age of eight and up I have had many episodes of disassociation. Where fear exacerbated by abusive circumstances of which I had no control had me(my consciousness) completely leave my body. This is when the immune system turns off and the body stores the trauma in a cellular level. Only to repeat it over and over.​The immune system went into shock and now as pathogens move thru the body, the way they do, the immune system asleep at the wheel allows pathogens to start nesting eventually to take over if not reversed.”
​ Deborah

How to Detox Aluminum from your Body

How can I detox Aluminum from my body? My doctor says that my Parkinson’s symptoms may be due in part to the presence of aluminum in my body.

Talk with your doctor about the possibility of using the following substances to reduce your toxic load of aluminum which  may be hanging out in the folds of your brain. Some studies suggest that they can facilitate the release of aluminum in the brain.

  • Magnesium citramate. Magnesium reduces brain levels of mercury and the citramate. A combination of citrate and malate, has been shown to significantly stimulate elimination of aluminum from the body.
  • Ascorbates (as magnesium or calcium ascorbate). A study found ascorbate to be a very effective chelator of aluminum, especially when the aluminum was bound to brain cell DNA. Taking higher doses of ascorbate with the magnesium citramate increased the removal of aluminum even more.
  • Malate. Malate was shown to be one of the more effective aluminum chelators for the brain. Pyruvate (as calcium pyruvate). Pyruvate has been shown to effectively prevent aluminum absorption.
  • Flavonoids. Eat a lot of fresh vegetables. Supplements containing flavonoids, such as quercetin and hesperidin, also prevent aluminum absorption. Chlorella helps remove mercury and lead and may remove aluminum. These supplements are in addition to the antioxidant vitamins you normally take.

Permit me to also point out that the goal here is to get the bad stuff out of the body.  It seems to me to be a bit problematic to achieve this noble goal by putting more stuff into your body. Another option that I actually prefer is to focus on cleaning the primary elimination organs of the body so that your body can do the work of detoxing.

There are too many roadblocks in the body: the kidney and large intestine are likely loaded with too many toxic substances. Instead of focusing on one toxin, step back and focus on strengthening your body’s ability to do the work of detoxing itself. If you are like most people, aluminum is just one of many other toxins that are interfering with the normal function of all systems in your body – especially the neurological system.

Robert Rodgers, PhD
Road to Recovery from Parkinsons Disease
www.parkinsonsdisease.me

 

Dehydration, Toxins and Parkinson’s

I have noticed that when I drink more water I begin to feel really lousy. I get more headaches, have low energy and feel like I have the flu. Parkinson’s symptoms are problematic as it is – and now this.

Response:

I suspect you may be experiencing a huge detox effect from becoming better hydrated. The symptoms you list are all the symptoms that are typical of detoxes. This suggests toxins may be the pest causing the neurological problems you currently experience.

You might consider getting an assessment of toxins of some sort or another – perhaps bioenergetic testing or voice analysis or hair analysis. You may have already had some assessments done – but they might not have picked up the true culprit which can show in the form of heavy metals of one type of another or pesticides. I aired a radio show with Dr. Joe Hickey, MD, several months ago who offered some fascinating perspectives on diagnostic assessments for heavy metals and detox protocols that succeed for people with Parkinson’s.

If the diagnostic assessments show toxins  – then a strategy would be to set in motion a detox program to release toxins gradually and safely. The hydration is obviously a key but some toxins need a little extra nudge to leave your body. They do not exit willingly unless gently encouraged.

If the nudge is too aggressive you can pay dearly for the consequences. You certainly want to be rid of the toxins, but not at the expense of feeling lousy for months on end.

I have received a number of reports from people who report a worsening of symptoms when their detox programs are begun. This may be due to an inadvisable protocol or to a detox program that is too aggressive. It is best to proceed with detox programs slowly. Do not expect immediate relief. Working with a health care practitioner who is an expert on safe and gentle detoxes also can be very helpful.

People often assume that because they are feeling worse, the detox program is making the situation worse. They thus decide to abandon the detox program.  Instead of giving up, I suggest that you recognize that toxins are an issue.  Search for another detox protocol that offers a more gentle release.

Robert Rodgers, Ph.D.
Pioneers of Recovery
www.pioneersofrecovery.com

Parkinsons Recovery Happens Day By Day: People Get Better

Parkinsons Recovery– People Get Better

I am a recently joined member from England. I am so excited about finding your web site and want to thank you from the bottom of my heart. There are no words to express my gratitude and excitement. I am really going to enjoy my recovery as it happens day by day. I have always had a little place inside me that says “I will figure this out”.  Now I have found the way with your help and I have regained my drive.  It is fantastic!

I have had definite symptoms for 12 years though I have been burdening  my mind and body with severe stress for years, mistakenly believing I could handle anything. Then the oak tree collapsed: I was totally exhausted and had no idea. I have been taking requip for 5 years and sinemet for 18 months and am determined to get free of them. I know I will though I don’t know details of the how yet. Don’t worry I shall be very careful and I have a lot of support. I have learned that relationships are even more important than health.

The things I am doing NOW are:

listening to your radio shows lots of exercise,  my dog gets 2 1hr walks per day in beautiful woodland exercise bike stretches and balancing listening to guided meditations really clean healthy diet lots and lots of water singing class nintendo wi writing out and reading poetry aloud eft feldenkrais recording my progress and activities and goals. my writing is loads better already hot and cold showering every day. The EFT Deft is HUGE for me.

I am not the person I was before my symptoms came along. The changes are quite staggering that actually I am a bit overwhelmed and confused. It has helped uncover something of the pay- off I get from having my symptoms – a mega breakthrough.

I found your site, actually the radio downloads on itunes 5 weeks ago and have improved so much already ( from really quite a bad place as the drugs were beginning not to work. They work well now. I have only stared eft in the last week

I was doing something of the above list before but now I have designed myself a programme which is a little bit strict and a little bit flexible. I have decided to stick to working with  this before I look at supplements and more complex things. I want to give my body some time on the basics  – good food, fresh air, mental stimulation, relaxation, fun etc. I have realized how sensitive I am at last. And I forgot to mention I have started detoxing  my environment – so far I have junked all my toiletries for natural ones, and only have about 1/8 what I had before! Now I am working through the cleaning stuff. It feels so good.

I am 55 years young, have a great husband who doesn’t give me too much sympathy and does his own thing, yet is fantastically caring and I have 2 fantastic sons aged  24 and  27. I have a brother who I would do anything for and a sister that I value  and love though I don’t have the same rapport with her.

I have just joined your membership pages today to continue my parkinsons recovery and it is great to get your emails. Encouragement is fab.

The crucial thing you have given me is the knowledge  PEOPLE GET BETTER. Now I know that I am on my way.

With heartfelt thanks

Fiona

Heavy Metal Chelation

I heard the interview with Dr. Hickey. Very impressive. Some of the health care practitioners I have worked with specifically to rid my system of heavy metals all shy away from intravenous chelation. I have used various highly touted products. The process is very slow and I am not sure that they are strong enough to pull the metals out of the deep tissue including the bones. In your opinion from all of your interviews and readings is intravenous chelation the most effective, the quickest way to get rid of metals in all body tissues including the central nervous system? My patience is at a low point.

Thank you for all you do.  

Kevin

Response:

I have the same problem with impatience Kevin. Can’t this release of heavy metals happen now? Unfortunately,  the true answer is that it is likely to take time and patience.

Chelation simply means to claw out the heavy metals from the tissues and bones of your body. You put in your  body something that has a positive charge. This attaches to the heavy metal which has a negative charge. The  heavy metal toxin is eliminated through your liver, kidneys and bowels.

I have heard from a number of people on their experience with chelation therapy. Some report positive results. Others report that the treatment was horrendous. It triggered a worsening of symptoms. I understand that most doctors (whether MDs or naturopaths) are very cautious in the chelations they prescribe for people who currently experience the symptoms of Parkinsons for this reason. This explains your own doctor’s hesitancy to use IV chelations.

I understand it is helpful to assess precisely what heavy metals are at issue in your body. Different chelating  agents are needed depending on the metals that are at issue. I would suggest that you work with your doctors to assess which heavy metals in particular are problematic for you. As you now know from listening to my radio show with Dr. Hickey, there are serious issues with the current medical tests used to assess the presence of heavy metals.

I personally think the diagnostic tests that are most revealing are bioenergetic testing, hair analysis and  voice profiling. I have interviewed experts who discuss the benefits and outcomes of all three diagnostic approaches.

Naturopath doctor Ivy Faber from Canton, Georgia has been a guest on my radio show who uses bioenergetic testing. She has done those tests on myself. They are really quite amazing. Compounding Pharmacist Randy Mentzer from Olympia, Washington discussed hair analysis for heavy metal testing during my radio show with him. Sharry Edwards has been a guest on my show several times. She diagnoses heavy metal toxicity using voice profiling.

In summary, if this were me, I would step back and go through a series of diagnostics using several assessments that are different than the tests that you have already had done as a reliability check. Once you know what you are dealing with, a chelation approach can be designed that will be effective. It may still take time and patience!

In summary – it is a process which can be slow, tedious and frustrating. In my personal opinion, everyone in a body should be chelating the toxins using one approach or another.

Hang in there. There are many approaches to detox. Some actually makes things worse. When you land on the chelation approach that works for your body, I predict you will be very pleased with the outcome.

Robert Rodgers, Ph.D.
Road to Recovery from Parkisnsons Disease
www.parkisonsdisease.me

Parkinsons Disease Treatment Options

Angela Wensley was a guest on my radio show on October 28, 2010. You can listen to the show by visiting http://www.blogtalkradio.com/parkinsons-recovery.  Angela wrote a thorough update describing the treatment options she has pursued. Her update is posted below. Robert Rodgers, Ph.D.

This update is intended not only for my friends and family, but also for people who have been diagnosed with Parkinson’s disease (PD). Please feel free to pass this on to anyone that you may know who has a diagnosis of PD as they may find some of the information helpful. I was diagnosed with the symptoms of PD in May 2007, over 3 1/2 years ago at age 59. At the time of diagnosis, I was informed that not only was the cause unknown (“idiopathic”), but also that it was irreversible and progressive. Initially, I questioned the diagnosis but any doubts were resolved when I traveled to Los Angeles in September 2007 for a PET scan that confirmed (in medical-speak) that there was: moderately decreased dopamine accumulation into the posterior putamen on the left side of my brain, consistent with PD. Since then, I have come to accept the diagnosis as my symptoms have become rather “classic”. In particular, I have tremours in my right hand and these have become increasingly worse as the years have progressed.

The progression of my PD symptoms has not been linear, but instead I experience it in waves with definite peaks and valleys. The symptoms can be pronounced for a number of days interspaced by days of calm where I am almost symptom-free. Over time, however, the general trend has been a gradual progression downward (probably corresponding to dopamine depletion in the part of my brain responsible for motor activities) with the valleys becoming more savage and the peaks becoming shorter. In addition, there can be variations in my tremours during the day. When I am relaxed, I have no tremours. When under stress, or excitement, or cold, the tremours become more pronounced.

The worst situation is “White Coat Syndrome” whenever I visit a medical doctor or a neurologist. On those occasions, my tremours are effectively out of control. Other PD symptoms such as impaired arm swing, problems with gait, problems with balance, and constipation are so far in the mild category. Besides tremour, the other most bothersome PD symptom for me has been “micrographia.” As I can no longer move the fingers on my right hand, my ability to write has decreased to the point where I have ceased keeping a daily journal, something that I had been doing since the 1980s. Also, typing has become difficult and slow. Luckily, Dragon voice-activated software has come to my rescue and I now dictate most of my communications (such as this update).

I plot the progression of my PD every three months using the Parkinson’s Disease Rating Scale (PDRS) from 0 to 100 on the website www.PatientsLikeMe.com where my patient name is “Dawn Angel”. My current rating is 7. It has been as high as 14. My human tendency is to self-evaluate when I’m feeling good so it is possible that my PDRS is higher at some times.

So far, I have avoided taking any of the Parkinson’s medications (with a brief exception of one month after I was first diagnosed when I took Mirapex, a dopamine agonist that for me had dreadful side effects). To me, the PD medications are a last resort. Since they will only provide a certain number of years of effectiveness it seems reasonable to forestall taking them until it is absolutely necessary, that is, when having the symptoms is no longer preferable to the side effects of the meds. I have been able to work for three years post diagnosis but I’m at the point where it may not be possible to continue working as a freelance consulting engineer. I haven’t had any jobs since June 2010, so it is difficult to say if it is time for me to retire.

RESOURCES

I am fortunate to have two outstanding neurologists on my side, Andrew Wolfenden and Jon Stoessl, although I only see them once a year. Stoessl is the director of the Pacific Parkinson’s Research Centre. I see him at the Movement Disorders Clinic at the University of British Columbia in Vancouver. With Western medicine offering only drugs that mask the symptoms of PD and unable to otherwise treat the condition, it is inevitable that a person diagnosed with PD will seek out alternative forms of medicine. My naturopath Caleb Ng

www.mountainviewwellnesscentre.ca/

is a valuable part of my team. Ideally, a person diagnosed with PD should have a team of practitioners, including at least one neurologist, their GP, a naturopath, a physiotherapist, an herbalist, a massage therapist, a personal trainer, a psychotherapist, and others. The reality, however, is that no “team” really exists. My personal trainer may know my chiropractor, and my naturopath may have met my neurologist, but this is not team behaviour. The cold truth is that each patient is pretty well left to their own devices. So one must be proactive and become better informed, often more so then their practitioners. We are the keepers of the complete story.

There are many very good publications on PD available in book form. Some that I have found to be exceptional are:

1. Jill Marjama-Lyons and Mary J. Shomon, “What Your Doctor May Not Tell You About Parkinson’s Disease,” Warner Books (2003).

2. Gretchen Garie, Michael J. Church, and Winnifred Conkling, “Living Well With Parkinson’s Disease,” Collins (2007).

3. David A. Grimes, “Parkinson’s: Everything You Need to Know,” Firefly Books (2004).

4. Geoffrey Leader and Lucille Leader, “Parkinson’s Disease: Reducing Symptoms with Nutrition and Drugs,” Denor Press (2009).

5. Laurie K. Mischley, “Natural Therapies for Parkinson’s Disease,” Coffeetown Press (2010).

6. Abraham Lieberman, “100 Questions and Answers about Parkinson’s Disease,” Jones and Bartlett (2003).

7. David H. Anderson, “How to Tame Parkinson’s by Keeping Fit,” Authorhouse (2005).

8. John Ball, “Living Well, Running Hard,” Authorhouse (2005).

9. Arthur W. Curren, “Dumb Bells and Dopamine,” Authorhouse (2006).

Downloadable books from the Internet include:

1. John C. Coleman, “Stop Parkin’ and Start Livin’: Reversing the Symptoms of Parkinson’s Disease,” available for a fee from www.returntostillness.com.au

2. Robert Rodgers, “Road to Recovery from Parkinson’s Disease,” available for a fee from www.parkinsonsdisease.me

3. Janice Walton-Hadlock, “Recovering from Parkinson’s Disease: Understanding its Cause and Mastering and Effective Treatment,” available for free from www.pdrecovery.org/ (I do not necessarily endorse the concepts or opinions of the author but found it a compelling and worthwhile read; too bad she won’t converse with anyone that has been on PD meds such as Mirapex for a month!)

There are almost unlimited resources available on the Internet. By far the best PD website is www.PatientsLikeMe.com that has over 5000 members with PD.

My “Dawn Angel” profile there has been browsed over 7000 times at the time of writing this update.

PD PREVENTATIVE MEASURES

The various measures I have taken in my attempts to slow the progression of PD are listed below in approximate order of effectiveness (my perception). The regimen I am on is constantly changing but the overall goal remains the same: to feel as good as I can.

1. Exercise.

2. Physiotherapy

3. Neuroprotective supplements

3. Diet

4. Chelation

5. Brain therapies

Exercise

The initial diagnosis of PD scared me so much that I decided I had to get into the best possible physical shape to be able to combat the progression of PD. I also engaged a personal trainer, Julie Beenham, to keep me honest. I have seen Julie since June 2007 and would consider our sessions the single most effective measure I have taken against my PD. Within a few months, I had dropped over 40 pounds through a regimen that included running every morning for 5 miles (running for my life) plus extensive workouts in the gym in the afternoon in addition to my sessions with Julie. While my initial reasoning was correct in terms of my being better prepared to withstand the ravages of the disease, I have since found out that intense physical exercise can also have neuroprotective benefits. All the more reason to keep it up. I counsel other people with PD to start exercising and keep at it even when they don’t feel like it.

My exercise regimen has varied significantly over the years, particularly with the seasons, but exercise still remains the most effective method I have found for relief from the symptoms of PD. I have also had to accommodate changes to my body thanks to Mr. Parkinson. For example, I have nearly-constant pain in my right hip that now prevents me from running or from using certain equipment in the gym. When I find I can no longer do one thing (use an elliptical training machine) I do whatever I can to keep that it. A “toe crest” helped keep the toes on my right foot from curling under; I still use toe sleeves to prevent the formation of corns. When these measures weren’t enough I found something else that I could use: a stationary bicycle. I will continue with this practical approach as long as I am able. Whenever possible, I indulge in two of my favourite sports, tennis and kickboxing. Not bad for someone who’s 63 years old!

Gym

Currently, my gym workouts consist of roughly 30 minutes of cardio, 30 minutes of weight training, and 30 minutes of stretching. As mentioned above, the cardio originally was done on an elliptical machine but now I use an upright bicycle. Weights involved a number of machines but also free weights (dumbbells). I have found that stretching is an important component of any exercise regimen and worth the time taken for it.

Personal trainer

I see my personal trainer Julie twice a week for one hour each time. In our ever varying routine, she has me attempt a number of balance exercises. I can balance on my left leg very well but balance on my right leg is problematic. Standing on a wobble board is possible but is becoming an increasing challenge for me. We do part of each session with my eyes closed which seems to be helpful. Each session ends with stretching, the best part!

Tennis

I had given up playing tennis in 2005 after a rotator cuff injury made it impossible for me to raise my right arm (I am right-handed) out to the side and overhead. Little did I know that a “frozen shoulder” is often a sign of PD. In 2008, on the advice of a friend who had seen an amputee play tennis again after switching to his left arm, I resumed playing tennis as a lefty. When my right arm finally came around in 2009, I morphed into an ambidextrous player with both right and left handed forehands. We bought a condo in a tennis community in Delray Beach, Florida that we visit twice a year for a month each time and were I can indulge my tennis habit. Back home in the relatively cold Northwest I see a tennis coach on a weekly basis and play indoors during the winter.

When I play tennis, my PD symptoms also take a vacation although videos show that I am clearly compensating for any impaired movement. Nonetheless, my footwork is good as is my ability to run and make shots from either side of the court. Why this is so is not really clear to me. Perhaps doing something that one really loves is conducive to generating dopamine, the neurotransmitter in short supply in the brains of people with PD. I suspect that it has something to do with the repetitive nature of the game and the delightful sense of vibration when the ball is well struck. For this reason, I prefer “tennis therapy” with a coach feeding me shots, to actually playing a game. I have noticed that on those rare occasions where I summon up extra energy through adrenaline (which consumes dopamine) I pay for it later in terms of a short-lived exacerbation of my PD symptoms. The trick is to learn how to stay relaxed while playing the game.

Kickboxing

It was Julie my personal trainer who introduced me to kickboxing. The kickboxing I do is not in the ring (!) but rather with a partner holding pads or in a gym with a kickboxing circuit. In the summer I am able to set up a punching bag outdoors in the carport but most of the time I now go to “30 Minute Hit”, a local kickboxing circuit. There is something about the contact and the vibrations from the punches that help calm the symptoms of PD. Besides, it just feels good to hit someone! There is clearly some adrenaline production involved with kickboxing as my tremours are usually set off for several minutes after I complete the circuit.

Physiotherapy

Since my diagnosis with PD, I have seen a number of physiotherapists. I am relatively good at following orders and did whatever exercises they recommended, with satisfactory outcomes. Initially, my focus was to regain the use of my right arm. More recently, I have been addressing the progressive effects of PD on my body.

Prolotherapy

As mentioned above, I had given up playing tennis in 2005 after a rotator cuff injury. After my diagnosis with PD in 2007, I worked very hard on regaining the function of my right shoulder. I underwent two months of prolotherapy from a naturopath where dextrose was injected into my tendons (hurt like hell) to promote improved blood supply and healing. In this regard, the prolotherapy was very effective, although I still had to follow up with more than a year of intense physiotherapy. There is still some residual pain in my right shoulder and a tendency for the femur to sit outside of its socket, but for all intents and purposes I have regained a full range of motion. I continue to receive physiotherapy on my right shoulder.

Intramuscular stimulation

In 2009, I began to see Dan Sivertson, a physiotherapist who practices “Intramuscular Stimulation” (IMS), a therapy developed in Vancouver BCwww.istop.org/. IMS is a form of “scientific acupuncture” where the needles are inserted into the problem area such as tight or shortened muscles, without application of electric current (I have little time for non-scientific or traditional acupuncture that relies on mythical meridians to determine where the needles should be placed.). The results of IMS have been amazing and muscles that I thought had been irrevocably tightened have loosened up. There has also been a significant reduction in pain, especially in my right hip. IMS must be considered as part of a complete physiotherapy package that includes myofascial release and massage.

Currently, Dan and I are working on improving my posture. One of the progressive features of PD is the gradual tightening of muscles that progressively cause a stooped posture. With weekly sessions of physiotherapy and daily posture exercises we are keeping the ravages of PD to a minimum at least as they affect my posture and mobility.

Chiropractic

While some people regard chiropractic as a pseudoscience, my experience has been that it is very effective for treating lower back pain. I have had lower back pain for at least 30 years, well before my diagnosis with PD. Whenever I put my back “out” I see a chiropractor as soon as possible and usually a few adjustments set me right. In the past, I used to go for physiotherapy and it took over a month to get any benefit. Chiropractic is faster and more effective than physiotherapy for relief of lower back pain, in my opinion. In addition to chiropractic, exercises to strengthen my “core” help me to recover quickly from recurring back injuries.

Myofascial release

Deep tissue massage is another form of physiotherapy that I have found to be beneficial for PD. In 2010, I had a package of 10 sessions of Hellerwork. Over a couple of months, my Hellerworker Melissa Patton accessed and massaged all accessible fascia of my body. Despite the intensity of the bodywork, the sessions were soothing and felt heavenly.

Air splint

I am currently experimenting with an inflatable splint of the kind used for retraining of stroke patients by immobilizing spastic limbs. The splint is used to straighten my right arm and eliminate the crook in the elbow. I use it three times a day for 10 minutes at a time. It feels good to have my arm straightened.

Minimal contact therapies

There are a couple of therapies that have reportedly had good effect on people with PD. One of these is Bowen Therapy. I have had several sessions of Bowen and found them very relaxing but did not experience any lasting effects. I did, however, find that osteopathy was effective. I have seen in osteopath in New Zealand on a few occasions when I was working there and found his techniques to be effective in reducing lower back pain as well as being very relaxing. If there was a local osteopath, he or she would be in my “team” of caregivers.

Neuroprotective supplements

Neuroprotective supplements are also referred to as “anti-aging” supplements or “mitochondrial enhancing agents” and are taken in addition to the conventional antioxidants (such as vitamin C, beta carotene, vitamin E, and selenium). Most of these supplements are taken orally; the very powerful antioxidant glutathione must be taken intravenously. While I am normally very skeptical of practices that come across as pseudoscience, I can appreciate the rationale for taking supplements that could protect the brain.

The first neuroprotective supplement I began taking (in 2007) was co-enzyme Q-10 after I read that a small clinical trial had revealed that it slowed the progression of PD. Subsequent, larger, studies have not found any beneficial effect on PD but I was willing to go with at least the chance of a good result. I have since learned that the ubiquinol form of co-enzyme Q-10 is superior to (and more expensive) the ubiquinone form.

In 2008, I chanced upon “The Better Brain Book” by neurologist David Perlmutter http://renegadeneurologist.com. The book contains a chapter on maintaining brain function using antioxidants and other compounds that facilitate the functioning of existing neurotransmitters. The protocol recommended by Perlmutter for PD patients is more extensive than that recommended for normal people who simply wish to improve their brain function.

I am currently taking the following neuroprotective supplements:

– Alpha lipoic acid* (time-release) 1200 mg per day.

– N-acetyl cysteine* 600 mg per day.

– Phosphatidylcholine 420 mg per day.

– Phosphatidylserine* 100 mg per day.

– Acetyl l-carnitine* 500 mg per day.

– Co-enzyme Q-10* (ubiquinol) 600 mg per day.

– NADH 5 mg per day.

– DHA + EPA (omega-3*) 660 mg +330 mg two times per day.

– Glutathione* (intravenous) 2500 mg per week.

* Recommended by David Perlmutter.

The glutathione IVs are administered by my ND, Caleb Ng. The protocol is that recommended by David Perlmutter. By the way, there is a video with David Perlmutter showing the near-miraculous effects of glutathione injections on people with PD http://www.glutathioneexperts.com/benefits-glutathione.html that to me seems to be a startling example of the “placebo effect.” I have never experienced anything even remotely resembling the improvement rapidly shown by the people in the video but again, my PD symptoms are not as advanced as those shown in the video. If glutathione has any effect on my symptoms, I believe that glutathione has produced a small (1-2) decrease in my PDRS.

In addition to the special mitochondrial enhancing supplements, I take vitamin C in both in time-release form and also as mixed ascorbates (total 4800 mg vitamin C per day), vitamin D drops (4000 IU per day), selenium drops (260 mcg per day), and zinc drops (30 mg per day) and others. I have my blood work checked regularly and have near-ideal results (all parameters within reference ranges). For years my cholesterol was chronically high and required meds for regulation; now it is excellent (high HDL and low LDL) without meds. Also, I used to be on meds for high blood pressure; now my blood pressure is close to ideal (typically 110/65) and I no longer take meds.

Although it is difficult to say whether all of these supplements are having any effect on my PD, I figure that at least I am extending my life!

Diet

The first alteration to my diet was to eat mostly organic foods to minimize the amount of pesticides that I was incidentally ingesting. Pesticides have been implicated with PD in some cases so I was not about to take the chance that my PD was unrelated to pesticides. I also began eating more fish and less red meat. In 2009, I heard about Donnie Yance, an herbalist in Ashland, Oregon, who had a protocol for treating patients with PD. I read his paper, “Parkinson’s Disease and the Use of Botanical and Nutritional Compounds” and was impressed withhis knowledge. In July, 2009, I traveled to Ashland and saw one of his associates, Jason Miller who has become my herbalist.

Botanicals

Jason provides me with a number of proprietary botanical formulations marketed under the Natura brand from the Centre for Natural Healing in Ashland, Oregon www.centrehealing.com. These contain botanicals that have been known to have a beneficial effect on PD, including:

– Mucuna pruriens (a natural source of levodopa)

– Hyoscyamus niger (henbane)

– Withania somnifera (Ashwagandha)

– Turmeric

– Green tea extract

– Piper methysticum (kava kava)

– Panax ginseng

– Bacopa monniera

– Scutellaria lateriflora (skullcap)

Of these botanicals, the first two on the list are perhaps the most potent. Mucuna pruriens is a natural source of levodopa and has been found to be more effective than synthetic levodopa in clinical trials. I have experimented with not taking the Mucuna and not noticed any difference, although perhaps I am not yet at the stage of my PD were levodopa is necessary. I am currently in a trial of titrating in with Hyoscyamus niger that is supposed to be effective against the tremours of Parkinson’s. So far, at 30 drops a day of a 1:10 tincture, it seems to have appreciably mitigated my tremours but it is too early to confirm it as effective at this time. Any beneficial effect is overwhelmed if stress rears its ugly head. Stress trumps hyoscyamus every time in the tremour department.

In addition to the above botanicals I also use products such as Natura “Beyond Whey” and “NanoGreens” that, amongst a host of other ingredients including frozen blueberries, make up a morning smoothie that I make every day. The Centre for Natural Healing also prepares a custom “tonic for me that I take twice a day. The tonic contains ginkgo, gotu kola, milk thistle, orange peel, kava kava, liquorice, skullcap, and other botanicals.

Gluten-free, dairy-free, and sugar-free diet

In 2009, I traveled to Melbourne Australia where I met John Coleman, a naturopath who has recovered from PD. Of course, I was very interested in doing whatever he did to recover. Amongst his recommendations was a change in diet to gluten-free, dairy-free, sugar-free (and others). I saw John again in 2010 and he said that I was doing well and to stay the course. He said the last of his symptoms to go was the tremour. This gives me some heart as tremour is the most bothersome of my symptoms.

In their book, “Parkinson’s Disease: Reducing Symptoms with Nutrition and Drugs,” Geoffrey and Lucille Leader advocate a gluten-free and dairy-free diet for people with PD. I am not lactose-intolerant nor do I have a gluten intolerance (this has been confirmed by genetic testing with www.23andMe.com) but their reasoning is compelling. It is possible that people with neurological disorders such as PD are much more sensitive to lactose and gluten than are people without those disorders. Luckily for me, we live in an age where it is possible to btain gluten-free and dairy-free foods readily. My favourite gluten-free bread is “Udi” available from Whole Foods in the US (but alas not in Canada). I substitute almond milk for regular milk. Dining out can be a problem; however, I travel a lot in my work and have found that the chefs in hotel and other restaurants are more than willing to meet my dietary requirements.

Adrenal support

In early 2010 I had a saliva test to determine my free cortisol rhythm. Samples were taken at 8 AM, noon, 5 PM, and at midnight. My cortisol levels for morning, noon, and afternoon where all markedly depressed (only the midnight sample was normal), indicating (according to the report) marginal HPA (hypothalamuspituitary-adrenal) performance. I purchased an excellent book, “Adrenal Fatigue,” by James Wilson that help to explain the significance of my results. Low cortisol, or hypoadrenia, is normally characterized by fatigue, difficulty rising in the morning, a desire for caffeine, feeling run down and stressed, etc. Other than perhaps a desire for a daily cup of coffee, I have none of these symptoms. Indeed, I seldom experience fatigue and still consider myself as a high-energy person. Yet, people with hypoadrenia have a reduced ability to cope with stress. Interestingly, people with PD report that their symptoms are aggravated in times of stress. There has to be some sort of connection between the symptoms of PD and impairment of HPA performance, but so far discussions with my neurologist and endocrinologist have not revealed any knowledge by them of any connection.

The danger is that people with hypoadrenia are on the borderline of having adrenal fatigue (no cortisol). When cortisol reserves are too low, and a stressful situation occurs, one may not be able to produce enough cortisol to handle it. Adrenal fatigue has been responsible for high-performing individuals “crashing” and becoming effectively bedridden for months or years, too fatigued to do anything. Not wishing to come down with adrenal fatigue, I have begun taking an adrenal support botanical supplement (“Restorative Formulations Adrenal Px LOPB”) and have also tried adrenal cortex extract (“Adrenal Stress End”).

Hydration

I have tried the Aquas formulas available from John Coleman in Australia. These homeopathic remedies are supposed to enhance cellular hydration. I have a problem with homeopathy. If an infinitely diluted amount is good for me, then not taking it all should even be better! Yet, John Coleman swears by the Aquas and he has recovered from PD, so there may be something to it.

Red wine

Geoffrey and Lucille Leader recommend elimination of alcohol from the diet. John Coleman, sensible man that he is, recommends 1 to 2 glasses of vintage red wine a day. I am on John’s side. Drinking fine red wine has been a passion of mine since the 1970s and one that I am loath to give up especially since I have a wine cellar containing approximately 2000 bottles! Of course a big part of the enjoyment of red wine is the bouquet. Reportedly, loss of the olfactory sense is a common complaint in people with PD and is liable to occur early in the progression of the disease. I noticed no such impairment (and can still guess in a blind tasting that a bottle of Bordeaux is a fine old Burgundy!). For now, I enjoy each bottle of fine wine as if it were my last. To me, joy = dopamine. Also, there must be some benefit from the resveratrol!

Constipation

As PD also affects the autonomous nervous system, constipation can be a severe problem. Since my diagnosis with PD I have had some problems in this regard especially when I travel over multiple time zones and upset my daily rhythms. Currently, I have it under control with the simple addition of one or two rehydrated prunes to my morning smoothie plus a level teaspoon of organic psyllium fibre. These seem to be enough to keep me regular.

Hedonism

I stayed strictly on my gluten-free and dairy-free diet for over a year, but recently had the opportunity to travel to France for a combination of business and pleasure. I temporarily abandoned my diet and indulged myself for a full week in French gastronomy, eating foie gras, croissants, baguettes, rich cheeses, and just about everything else that the French are famous for. The consequence was that I had not felt better in over three years! Now, I am not so strict about my diet and allow myself the occasional indulgence.

Chelation

In 2008, a urine test for heavy metals revealed excessive concentrations of lead and mercury and other metals such as manganese. I have been undergoing chelation off and on since then and currently receive one treatment per week from my ND Caleb Ng. The treatments involve a small IV of EDTA solution. For any benefits to be realized, numerous treatments are necessary. Heavy metal poisoning (especially manganese) has been implicated in PD and welders are one profession that is at higher risk for PD. Since I spent many years working closely with welders and breathing welding fumes, I have no doubt ingested my fair share of iron, manganese and other metals. Interestingly, a CT scan of my brain failed to reveal any abnormal concentration of manganese. Note: the claimed benefits of chelation for PD have yet to be established through rigorous clinical trials.

Brain therapies

This section covers a number of therapies that may be useful for maintaining mental functioning and postponing the dementia that may occur as PD progresses.

Positive attitude

It is difficult to remain positive when confronted with a disease of no known cause and inevitable progression, yet this is precisely what must be done. Depression is one of the predominant symptoms of PD. If necessary, it may be necessary to take an antidepressant. One that has been recommended to me is duloxetine.

Body-mind psychotherapy

For several years in the 1990s, I had training in Hakomi body-mind psychotherapy arising out of the deep desire to know myself. I still keep in touch with my teacher, Ron Kurtz http://hakomi.com/. I regularly see a therapist,Mahmud Nestman, a Sufi who is familiar with the methods of Hakomi. In our explorations one useful technique is called “taking over”. In one session I had Mahmud take over (literally, with his hand) a tightness I felt around my heart.

When he did so, I was able to go in deeper into my own unconscious and to gain some valuable insights as to why the tightness was there in the first place. I have invariably noticed that during our sessions my tremours at first become almost uncontrollable but then they disappear, leaving me in a most serene and quiet and still place. Stillness is priceless.

The science of happiness

For several years I was an active member of the Ken Keyes community based in Coos Bay, Oregon. Ken was the author of the “Handbook to Higher Consciousness,” “The Power of Unconditional Love,” and many other books. For a number of years, I taught “Living Love” workshops in the US, Canada, and New Zealand. These teachings have served me well, particularly now that I have the symptoms of PD. I take responsibility for my own feelings. Nothing or nobody has ever made me upset are unhappy: I do it to myself. This is good news as the only person I am capable of changing is myself.

Neurofeedback

I have had six sessions of neurofeedback, also referred to as biofeedback from Mike de Jong, a PhD psychologist. During the first session and EEG was done to determine those parts of my brain that had abnormal brainwave patterns. Mike determined that my dorsolateral prefrontal cortex was deficient in theta wave output. Subsequent sessions (one hour each) involved application of a single electrode at the position on my head corresponding to the dorsolateral prefrontal cortex. I was provided with headphones to listen to the sound of surf while my eyes were closed. Whenever my brain produced Theta waves I could hear the surf; when no theta waves were being produced all I heard was static. At first, I struggled to hear the surf, but later just let my brain do all the work of figuring it out. After six sessions, some progress is being made. If I didn’t think there was some benefit to this I wouldn’t continue. Typically, it takes 20 sessions to realize any permanent benefit, so I have some time to go.

Meditation/relaxation

For many years, I was an adept meditator and meditation was the most important part of my day. Since my diagnosis with PD, however, I have found it very difficult to get into a meditative state. Sitting cross-legged is agonizing. Instead of stillness, I have tremours. By re-casting meditation as relaxation, I can derive some of the benefits, primarily reduction in tremours and tension. I have found that electro-cranial stimulation (see below) is a good substitute for meditation.

Electrio-cranial stimulation

In electro-cranial stimulation, a small electric current is passed through electrodes attached to my earlobes that produces a mild tingling sensation. Sessions are either 20 minutes or 60 minutes and are very relaxing, almost to the point of putting me to sleep. Tremours also appear to take a nap.

Neurocognitive screening

In 2010, I participated in a neuropsychological screening evaluation at the Movement Disorders Clinic at the University of British Columbia. These tests revealed that my cognitive functioning was “broadly average to superior” depending on which test was being administered. I take this as a sign that I have experienced some cognitive impairment as I would have expected all the tests to result in a “superior” rating!

Defiance

If I had one final piece of advice for anyone who has been diagnosed with PD, it is to defy it. If it is a fight that Mr. Parkinson wants, it is a fight that he will get. The worst thing one can do is to deny it. As long as one remains in a state of denial, the PD will continue to progress. But as soon as you turn to face your tormentor and fight back, the PD will lose its grip over you. Mr. Parkinson may win in the long run but it will be a protracted fight and you will win many of the rounds. And, who knows, you may just beat him!

Afterward I hesitate to call this section “Conclusions” as my protocol is very much a work in progress, and the effectiveness of many of the measures has not yet been verified. I do not have time to wait for the development of a “cure” from conventional Western medicine. I will be dead long before any such treatment has passed through all the hoops and clinical trials necessary for its approval.

Currently, the treatment of last resort for PD is Deep Brain Stimulation (DBS) but it is only done when a PD patient is essentially incapacitated with an advanced form of the disease. How humiliating! For people with tremour-dominant PD the option is thalamic surgery, either in the form of thalamic DBS or thalamotomy. Canada’s medical system is unable to cope with the (growing) numbers of PD patients, so in the meantime I will do everything I can to prevent the progression of my PD to the point where surgery is even an option.

I am doing the best that I can to not be a burden on the medical system. What I am doing is also expensive. Canada’s medical system pays for my neurologist visits and little else. The PET scan, physiotherapy visits, naturopath visits, botanicals, and supplements are not covered. Yet if there was ever a time to start spending what I have saved, it is now. I would rather have quality of life than a fat bank account anyway. I’m currently working my way through my “bucket list” and having the time of my life.

Angela Wensley

Liver and Kidney Detoxes

Question:

Can Parkinson’s be caused by problems in either kidney or liver?  If so, would detoxification of these organs help relieve tremors?

Gino

Response:

Research has shown that many of the symptoms associated with a diagnosis of Parkinsons Disease – and there are many – can be caused by toxins. The kidneys and liver get clogged up with a residue of toxins that create a formidable bottleneck in the elimination system. New toxins that enter the body have no where to go other than hide away inside the cells. Cells are a nice place to hang out.

My answer to your question is yes. Detoxes for everyone – those with a diagnosis of Parkinsons and those without – are a critical component of health and wellness. Think of detoxing your kidneys and liver to be the same chore as brushing your teeth. Both are necessary. Both need to be done on a regular basis.

Will a liver-kidney detox relieve tremors? The answer depends on whether you are also able to release the stress and trauma that may be trapped at the cellular level of your body. Toxins are impossible to release as long as trauma resides within the structural membrane of the cells.

Robert Rodgers, Ph.D.
Parkinsons Recovery

Books
Road to Recovery from Parkinsons Disease
Pioneers of Recovery
Five Steps to Recovery

Resources
Vibration Therapy
Dehydration Therapy: Aquas
Parkinsons Recovery Membership
Parkinsons Recovery Chat Room
Eye Drops for Cataracts
Symptom Tracker
Parkinson’s Disease News

A Cure for Parkinson’s at the Forefront?

Question:

I have a question regarding the symptoms of Parkinson’s disease.

A close relative of mine is suffering from what it appears to be a symptom of Parkinson’s.  She is at the initial stages right now. E.G:

– resting tremors
– tremors get slightly worst in mid air (whether or not she’s holding onto something)

She is exercising regularly now which is a definitely a good thing, however, I have noticed that when she does alot of housework or work in general the tremors would get slightly worst…is that a regular symptom of Parkinson’s?

At this point, she is going to be taking the anti-tremor pills prescribed by the doctor which hopefully will reduce or eliminate the tremor for the time being.

She is also not quite receptive to the idea of having to change the hygienic needs (e.g. shampoo, soap etc) to the herbal ones as was suggested in the e-book.

Are there any other suggestions you can provide aside from drinking 8 cups of water a day and more exercise to reduce the tremors?  Acupuncture at this point did not seem to help very much…We haven’t tried massage or Bowen Therapy nor have we tried the Aqua therapy (simply coz we don’t know much about it)

Do you know whether there is a cure for the disease with the invention of a new pill at the forefront?

Any suggestions or feedback would be appreciated.

Response:

You ask whether doing a lot of housework or work in general are regular symptoms of Parkinson’s? It is not the housework in itself or work in particular that fuels the symptoms. The issue turns primarily on the presence or absence of stress. When work – no matter the form – is stressful, symptoms will flare up. The more your relative can acknowledge the stress she is under and find ways to release it, less problematic will be her symptoms.

Is sounds like she has decided to medicate her symptoms. An alternative approach is to acknowledge her body is sending her a strong signal that something different needs to happen. Other symptoms will rear their ugly head if the cause of the current challenge is not addressed.

Exercise will certainly make a huge difference. Also consider doing more disciplined exercise like Tai Chi or perhaps yoga. Yes – body therapies that release stress such as craniosacral therapy and Bowen therapy have the potential to help offer her relief from her symptoms because they help her body release the stress that is trapped at the cellular level. Why not give them a trial run? With medicines you incur side effects (which may well be worth the cost). Body therapies are noninvasive and safe.

The Aquas are recommended by Naturopath Doctor John Coleman who himself is now fully recovered from the symptoms of Parkinson’s disease. Aquas are a homeopathic approach which helps reprogram the body’s mechanism to signal thirst and distribute water throughout the body which gets disabled as we age. You can discover more information at: http://www.aquas.us.

Will there be a cure for the symptoms? No, there will never be a cure because the conditions that create the symptoms are multi-faceted. Each person’s situation is entirely unique to them. That is why the symptoms vary so widely across individuals. If there were a single cause, then it might be possible to see a “cure” down the road, but there is no single factor that causes the symptoms associated with a diagnosis of Parkinson’s disease.

Trauma creates havoc with the neurological system. Stress damages neural connections. Toxins blow the neurological system up.

I note that your friend does not seem to be worried about toxins. Toxins affect everyone who is alive today. If we do not take the effects of toxins seriously, we will eventually become ill in one form or another.

Do I have a suggestion for you? Yes. Make a habit of listening to the weekly Parkinson’s Recovery radio show.
http://www.blogtalkradio.com/parkinsons-recovery. You will find at least one suggestion in every show that will – I repeat will – help your friend get relief from the symptoms she is currently experiencing. It is free to listen.

You can download any of the previous shows for free. I have aired 90 shows. Your relative  can download any of the previous shows to an MP3 player and listen while they exercise.

From my contact with hundreds and hundreds of people who currently experience the symptoms of Parkinsons I have observed the following. The people who are hoping for a cure or for someone out there to fix them are feeling worse and worse with each passing week. The people who are taking responsibility for their health and take it upon themselves to figure out what their body is telling them are feeling better week by week.

The bottom line: Take responsibility for your life and you get better. Expect someone or something to fix you and you get worse.

Robert Rodgers, Ph.D.
Parkinsons Recovery
Road to Recovery from Parkinsons Disease

Problems with Balance, Walking, Talking and Sweating

Question:

I have had Parkinson’s  since 2008. I am now taking amantrel-100 2 tab and pramipex-0.5 2 tab daily.

I still have a balance problem, a walking problem. Turning is also a problem – especially to the left, dryness in mouth, problem of pronunciation of some words while talking. excessive sweating at the left side of forehead is remarkable since 2005.  I also feel pain at neck below head backside of ears.

Kindly help,

Sibnarayan
India

Response:

You have a series of symptoms which is typical of people who are diagnosed with Parkinson’s Disease. It is likely that the cause is multi-faceted.

First, there is an Ayurvedic doctor in India, Dr. Paneri from Gujarat, who sees people with Parkinson’s exclusively and is getting remarkable results. His website is: http://www.drpaneri.com

Second, check the side effects of the drugs you are taking. It is likely some of the problems you are experiencing may be simply the side effects of the drugs. You may want to talk with your doctor about adjusting your medications.

Third, I suggest that you focus your attention on finding doctors and health care practitioners who can help you detox the toxins in your body, I am guessing that toxins are a primary cause of your symptoms. You may well have an abundance of heavy metals and pesticides that have accumulated in your body.Once they are removed your symptoms may well subside.

There are many ways to detox – just check around and find an approach that appeals to you. I have been using
zeolite personally with great success – but there are many other excellent methods that are effective as well.

You can get a wide variety of suggestions on detoxes from my new book which is described at: http://www.parkinsonsdisease.me

Know always that the body knows how to heal itself. We just have to give it a little extra loving kindness and attention sometimes.

Robert Rodgers, Ph.D.
Parkinsons Recovery

Resources
Dehydration Therapy: Aquas
Parkinsons Recovery Membership
Parkinsons Eye Problems
Vibroacoustic Therapy
Jump Start to Wellness
Parkinsons Recovery Chat Room
Symptom Tracker

Books
Road to Recovery from Parkinsons Disease
Pioneers of Recovery
Five Steps to Recovery
Meditations for Parkinsons

Heavy Metal Chelation and Parkinson’s

Cruise is coming up, isn’t it?  Wish I could have joined you, but had other obligations to pay for, one is my upcoming heavy metal chelation.

Just wanted to let you know that I have been testing for heavy metal for over 7 years now and nothing ever showed up on lab tests.  I kept having a nagging feeling that a big part of my symptoms were caused from heavy metal poisoning, but I couldn’t get anyone to prove it.

I kept searching and found a naturopathic doctor who consented to another urine test, but this time he used the chelating agent MDSA to pull the metals out of my tissues.

The results confirmed my feeling of years.  Extremely high levels of Mercury, Lead and Uranium.  He said in all of his practice, he has never seen such high levels and promptly started me on a heavy metal chelation.  I’m now on a two week regimen to support my organs from permanent damage prior to the chelation.

He said that while he can’t promise a definite correlation of symptoms and heavy metals, he does feel there is a huge relationship.  He also so that he can’t promise complete relief of symptoms after chelation and removing these heavy metals from my body, but he said he feels confident that my symptoms will improve, and my symptoms shouldn’t worsen and my body should be allowed to heal, once the mercury is gone.  He said that with my levels of metals, it may take up to a year to completely chelate.

I will keep you posted.  I just thought you might be interested in knowing my most recent finding, and possibly an option for some of your other followers.

Again, thanks for all you do and continue to do.  You are amazing!  Such a gift to humanity, not only those with a PD diagnosis.

Take care,

Melanie

Intoxication with Heavy Metal as a Possible Cause of Parkinson’s Disease

A neurologist recommended in the year 1998, that I should be medicated against my tremor, but I said no thank you to his offer, as I preferred to be better diagnosed before starting medication.

The following year my symptoms increased, as I became more rigid and my tremor got worse and I therefore was easy to persuade by a new neurologist to try anti-Parkinson medication. Shortly after, I was scanned for Parkinson’s disease and the result was compatible with the diagnosis of Parkinson’s disease in the early stage.

Anti-Parkinson medication helped to decrease the symptoms, but soon I experienced more severe symptoms. At first I thought that it was the disease becoming more severe and this was confirmed by my neurologist who told me that it was unavoidable.

After one year on medication my neurologist recommended that I stopped medication before the next consultation. This became the start of a new phase in the way I coped with my disease, as without medication, I experienced that:-

-     The medication can result in abstinences when the medication is stopped.

-     Many of the symptoms, that I thought were Parkinson’s symptoms, were in reality side effects of the medication.

Therefore I decided to accept the symptoms of the disease instead of being burdened with adverse side effects of the medication. The outcome of this choice forced me to search for factors, which had influenced my symptoms.

In the year 2001 I was tested for Heavy Metal Toxicity in a private clinic in Aarhus, Denmark by Dr. Bruce Kyle (http://www.holistic-medicine.dk) and I was diagnosed with a combined toxic overload with mercury and copper.

I was treated at Dr. Bruce Kyle’s clinic with the Chelating Agent DMPS, with Vitamin-C infusions and different kinds of antioxidants and nutritional support. At the same time I had my amalgam fillings removed and had non-toxic, non-metal composites instead. This was done by a dentist with extra education in safe removal of amalgam. I also use saunas, which help detoxification by sweating out the toxins through my skin.

After some years of undergoing detoxifying treatments, I had fewer tremors and was less rigid, but I still suffered from fatigue. Allergic reaction against metals was suspect, and I undertook a MELISA-test.  (http://www.melisa.org)

My test showed an allergic reaction against gold, nickel and cadmium and treatment protocol was removal of a dental gold crown, which was replaced with plastic.  Now, I try to avoid nickel and to eat more organic food to avoid cadmium. Luckily I have been rewarded for my efforts as my fatigue has decreased.

Today I can honestly say that testing and treatments for my chronic cumulative toxicity has been successful for revealing some of the causes of my Parkinson’s disease. However, I still have slightly high levels of copper left and in Autumn 2006 and Spring 2008 tests show that I am also burdened with lead and aluminum.

I do not dare to think about how my life would have been without detoxifying treatments!  When I look at other patients with Parkinson’s disease who are getting worse, I have even more reasons to be thankful for my health, which continues to improve as time goes on.

Where do these Heavy Metals come from?

In my case, mercury and copper were likely to have come from my amalgam fillings. Copper-amalgam contains a high percentage of copper and I had many fillings in my milk teeth. Even later in school I had many cavities, which were restored with amalgam. The dentist said that I had weak teeth.

As an adult, I have only had one cavity, so I might think that my parents were not good at helping me with tooth brushing and perhaps also the school dentist has been tempted to do fillings, which were not necessary as she was paid for the amount of pupils’ cavities that she restored.

In addition I have in my job as a veterinarian, been exposed to many thermometers, which sometimes break and where the mercury ended up in the bottom of the car. Veterinarians were not properly informed that this could constitute a health hazard at that time.

Moreover Mercury can come from vaccinations containing the preservative Thiomersal (ethyl-mercury). Mercury might also come from environmental pollution and intake of fish. Copper might come from use of copper spiral (anti contraceptive) and from drinking water and food. The Danish Agriculture Production uses 200 tons of copper yearly and this copper could be assumed to spread to the environment and end up in drinking water and food.

When a person is burdened with mercury toxicity, then the excretion of copper is decreased.

My toxicity burden with lead might perhaps come from common environmental pollution. My toxicity with aluminum probably came from years of injections with aluminum containing products against dust mite allergy.

My nutrition today contains more antioxidants (nutrients which protects the body against free radicals and oxidation), more vegetables (raw vegetables are chosen) and more fruits.
I have stopped eating unhealthy fats such as margarine, hard fats, corn oil, soy, sunflower etc. I try to eat more of the healthy fats such as fat fish (salmon), linseed, olives oil, nuts etc.

I take antioxidants as nutritional supplementation, also a multivitamin mineral pill without iron and copper, extra vitamin C and E, Lipoic acid, N-acetyl-cysteine, Echinacea, Ginkgo Biloba and Coenzyme Q10. I also use DMSA for mercury, copper and lead chelation.

Concerning the nutrition I would recommend the book by Jean Carper – “Your Miracle Brain.”

Physical activity has been an important part of my life. At the beginning of my disease I walked without swinging my right arm and I stumbled rather often. After years training trying to walk normally with swinging my right arm, I have succeeded, but only when I am not too stressed or exhausted. The principle is like this, if I can walk one step with swinging the arm, then I can also walk 3 steps….. or also walk 5 minutes…or 5 kilometres and so on.

I also use visualization when training my movements.

People, who do not realize the effects that Parkinson’s disease has on their own body, often have problems understanding how demanding it is for a Parkinson patient to cope with conscious movements. Even something as banal as cleaning your shoes on a doormat is not necessarily functioning automatically but needs mental work, like steering a toy car with a joystick.

It is very common that a Parkinson patient with time develops a forward bending posture and some years ago I had thoracic Kyphosis and could not wear any of my shirts anymore. A physiotherapist has taught me some physical exercises, which I since have done every day.

Today my back is straight again, which makes me happy. People, who are happy, often have a straight posture, while sad and grieving people often have a crooked posture. By choosing body posture you can also indirectly choose your emotions.

I enjoy sending a signal that I am bubbling with joys of life.

I try to avoid, if possible, all kind of stress. Now I choose calm classical music instead of rock; I value tight relationships instead of having a circle of acquaintances with ‘small talk’ and I love being out in nature instead of taking city walks. It is a pleasure for me to do meditation and to sing.

I have also improved at listening to the signals from my body and I take care to rest and sleep when needed.  I have also improved at learning to avoid doing things, which I dislike and instead I do things that make me happy.

When being diagnosed with a chronic disease the patient often goes through a life crisis and so did I. The crises made me more religious and I learned to pray to my God from the bottom of my heart – this has given me spiritual power to cope with life and the new circumstances.

‘Where there is willpower, there is a way to go.’ This phrase was said about me by a good friend, as a way to express how I cope with my disease.

Years ago the neurologists said several times that I had got Parkinson’s disease and that this disease is chronic, impossible to cure and progressive. I thought that it might be like this for other patients, but that it would not be like this in my case. By working and studying a lot and sometimes by choosing blind paths, I have succeeded in finding a tiny little path out of my disease. Today I have fewer symptoms than in the year 1998, which means that the expression ‘progressive’ cannot be used generally about all patients with Parkinson’s disease.

I retired in the year 2001 when I was 44 years old and although it was really a hard time, today I feel that I have a good life. To my co-patients I will say:-  “Search for knowledge and keep on trying to search for new possibilities.”

Generally I recommend neurological patients to be tested with a chelating agent for chronic toxicity with heavy metals. If this is diagnosed, then it is possible to de-toxify, which can give hope to a future of increased health and decreased neurological symptoms.

If you want more information about toxicity with heavy metal and Parkinson’s disease then use the Internet.

Thank you for reading my case-story and I wish you all the best.

Hanne Koplev
Veterinarian

Alternative Therapies for Parkinson’s Disease

What follows is a fascinating e mail I received from Brad who has given me permission to post it here.

Robert Rodgers, Ph.D.
Parkinsons Recovery
www.parkinsonsrecovery.com

I am still “in the closet”, so to speak, that is to say I have not publicly discussed my diagnosis.  I am very new to this discovery as I received my diagnosis one year ago (at age 52).  Sometimes I get “PD’ed” by strangers who notice my symptoms and ask (or tell) point blank that I “have Parkinson’s”, which I cannot evade.  The only purpose for taking the currently available meds is too hide the condition from others during, say, public speaking or other event which might lead to self-consiousness or embarrassment.  The meds serve no other purpose, they do not treat any underlying condition whatsoever.  I suspect this denial, or hiding from PD symptoms, is very psychologically damaging (Michael J. Fox treats this in depth in his books).  It leads to over medicating and adds stress, thereby worsening the condition.

In my case, I was lead to believe that the use of L-Dopa would provide dramatic relief and thereby confirm the diagnosis (remember that PD is a “negative” diagnosis, that is, it is indicated by ruling out all other possible explanations, however, in reality this is impossible to do.  So PD is labeled “idiopathic”, or of unknown causation).  Instead of relief, absolutely nothing happened, except that I immediately worsened and developed new symptoms in addition to a multitude of side effects.  My brain has resisted L-Dopa therapy over these twelve months.  L-Dopa is only sporadically effective and is very hard to predict.  It takes very high doses to alleviate all symptoms (breifly) and during periods of high stress (particularly social stress) it does not work at all.  So I have made a conscious decision to  minimize my use of L-Dopa and seek alternatives right from the start.  Sometimes I go for days without medicating at all and my symptoms usually stay about the same or sometimes better.

Things I am doing that seem to help:

Continue to ride and race bicycles.  I have had to give up certain types of racing that require extremely fine motor skills, but I ride with accomplished groups regularly, at least 5,000 miles per year.  Balancing a bicycle utilizes different neural circuits from your center of gravity than balancing on your feet, so I actually cycle better than I stand or walk.  Some medication is required to control dystonia and keep my “slow” leg in sync with my “fast” leg, but I have experienced symptom-free rides occasionally.

Continue serious weight training.  Since lifting weights does not involve high speed movements, it is largely unaffected by the symptoms.  I have always been very strong and have become even stronger with pd symptoms than I was previously.

All other forms of physical activity, such as stretching, hand and finger exercises, table tennis, hiking, walking, basketball, anything that involves motion.

Healthy food, water, and sleep/rest.  Avoid all trauma and toxins insofar as possible.  Drama-free social life, mental engagement and exercise, healthy spiritual practices.  These seem to be so “common sense” that they may be overlooked, but the proof is in disrupting any one of these and the symptoms immediately worsen.  Improve them, and they immediately get better.  Simple.

“Alternative therapies” that I am trying or considering include mercury detox.  This is very dangerous, because disturbing mercury in dental work and/or chelating mercury that has been bound to brain tissues for a long time can worsen matters by “stirring up” heavy metals that may then be reabsorbed or recirculated prior to elimination.  A personal decision has to be made balancing the risk/possible benefits of this approach.  It is too early to tell what impact this decision will have on me because I have only had mercury-free teeth for less than thirty days after more than thirty years.  I do believe eventually mercury will be banned in dental work.  There are better alternatives available.  My dentist conceded only after agreeing that having already developed pd symptoms, the levels of mercury that may be safe for a normal healthy adult might not be appropriate for me.

Hypnotherapy is showing great promise.  If nothing else, achieving relaxed states reduces stress.  However, even western medicine recognizes “psychogenic Parkinson’s”, from which full recovery is possible.  It distinguishes this from “real” or “organic” Parkinson’s which by definition precludes recovery.  So if you recover, it must have been psychogenic and vice-versa, if you don’t recover it’s not psychogenic.  This is circular reasoning.  Self-observation proves that all PD is at least partially psychogenic.  Besides, it is a Western assumption, wholly based on faith, that there is any real difference between the mind/spirit and body at all.  There is plenty of evidence, including in Western science, that there is no difference.  One cannot exist or be healthy without the other.  During hypnotic states (basically that relaxed dreamy state just before falling asleep), observable symptoms abate.  What more proof that these symptoms are controlled by mental states (or brain waves, if you will) is needed?

Long held attitudes and “belief systems” are hard to change but they clearly play a role in recovery.  There is a website with which you may be familiar, it’s www.pdrecoveryproject.org, I think, that discusses this in depth.  It’s chapter 45 of a lengthy treatise.  It’s basic theory is that negative self-hypnosis or “accidental” hypnosis is a causitive factor in PD symptoms.  At home, we avoid using the term “disease” or even “Parkinson’s”, instead referring to “Mr. P” or “my condition” or “symptoms” because one thing is for sure, if for one minute, you believe that you will not recover, your prophecy will be self-fulfilled.  On the other hand, if you believe improvement or recovery is possible (not guaranteed), then that will be true also.  Cancer victims refer to “fighting” cancer, PD’ers often talk about “accepting” PD.  While “accepting” oneself as one is or accepting the public acknowledgement of your symptoms may be helpful, the will to live (not mere survival, but living well) is the driving force behind recovery from any illness.

On the drawing board: acupuncture.  The brain is an electrical system.  Western science proves this through DBS.  DBS, however, is a crude and intrusive means of maintaining that system.  Again, the website mentioned above details how electrical disuptions in other parts of the body (particularly the foot or ankle) may affect the brain.  I had such a traumatic injury in which the tibia was fractured and did not “knit” after 99 days in a cast.  Subsequently, a “TENS” unit was utilized passing an electrical current, night and day, for several months through the fracture.  While this did cause an 80% “healing” of the bone to occur, there may have been electrical side effects unbeknownst to me from this therapy.

I realize that this is rather lengthy, but PD is a vastly complex and mysterious condition.  The mere lack of dopamine is neither it’s cause nor solution.  I agree with you that the current scientific research will never result in a “cure” because there are a multiplicity of causes and therefore a multiplicity of “cures”.

I appreciate this opportunity to share my thoughts in writing because it has helped me be a little more organized in my own research and thinking.  I do not yet know in what way my experience may be used to help others, but I will consider your idea.  Thank you for your time and the work that you are doing.

Brad

Liver Detoxes

Question:

Toxin buildup in the body is one of the probable causes of PD. As we know, the liver is our body’s major waste converter. What do we do to keep the liver in top shape? Also, what is the best supplement to give the liver especially when one has PD?

Thank you,

Arsenio

Response:

The question you raise is critically important for persons with Parkinsons. Research has definitely shown that heavy metals and pesticides have a direct impact on the symptoms of Parkinsons. As you point out, the liver plays a huge role in this drama. The bowels and kidneys are also lead actors. I like to think of detoxing from the perspective of all the body’s elimination organs.

Perhaps the most important factor to a successful detox is better hydration. Many people are unaware they are dehydrated. If cells are not adequately hydrated, waste does not have a prayer of being eliminated regardless of the detox method you use.  John Coleman, ND recommends people used Aquas (www.aquas.us) , a homeopathic remedy designed to help the body take in water and distribute it to the cells. Clearly, the intake of sufficient quantities of water is important.

I believe many people underestimate the value of colon cleanses. Regular colon cleanses can take the burden off the shoulders of the liver and kidneys.

Eating unprocessed foods also takes a huge burden off the liver. Fresh vegetables and pure water can do wonders for the liver. Some people with Parkinsons use a brief fast to cleanse the liver, though these decisions should of course be pursued under the close consultation of your doctor.

In part, the best detox method depends on the type of toxins that are present in the body. Testing can be done by a naturopath doctor or medical doctor to pinpoint the specific toxins that are present in the body. Naturopath Ivy Faber uses bioenergetic testing which scans the body for toxins and other problems :

[http://www.parkinsonsrecovery.com/ivytest.html].

Doctors also have tests to identify the presence of specific toxins that may be causing the symptoms. There are specific detox methods for specific toxins, so it really depends on the specifics. This is such a specialized area that some medical practices specialize in helping people detox their bodies.

By way of example, one detox method that can successfully remove heavy metals according to my interviews with doctors and other health professionals is zeolite, a substance that is derived from the ashes of volcanoes.

Robert Rodgers, Ph.D.
Parkinsons Recovery

Resources

Cruise to Alaska
Jump Start to Wellness
Parkinsons Recovery Chat Room
Symptom Tracker
Parkinsons Recovery Radio Network
Aqua Hydration Formulas

Books

Road to Recovery from Parkinsons Disease
Pioneers of Recovery

Five Steps to Recovery
Meditations for Parkinsons

Zeolite and Parkinson’s

Question:

Congratulations on finishing your book and thank you for making this available to those who are in need of help with the “charms” of PD.

It has been 14 months since I was diagnosed and I shared this news with you when it was confirmed. My journey has made me try mirapex for l0 months which made me feel worse than the symptoms I had at the time mainly the fatigue.  I stopped the mirapex three weeks ago and started amantadiine twice a day since then.  I feel better being off of mirapex but I do not feel normal.  The fatigue has lifted somewhat, I can stay up  longer hours however I am still slow in movement, bad handwriting, constipation, mask, left leg trembles at times, back pain when I walk.   I do eat a healthy diet and keep a good attitude most of the time.  I still drive a car but just locally, no long trips.  I challenge my brain with reading, scrabble games, chess games and going out to lunch often.

My sister bought me some “Zeolite” to try to see if it will help me.  I read some good things about it so far on the internet.  It makes sense to me the reasoning to cleanse the body of toxins so that the body is enabled to heal itself.  Your outline of your researched book makes ablot of sense to me and made the lightbulb in my head turn on!!! I am going to try the Zeolite starting Monday morning taking it in a glass of water three times a day dropping 10 drops of it each time. If you have any feedback you can share with me on Zeolite, I would appreciate it.

Terry

Response:

It is wonderful to hear from you and to learn more about your journey back to health.

Zeolite was highly recommended as a detox by one doctor I interviewed, Lyn Hanshew, MD which I discuss in Road to Recovery. Dr. Hanshew is convinced it will make a big difference to the symptoms of Parkinsons. Let me know the result if you decide to start using it. I have not interviewed anyone with Parkinsons who has given me any feedback on the effects of Zeolite on Parkinsons symptoms.

Robert Rodgers, Ph.D.
Parkinsons Recovery

Detoxes

Question:

How do you recommend we detox our bodies?

Bev

Response

Your question turns out to be huge indeed. I have used a naturopath doctor in Georgia (who I have actually never met in person), Ivy Faber. Ivy does bioenergetic testing to determine which toxins are problematic.
She then recommends the detox protocol to use.  I will be interviewing Ivy soon on the radio program so you can get a good idea of her approach by listening to the interview.

Naturopaths are great resources to help with detoxing. Herbalists have great resources, as are aromatherapists. Some medical doctors specialize in this area. Of course, exercise always helps the body to detox. Colon cleanses can be very useful as well.

In short, there are many, many possible approaches to consider. There are even detox programs that are designed to release specific toxins (like iron or other heavy metals).

I have actually tried different detoxes over the years which were purchased at food co-ops and health food stores. You can always tell if they are helpful because you begin to feel a lot better after several weeks.

Instead of doing a thorough review of alternatives, I ask my body through muscle testing which method I should use for now. The answer is often different depending on when I ask.

Muscle testing is the “quick and clean” method. I do not have to think as hard. I am into making things happen now.

Perhaps my way stems from my impatience.   Perhaps I am just lazy. But, muscle testing works well for me and happens to be my way of making decisions about detoxes my body needs.

In the big picture, I think what matters is to acknowledge toxins to be a challenge for everyone. We all need to detox at least every year if not every six months.

This is such a big issue I am writing a book which compiles the wisdom of the many people I have interviewed about how to release toxins from the body.

I will post your question on the blog to see if anyone else has a comment about methods they have used which were helpful.

Robert Rodgers, Ph.D.
Parkinsons Recovery

Magnetic Clay Detox Baths

Question:

WHAT IS THE EXPERIENCE ON DETOXING PEOPLE WITH PARKINSONS …DOES IT REALLY WORK? WHAT ABOUT THE MAGNETIC CLAY DETOX FOOT BATHS? DOES IT WORK?

GEORGE

Response

I have not seen detailed evidence on the effects of detoxing on Parkinson’s symptoms, but have a strong intuition that people are seeing results from detoxing. I personally believe we all need to do routine detoxes given the world that we live in today. We also know that there is a direct connection between toxins and the symptoms of Parkinsons.

I also do not have direct information about “magnetic clay” detoxes. There are so many possibilities out there these days. I do have a recommendation I am chasing after that sound intriguing – zeolite, which is a clay material from volcanic ash. I learned from a medical doctor last month that this is the one detox program that seems to work beautifully in her opinion. I am scheduling her on the radio program.

Robert Rodgers, Ph.D.
Parkinsons Recovery
www.parkinsonsrecovery.com

Detoxing Your Body

This is a letter that I received Memorial Day which I just received permission to post. It is certainly a powerful statement about the results that are possible with a detox program and a healthy diet.

Robert Rodgers, Ph.D.
parkinsons Recovery
www.parkinsonsrecovery.com

I was diagnosed with advanced Parkinson’s Disease and if I believed in traditional allopathic medicine then I would have had little hope. I started researching on my own and was shocked at the information that is readily available to the public regarding industrial toxins and toxins that we ingest from pharmaceuticals. It is no surprise that physicians/hospitals/pharmaceuticals are the number one cause of death in the United States.Fortunately medicine is changing and medical schools are starting to segregate themselves from big pharma opting to teach healing and restoration of the body.

I no longer have any symptoms of Parkinson’s but I had to start at the basics, detoxing my body of harmful contaminants and toxic chemicals, that also including the poison that was prescribed for Parkinson’s which causes the very symptoms it is purported to relieve. To optimize my health I had to stop buying fruits and vegetable in regular grocery stores, instead I bought only organic fruits and vegetables including all groceries. MSG is in almost 75% of products sold in grocery stores although hidden under a different name, we ingest about one gallon of pesticides a year from buying fruits and vegetables from regular stores.

The heart of the matter is there is some action that we can take to better care for our health and that of our children. It requires that we educate ourselves from sources that are not self serving or radical, alternative medicine is filled with charlatans and can be every bit as harmful as the continued overuse of over the counter and prescription drugs.

There are physicians trained these days in the area of nutrition and using a combination of traditional medicine with medicine of the east commonly referred to as integrative medicine. In addition there is an emerging field of physicians that practice what is called functional medicine which believes at getting to the cause of the health issues rather then simply prescribing a medication to deal with the symptoms which invariably cause additional problems.

I actually don’t have much in the way of answers but do know that education and acting on what we know will improve the quality of our lives exponentially. I wish all of you a wonderful Memorial Weekend and God’s Peace.

Bobby

Detoxification Foot Baths

It is clear to me that toxins can cause symptoms of
Parkinson’s. It is also clear that there are a wide
variety of ways to detox heavy metals, pesticides
and other harmful substances from your body.
Have you ever heard of foot baths that are used
to detox the body?

Several people have told me recently that detox
foot baths have helped them feel a lot better,
so I am interviewing Jack Potter Thursday, May 14th
at 11:00. Jack offers a foot detox service here in
Olympia, Washington for chronically ill people.

Listen to Parkinsons Recovery on Blog Talk Radio

There are a number of different detox machines
that are currently being marketed. The machine
we will find out more about Thursday is called the
Aqua Chi.

I would love to hear from you during the radio
program if you have any experience with using
detoxification foot baths.Call 347-945-5358 during
the radio program. We all need to learn more about this
novel approach that is used to detox the body.

I like the idea of foot detoxes myself because they
are safe, non intrusive and natural. The jury is out
on how well detox foot baths help people get relief
from the symptoms of Parkinsons.

Robert Rodgers, Ph.D.
Parkinsons Recovery
www.parkinsonsrecovery.com