Category Archives: tremors

Solutions for Parkinson’s Symptoms

On Parkinsons Recovery Radio today. Fred Phillips offered his insights into how he gets immediate relief from a variety of his Parkinson’s symptoms.  His solutions for Parkinson’s symptoms are novel and profound. Do you ever have difficulty when walking with:

  • Freezing?
  • Standing up?
  • Shuffling?
  • Slowness?
  • Leg Cramps?

If so, I strongly recommend that You listen to my interview with Fred today. Click the arrow below to hear the replay. Fred has discovered some powerful, yet simple solutions to these
symptoms that have helped him enormously.

One of now over 70 pioneers of recovery I have hosted on Parkinsons Recovery radio, Fred also previews his 10 step protocol for recovery.

Robert Rodgers PhD
Road to Recovery from Parkinsons Disease

 

 

 

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Restless Leg Syndrome, Excessive Shaking and More

Here is a short list of some of the questions I answered in Part IV of my Q&A program today concerning the causes and treatments for symptoms of Parkinson’s disease.

  • How can I go about reducing the dosage of medications I take? They are not working for me.
  • I want to know more about the Aquas.
  • What can I do for Restless Leg Syndrome?
  • What is the best way to control excessive shaking?
  • What about amino acid therapy as a treatment for Parkinson’s symptoms?
  • How can I stop my intercostals from contracting, worsening by 3 am and awakening me at night?
  • What about parasites, worms, and smaller creatures like mold, fungus, staph infections, etc. What role do they play if any?

Additional Parkinsons Recovery Resources 

The second Jump Start to Recovery Course convenes August 1st for 8 consecutive Tuesdays.
2017 Updated Road to Recovery from Parkinsons Disease
Parkinsons Recovery Memberships: https://www.parkinsonsrecovery.com/parkinsons-recovery-membership
Treatments for Tremors
Seven Secrets to Healing

Robert Rodgers PhD
Parkinsons Recovery
https://www.parkinsonsrecovery.com

 

 

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Tremor Treatments, Best Parkinson’s Diet and More

Here is a short list of questions I answered during the program today on tremor treatments and more:

  • What are the best techniques to reverse Parkinson’s?
  • Are probiotics and prebiotics helpful?
  • What about juicing to remove heavy metals like lead?
  • How about taking mucuna for tremors?
  • Is there anything that will stop my tremors?
  • Where does one start when deciding to travel down the road to recovery?
  • What about taking lots of supplements to address the symptoms?
  • I am doing all of the therapies that people say will calm tremors but they continue to increase. Can you recommend a tremor treatment that will help?
  • Is  ketogenic diet useful to address Parkinson’s symptoms or are there other diets that are better? I am confused. There are so many opinions out there!

Additional Parkinsons Recovery Resources Discussed During the Program

The second Jump Start to Recovery Course convenes August 1st for 8 consecutive Tuesdays.
2017 Updated Road to Recovery from Parkinsons Disease
Parkinsons Recovery Memberships: https://www.parkinsonsrecovery.com/parkinsons-recovery-membership
Treatments for Tremors
Seven Secrets to Healing

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Relief for Tremors

“What can I do to relieve me of my hand, foot, and inner head tremors or, at least, reduce the tremors?  The tremors are in my left hand, left foot, and upper, inner, left side of my head. I was diagnosed with Parkinson’s disease in 2014.  I declined prescription  medications.”  

Robert Rodgers PhD
Road to Recovery from Parkinsons Disease

P.S.: Still time to claim the early bird special for Jump Start to Recovery.

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Calming of the Tremor

Yes!!

This is so exciting.  Last night I clearly noticed a calming of the tremor.  This morning there was a time period of it reverting back to only a thumb tremor (how it started roughly 3 yrs ago). This has not happened before.   Also last night I felt very calm from talking with another soul that truly believes in the bodies memory of wholeness. I’m also amazed at the clearing/calming feeling that blanketed over me while you spoke of the Physical and Energetic relation to Invasion and Parasites as well.  To top it all off, I slept over two hours past my usual 4:15 ish inner wake up alarm.
Three new and likely contributing factors added to the menu of remedies and soul reminders from yesterday:
  •    -A good hard laugh while conversing with Tim B.
  •    -First 1/2 dose of  SYNCOLEIN
  •    -An amazing phone consultation with Dr. RR.

This morning I also discovered NIACIN and its relation to PD.  I’m already naturally eating some of the best sources of B3 but will add more of the higher niacin foods.

I don’t even want to think about how life would be had I not stumbled on your site when I was rather in a blind panic after a rather cruel presentation of a diagnosis and loosing my friend on same day.  It is again with tears that I share my appreciation for your consistent research and openness to share and find us who seek the path of healing.
Tao
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Use Tremors to Muscle Test

What follows is a fascinating email from an individual traveling down the road to recovery who uses his tremors to great advantage. He refers to himself as “Tao.”  As you will discover below, his tremors are a surprisingly useful tool when it comes to muscle testing!
“I was having little success with trying various muscle testing techniques and it finally dawned on me to ask myself the question, “what might work best for me”.  Before I even finished asking that very question the thought came on like a light switch that I should use the tremor (that by the way I first acknowledged/interpreted as a ‘spiritual gift’ coming through back when I was living and backpacking in the Appellation Mountains last summer) as a method parallel to muscle testing. 
 I extend out my arm and briefly shake it into a relaxed state, then hold the pen as if i were about to write.  The little pause before the tremor is my yes and a more aggressive instant tremor a no.
I could be clueless if this tremor parts!!  lol”
Tao
 
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Tremors Treatment

Below is my response to one of the questions ask on the Parkinsons Recovery Sunday Connections program.

Which treatment has gotten the most positive feedback for tremors treatment that reduces or eliminates them?

What is the Best Tremors Treatment?


tremors-treatment

The resources I mentioned during my recorded response to this question are the following:

Parkinsons Recovery Fava Bean website to document Aunt Bean’s research:

www.favabeans.parkinsonsrecovery.com

A full description of the Parkinsons Recovery Mindfulness Program can be found by visiting the following website:

www.stress.parkinsonsrecovery.com

Robert Rodgers, Ph.D.
Road to Recovery form Parkinsons Disease
www.parkinsonsdisease.me
Olympia,
 Washington
877-526-4646

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Herbs that Offer Relief For Hand Tremors

Is there anything that can help with Parkinson hand tremors? Tremors started in my right leg and now have spread to my right hand and arm. I’m trying to remain positive. Neurologist gave me Azilect but hasn’t helped at all that I can tell. Should I keep taking it?

Thanks

Susan

If the prescription medications you have been taking have not served the purpose that was intended, it may be time to look elsewhere for options. Of course it would be important to consult with your neurologist before proceeding. If one therapy to treat the tremors is not helpful, I think it is smart to consider other therapeutic options.

Herbalists are wonderful resources in this regard. I have interviewed Andrew Bentley, a highly qualified herbalist from Lexington, Kentucky, who provided several possible herbs that address problems with tremors. Andrew was one of the pioneers that was featured in the first release of Pioneers of Recovery (http://www.pioneersofrecovery.com)

The particular form of herb that has the potential to help depends on a wide variety of factors. It would be sweet if the answer would be”Take herb X and you are sure to see relief.” The neurological system is far more complicated than most people realize.

The choice of the particular herb to treat your tremor depends on a variety of factors  including your body type and overall metabolic constitution.

If someone has a lot of tremors but no pain, Andrew Bentley explains that:

“A herb that is an anti-spasmodic might help more than if someone is experiencing a lot of pain and rigidity, in which case we might use an entirely separate type of things. Some things are helpful more or less across the board.”

Several types of herbs have been found to be helpful depending on the person and the situation. Barley Malt extract is one that actually helps with the levels of dopamine in the brain. Oat straw is sometimes helpful for tremors. Andrew explains that oat straw usually does not cause drowsiness. A lot of things that are anti-spasmodic also cause sedation. He further explains that :

Valerian is a much stronger herb for helping to suppress tremors but it does carry some risk of sedation, of feeling more drowsy and so forth especially when people first start taking it. Sometimes that lessons as time goes on. It is a very strong substance when it comes to helping control involuntary muscle movement tremors and involuntary movement of otherwise involuntary muscles. It is a good one for that.

“Passion flower is also one that is helpful for some particular individuals. These are all things that would go into that category of working on tremors.

Last but certainly not least, Aunt Bean has invented a fava bean tincture that offers her profound relief from tremors. You can find detailed information about how she makes her homemade tincture by visiting the Parkinsons Recovery fava bean website:
http://www.favabeans.parkinsonsrecovery.com

Robert Rodgers, Ph.D.
Pioneers of Recovery
http://www.pioneersofrecovery.com

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Best Way to Eliminate a Hand Tremor

Dear Robert:

I need your help. I am 70 years old. I recently discovered that my right hand “tremors a little” when I hold a pen, a cup, or a fork.

My friend told me that I may have early symptom of Parkinson and suggested to take 5 mg. of Enada.

What do you think? What is the best way to eliminate the hand tremor?

Thanks.

James 

Response:

I can sense that the comment by your friend that you may be experiencing the early stage of Parkinson’s Disease elicited considerable fear and anxiety. The instinct of course is to find a quick remedy that will calm the tremor down or make it go away.

There are certainly medications of one type or another that will silence a  tremor in the short term. For many people relief [if even in the short term] is most welcome. You have ask for a recommendation on a medication that will do just that – silence the tremor whether in the short term or the long term.

There are variety of herbs and prescription medications that will serve that purpose and provide just that type of relief. I have interviewed several herbalists who recommend one herb or another for tremors – so this is clearly an avenue you might want to pursue. Aunt Bean makes a homemade tincture from fava beans which gives her incredible relief from her symptoms. You can find more information about her remedy on the Parkinsons Recovery Fava Bean website. [http://www.favabeans.parkinsonsrecovery.com]

Let me suggest an alternative approach to this puzzle. Instead of dampening the symptom
– investigate more systematically. Why is your body telling you that something is currently out of balance? Treat the tremor as valuable information your body is giving you right now.

Have you been exposed to toxins of one type or another?

  • How about exposure to Agent Orange?
  • How about exposure to radiation?
  • How about exposure to pesticides?
  • How about exposure to heavy metals?

We have discovered that unwelcome critters that live inside your body can also create neurological havoc.

  1. Is Lyme Disease a possible factor for you? It’s symptoms are the same as those of Parkinson’s
  2. Do you possibly have an overgrowth of candida? This can cause the symptoms too.
  3. Is it possible that you have a reaction to a tetanus inoculation? Sharry Edwards has discovered that tetanus is a primary factor for a surprising number of people who have had BioAcoustic profiling done.

I will not attempt to provide a full of possible causes list since it would take a book and this is only a short post in a blog. Consider the above as a short list of possible factors that may be causing your tremor.

Most importantly, use your intention to dampen the fear that your friend has triggered. Once you determine the factor (or factors) that are causing the tremor, you will be able to find a resolution to the problem. One the cause has been identified and treated you will no longer need to mask the symptom with a prescription drug or herb.

Might I suggest that the perfect New Year’s Resolution for you would be to set the intention to determine the cause of your tremor, to treat it and subsequently become symptom free in 2012.

I just released Pioneers of Recovery 2012 which includes the stories of 11 persons with Parkinsons who reversed their symptoms. Each pioneer was a guest on my radio show. You
can listen to the shows as you investigate causes that may be factors or you can read about their stories in Pioneers of Recovery 2012.

The one and only person who can solve the puzzle of why you are experiencing a tremor is you. Join with others on the road to recovery as you set the intention to heal the tremor instead of treating it symptomatically,

Robert Rodgers, Ph.D.
Pioneers of Recovery
http://www.pioneersofrecovery.com

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Tremors and CoQ10

My holistic doctor wants me to take coq10.  But every time I try to take it my tremors are worse. Can you tell me why?

Thank you.

Response:

The key question I would ask is this. What brand of Co-Q10 are your taking? Dr. Laurie Mischley, ND, reported on my radio show last year in June, 2010 that only a few brands of this supplement really work. She explains why on the radio show. Her explanation is well worth hearing:

http://www.blogtalkradio.com/parkinsons-recovery

She explained on the radio show that many brands of Co-Q10 are sold, but if you purchase the less expensive brands you are throwing your money away. A tablet that you melt under your tongue is most effective.

PLease listen to the show. If you are taking one of the brands she recommends, then write me back and I will research this further for you.

Robert Rodgers, Ph.D.
Pioneers of Recovery
www.pioneersofrecovery.com

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Hidden Gift of Tremors

Many people who happen to currently experience the symptoms of Parkinson’s think of tremors as a problem and a nuisance. Recovery from Parkinson’s disease means that you have successfully eradicated the tremor or, at a minimum, numbed your neurological system so that the tremor does not exist.

There is an alternative mindset that some people have adopted to their great advantage. Professional photographer Alan Babbitt finds his tremor is a huge advantage. Instead of trying to still his hand when he takes pictures, Allan allow his camera to jiggle in whatever position his hands move. He has produced a remarkable series of pictures that he aptly describes as “”tremor enhanced” work that are incredible in every respect. I was so taken by his images that I contracted with Alan to use one of his images as the featured cover of my book Road to Recovery from Parkinsons Disease.

A second person with Parkinson’s who has used his tremor to great advantage is Whit Deschner.  Whit is the founder of the Salt Lick contest in Baker City, Oregon which raises money for Parkinsons research every year.  Whit was my featured guest on my radio show this week.  How does author and humorist Whit Deschner uses his tremor to great advantage?

I have no doubt there are many answers to this question, given Whit’s off the chart creativity and innovativeness.  Like Alan Babbitt, Whit has found his tremor to be of immense advantage in his own photography.  Whit has always loved to take pictures, especially pictures of children as they are jumping. After experiencing the symptoms of Parkinson’s beginning 10 years ago, Whit found that when he began taking a picture of a child jumping his finger continued to snap the shot. Instead of one shot, he would invariably wind up with a long series of single shots taken with his still camera.

What do you do with a long series of single shots of the same scene? Choose the “best”?  Or, use them all in a sequence of slide show like images. When you string together all of  the pictures in sequence, it looks much like a movie of the scene such as a child jumping. ‘Talk about being creative!

There is a Youtube link below to a 9 minute video that tells the history of horses on Whit’s ranch.  It is well worth taking 9 minutes of time in your busy day to watch this video. When you watch, pay particular attention to the many segments where you see evidence of Whit using all of the images from a still camera. Instead of seeing a still picture, you see a horse gracefully moving through a pasture or smiling back at you with a sweet grin on his face.

http://www.youtube.com/watch?v=MB2HlLhRZjU

There is no mention of how Whit Deschner has used to advantage his tremor in this video, but I wanted you to know because I just learned how he did it today.

Some people think of tremors of a liability. Other people – like Whit and Alan – think of tremors as an asset which has led to remarkable  discoveries and innovations. It is a choice for everyone.

Anyone else out there with a story they would like to share?

Robert Rodgers, Ph.D.
Road to Recovery from Parkinsons Disease
http://www.parkinsonsdisease.me

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How to Calm Tremors Naturally

Gord Summer was a guest on my weekly radio show on December 29, 2010. In this video of Gord’s impromptu presentation at the Parkinsons Recovery Summit in March, 2011, Gord demonstrates how he is able to control his own tremors using the power of the mind. His approach is powerful, simple, natural and free.

Robert Rodgers, Ph.D.
Road to Recovery from Parkinsons Disease
http://www.parkinsonsdisease.me

[flashvideo filename=videos/summerscontroltremors.flv image=videos/summerscontroltremors.jpg /]

If the videos you watch here start and stop, just pause the video for about 30 seconds and allow the live streaming to catch up.

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Treatments for Tremors

I have a non-Parkinson’s essential tremor, also known as a familial tremor. Does anything you do address any of these types of symptoms? I would love to know if you address the symptoms separately or the condition itself?

Thanks so much!

Travis

Response:

My response will likely come as somewhat of a surprise to you. I approach symptoms from the perspective of a researcher. My approach is markedly different than the approach taken by medical doctors. Medical doctors are trained and qualified at diagnosing illness.

From your question, I gather that a diagnosis has been declared. Once the diagnosis is made, medical doctors are in a position to prescribe specific treatment protocols in the form of prescription medicines and/or surgeries. Be advised that I am not qualified or trained to practice medicine in this manner.

I have a quite different perspective. I do not believe that diagnosing conditions is conducive to health and wellness. Once we fall into the trap of wondering what is wrong with our bodies by insisting on a formal diagnosis, we embrace a plethora of negative thought forms that have very low frequency. Wondering what is wrong with our bodies is not the route to health and wellness. The diagnostic approach is depressing. It also depresses our life force.

More importantly, a diagnostic approach to health assumes that the solutions falls outside of us. Someone else surely has a medicine or a surgery that will fix us. This disempowers our ability to heal. I believe that all healing comes from a place within each of us and that we all have the capacity and power to heal. The more I learn about the body, the more I honor the miracle of life.

In the second edition of my book, Road to Recovery from Parkinsons Disease, I do include some of the treatments for tremors that people have reported to me help them get relief. But I must say, if there is a tremor, the more important question to ask is:

What is your body telling you?

If a tremor is present, something is out of balance. You can treat a symptom such as a tremor, but why not get to the root reason your tremor? Once you identify the cause, you can address it rather than trying to mask the symptom.

Robert Rodgers, Ph.D.
Road to Recovery from Parkinsons Disease

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Treatments for Tremors

Question:

What are some treatments which relieve tremors?

Norma

Response:

I am very hesitant to provide a listing of all the treatments and therapies people have told me help to relieve their tremors. Why? After all – putting out such as list would impress everyone, wouldn’t? This guy has great suggestions people would say. Well – maybe.

I do offer suggestions in my books by way of reference, but the problem I have with providing specifics is that I know little about your actual situation. The question itself hits up against the strategy of masking symptoms rather than identifying the root cause.

When there are tremors – as in your case – your body is sending you a strong message that something is seriously out of balance. Perhaps the imbalance involves exposure to toxins. Perhaps it involves a past trauma that is unresolved. Perhaps it involves living a stressful life that offers your body little relief from a continuous adrenaline rush. Perhaps it is due to an insufficiency of certain substances the body needs to create energy.  There is a long list of possible causes.

I think the better questions to ask first are:

  • Why is my body sending me this strong signal?
  • What is causing my body to react as it is reacting now?

There are indeed a long list of possible answers to these  questions. How do you find the answers to these questions?

A variety of assessments are available to you that can provide rich information about any and all imbalances in your body. These include (among others) bioenergetic testing, saliva tests, voice analysis, hair analysis to ascertain the presence of toxins and a wide variety of standard medical tests.

Health care practitioners have creative ways of ascertaining the root cause using muscle testing. We teach people how to use muscle testing at our Jump Start to Wellness programs because it is an approach that requires no cost to you.

In summary, I would say in response to your question that yes – it is certainly possible to mask a tremor with a wide variety of approaches including prescription medications, natural herbs and exercise.  With most such treatments (other than exercise)  more and more dosage is needed over time to get the same effect. You ultimately wind up creating more problems for yourself as the imbalances become more pronounced.

Why not ask a different set of questions here?

What is the underlying cause here?

What is my body telling me in the moment?

Once you figure out the answer to these questions you can find  a treatment or therapy that will address the cause. With this approach masking the tremor becomes irrelevant.

Robert Rodgers, Ph.D.
Parkinsons Recovery

Books
Road to Recovery from Parkinsons Disease
Pioneers of Recovery
Five Steps to Recovery

Resources
Vibration Therapy
Dehydration Therapy: Aquas
Parkinsons Recovery Membership
Parkinsons Recovery Chat Room
Eye Drops for Cataracts
Symptom Tracker
Parkinson’s Disease News

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When Will the Tremors Get Better?

Question:

My relative has been exercising regularly since her hand tremor first started 1 year ago.  She has also been eating healthy and has been eating approximately 70% vegetable/fruits vs 30% meat.  Also, she has started taking multivitamins and N-Acetylcysteine over the last two months however the tremor has not improved.

Are there some other nutritional supplements that she should be taking (or things she should be doing)?  She is also on the selegiline prescribed by the doctor (although no one can fully guarantee she has PD).

Does drinking one or two cups of coffee per day stop tremors altogether?  Or two cups of Green Tea?

When would her tremors get better?

Thanks.

Gino

Response:

Wouldn’t it be so sweet if we could find a supplement or treatment that would resolve tremors? My research shows that a multifaceted approach is required.

First, it is clear that your relative wants the tremor halted. After all, who wouldn’t want this? There are a few herbs that might help – and certainly there are supplements that are deficient in most people with Parkinsons (e.g., CoQ10, vitamin D3, NADH, etc.). Instead of driving down this pathway, however, I suggest you ask a different question.

Your relative’s body is giving them a strong signal something is out of balance. Do they have an overload of toxins? If so, taking supplements is not the answer.

Is there trauma trapped at the cellular level? Again, supplements or medicines can mask the tremor – but the underlying cause remains.

Is your relative holding a seed thought that is not true which fuels the tremor? If so, taking supplements of any type are not the answer in the long run.

You ask – when will her tremors get better? The answer is – that some herbal and medicinal treatments can reduce the tremors temporarily. But if she wants the tremors to stop – she will have to step back and find out what her body is telling her. Her body is giving her valuable information. Her most important job is to listen to the messages she is getting.

You can’t do that work for her. She has to figure it out for herself.

  • Perhaps she is under extreme stress and her body is telling her to slow down or change jobs or chill out.
  • Perhaps she is using a soap or detergent that is toxic.
  • Perhaps she is being exposed to electromagnetic pollution.
  • Perhaps …

I assure you the list of possibilities is very long indeed.

If she is serious about solving the current challenge she faces with her tremor, suggest that she attend the Parkinsons Recovery Summit and Jump Start to Wellness which we are offering March 7-9 in Vancouver, Washington. We teach everyone how to listen to the messages their body sends to them.

Her body has the answers. She just has to start listening.

Robert Rodgers, Ph.D.
Parkinsons Recovery

Books
Road to Recovery from Parkinsons Disease
Pioneers of Recovery
Five Steps to Recovery

Resources
Vibration Therapy
Dehydration Therapy: Aquas
Parkinsons Recovery Membership
Parkinsons Recovery Chat Room
Eye Drops for Cataracts
Symptom Tracker
Parkinson’s Disease News

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Parkinsons Disease Treatment Options

Angela Wensley was a guest on my radio show on October 28, 2010. You can listen to the show by visiting http://www.blogtalkradio.com/parkinsons-recovery.  Angela wrote a thorough update describing the treatment options she has pursued. Her update is posted below. Robert Rodgers, Ph.D.

This update is intended not only for my friends and family, but also for people who have been diagnosed with Parkinson’s disease (PD). Please feel free to pass this on to anyone that you may know who has a diagnosis of PD as they may find some of the information helpful. I was diagnosed with the symptoms of PD in May 2007, over 3 1/2 years ago at age 59. At the time of diagnosis, I was informed that not only was the cause unknown (“idiopathic”), but also that it was irreversible and progressive. Initially, I questioned the diagnosis but any doubts were resolved when I traveled to Los Angeles in September 2007 for a PET scan that confirmed (in medical-speak) that there was: moderately decreased dopamine accumulation into the posterior putamen on the left side of my brain, consistent with PD. Since then, I have come to accept the diagnosis as my symptoms have become rather “classic”. In particular, I have tremours in my right hand and these have become increasingly worse as the years have progressed.

The progression of my PD symptoms has not been linear, but instead I experience it in waves with definite peaks and valleys. The symptoms can be pronounced for a number of days interspaced by days of calm where I am almost symptom-free. Over time, however, the general trend has been a gradual progression downward (probably corresponding to dopamine depletion in the part of my brain responsible for motor activities) with the valleys becoming more savage and the peaks becoming shorter. In addition, there can be variations in my tremours during the day. When I am relaxed, I have no tremours. When under stress, or excitement, or cold, the tremours become more pronounced.

The worst situation is “White Coat Syndrome” whenever I visit a medical doctor or a neurologist. On those occasions, my tremours are effectively out of control. Other PD symptoms such as impaired arm swing, problems with gait, problems with balance, and constipation are so far in the mild category. Besides tremour, the other most bothersome PD symptom for me has been “micrographia.” As I can no longer move the fingers on my right hand, my ability to write has decreased to the point where I have ceased keeping a daily journal, something that I had been doing since the 1980s. Also, typing has become difficult and slow. Luckily, Dragon voice-activated software has come to my rescue and I now dictate most of my communications (such as this update).

I plot the progression of my PD every three months using the Parkinson’s Disease Rating Scale (PDRS) from 0 to 100 on the website www.PatientsLikeMe.com where my patient name is “Dawn Angel”. My current rating is 7. It has been as high as 14. My human tendency is to self-evaluate when I’m feeling good so it is possible that my PDRS is higher at some times.

So far, I have avoided taking any of the Parkinson’s medications (with a brief exception of one month after I was first diagnosed when I took Mirapex, a dopamine agonist that for me had dreadful side effects). To me, the PD medications are a last resort. Since they will only provide a certain number of years of effectiveness it seems reasonable to forestall taking them until it is absolutely necessary, that is, when having the symptoms is no longer preferable to the side effects of the meds. I have been able to work for three years post diagnosis but I’m at the point where it may not be possible to continue working as a freelance consulting engineer. I haven’t had any jobs since June 2010, so it is difficult to say if it is time for me to retire.

RESOURCES

I am fortunate to have two outstanding neurologists on my side, Andrew Wolfenden and Jon Stoessl, although I only see them once a year. Stoessl is the director of the Pacific Parkinson’s Research Centre. I see him at the Movement Disorders Clinic at the University of British Columbia in Vancouver. With Western medicine offering only drugs that mask the symptoms of PD and unable to otherwise treat the condition, it is inevitable that a person diagnosed with PD will seek out alternative forms of medicine. My naturopath Caleb Ng

www.mountainviewwellnesscentre.ca/

is a valuable part of my team. Ideally, a person diagnosed with PD should have a team of practitioners, including at least one neurologist, their GP, a naturopath, a physiotherapist, an herbalist, a massage therapist, a personal trainer, a psychotherapist, and others. The reality, however, is that no “team” really exists. My personal trainer may know my chiropractor, and my naturopath may have met my neurologist, but this is not team behaviour. The cold truth is that each patient is pretty well left to their own devices. So one must be proactive and become better informed, often more so then their practitioners. We are the keepers of the complete story.

There are many very good publications on PD available in book form. Some that I have found to be exceptional are:

1. Jill Marjama-Lyons and Mary J. Shomon, “What Your Doctor May Not Tell You About Parkinson’s Disease,” Warner Books (2003).

2. Gretchen Garie, Michael J. Church, and Winnifred Conkling, “Living Well With Parkinson’s Disease,” Collins (2007).

3. David A. Grimes, “Parkinson’s: Everything You Need to Know,” Firefly Books (2004).

4. Geoffrey Leader and Lucille Leader, “Parkinson’s Disease: Reducing Symptoms with Nutrition and Drugs,” Denor Press (2009).

5. Laurie K. Mischley, “Natural Therapies for Parkinson’s Disease,” Coffeetown Press (2010).

6. Abraham Lieberman, “100 Questions and Answers about Parkinson’s Disease,” Jones and Bartlett (2003).

7. David H. Anderson, “How to Tame Parkinson’s by Keeping Fit,” Authorhouse (2005).

8. John Ball, “Living Well, Running Hard,” Authorhouse (2005).

9. Arthur W. Curren, “Dumb Bells and Dopamine,” Authorhouse (2006).

Downloadable books from the Internet include:

1. John C. Coleman, “Stop Parkin’ and Start Livin’: Reversing the Symptoms of Parkinson’s Disease,” available for a fee from www.returntostillness.com.au

2. Robert Rodgers, “Road to Recovery from Parkinson’s Disease,” available for a fee from www.parkinsonsdisease.me

3. Janice Walton-Hadlock, “Recovering from Parkinson’s Disease: Understanding its Cause and Mastering and Effective Treatment,” available for free from www.pdrecovery.org/ (I do not necessarily endorse the concepts or opinions of the author but found it a compelling and worthwhile read; too bad she won’t converse with anyone that has been on PD meds such as Mirapex for a month!)

There are almost unlimited resources available on the Internet. By far the best PD website is www.PatientsLikeMe.com that has over 5000 members with PD.

My “Dawn Angel” profile there has been browsed over 7000 times at the time of writing this update.

PD PREVENTATIVE MEASURES

The various measures I have taken in my attempts to slow the progression of PD are listed below in approximate order of effectiveness (my perception). The regimen I am on is constantly changing but the overall goal remains the same: to feel as good as I can.

1. Exercise.

2. Physiotherapy

3. Neuroprotective supplements

3. Diet

4. Chelation

5. Brain therapies

Exercise

The initial diagnosis of PD scared me so much that I decided I had to get into the best possible physical shape to be able to combat the progression of PD. I also engaged a personal trainer, Julie Beenham, to keep me honest. I have seen Julie since June 2007 and would consider our sessions the single most effective measure I have taken against my PD. Within a few months, I had dropped over 40 pounds through a regimen that included running every morning for 5 miles (running for my life) plus extensive workouts in the gym in the afternoon in addition to my sessions with Julie. While my initial reasoning was correct in terms of my being better prepared to withstand the ravages of the disease, I have since found out that intense physical exercise can also have neuroprotective benefits. All the more reason to keep it up. I counsel other people with PD to start exercising and keep at it even when they don’t feel like it.

My exercise regimen has varied significantly over the years, particularly with the seasons, but exercise still remains the most effective method I have found for relief from the symptoms of PD. I have also had to accommodate changes to my body thanks to Mr. Parkinson. For example, I have nearly-constant pain in my right hip that now prevents me from running or from using certain equipment in the gym. When I find I can no longer do one thing (use an elliptical training machine) I do whatever I can to keep that it. A “toe crest” helped keep the toes on my right foot from curling under; I still use toe sleeves to prevent the formation of corns. When these measures weren’t enough I found something else that I could use: a stationary bicycle. I will continue with this practical approach as long as I am able. Whenever possible, I indulge in two of my favourite sports, tennis and kickboxing. Not bad for someone who’s 63 years old!

Gym

Currently, my gym workouts consist of roughly 30 minutes of cardio, 30 minutes of weight training, and 30 minutes of stretching. As mentioned above, the cardio originally was done on an elliptical machine but now I use an upright bicycle. Weights involved a number of machines but also free weights (dumbbells). I have found that stretching is an important component of any exercise regimen and worth the time taken for it.

Personal trainer

I see my personal trainer Julie twice a week for one hour each time. In our ever varying routine, she has me attempt a number of balance exercises. I can balance on my left leg very well but balance on my right leg is problematic. Standing on a wobble board is possible but is becoming an increasing challenge for me. We do part of each session with my eyes closed which seems to be helpful. Each session ends with stretching, the best part!

Tennis

I had given up playing tennis in 2005 after a rotator cuff injury made it impossible for me to raise my right arm (I am right-handed) out to the side and overhead. Little did I know that a “frozen shoulder” is often a sign of PD. In 2008, on the advice of a friend who had seen an amputee play tennis again after switching to his left arm, I resumed playing tennis as a lefty. When my right arm finally came around in 2009, I morphed into an ambidextrous player with both right and left handed forehands. We bought a condo in a tennis community in Delray Beach, Florida that we visit twice a year for a month each time and were I can indulge my tennis habit. Back home in the relatively cold Northwest I see a tennis coach on a weekly basis and play indoors during the winter.

When I play tennis, my PD symptoms also take a vacation although videos show that I am clearly compensating for any impaired movement. Nonetheless, my footwork is good as is my ability to run and make shots from either side of the court. Why this is so is not really clear to me. Perhaps doing something that one really loves is conducive to generating dopamine, the neurotransmitter in short supply in the brains of people with PD. I suspect that it has something to do with the repetitive nature of the game and the delightful sense of vibration when the ball is well struck. For this reason, I prefer “tennis therapy” with a coach feeding me shots, to actually playing a game. I have noticed that on those rare occasions where I summon up extra energy through adrenaline (which consumes dopamine) I pay for it later in terms of a short-lived exacerbation of my PD symptoms. The trick is to learn how to stay relaxed while playing the game.

Kickboxing

It was Julie my personal trainer who introduced me to kickboxing. The kickboxing I do is not in the ring (!) but rather with a partner holding pads or in a gym with a kickboxing circuit. In the summer I am able to set up a punching bag outdoors in the carport but most of the time I now go to “30 Minute Hit”, a local kickboxing circuit. There is something about the contact and the vibrations from the punches that help calm the symptoms of PD. Besides, it just feels good to hit someone! There is clearly some adrenaline production involved with kickboxing as my tremours are usually set off for several minutes after I complete the circuit.

Physiotherapy

Since my diagnosis with PD, I have seen a number of physiotherapists. I am relatively good at following orders and did whatever exercises they recommended, with satisfactory outcomes. Initially, my focus was to regain the use of my right arm. More recently, I have been addressing the progressive effects of PD on my body.

Prolotherapy

As mentioned above, I had given up playing tennis in 2005 after a rotator cuff injury. After my diagnosis with PD in 2007, I worked very hard on regaining the function of my right shoulder. I underwent two months of prolotherapy from a naturopath where dextrose was injected into my tendons (hurt like hell) to promote improved blood supply and healing. In this regard, the prolotherapy was very effective, although I still had to follow up with more than a year of intense physiotherapy. There is still some residual pain in my right shoulder and a tendency for the femur to sit outside of its socket, but for all intents and purposes I have regained a full range of motion. I continue to receive physiotherapy on my right shoulder.

Intramuscular stimulation

In 2009, I began to see Dan Sivertson, a physiotherapist who practices “Intramuscular Stimulation” (IMS), a therapy developed in Vancouver BCwww.istop.org/. IMS is a form of “scientific acupuncture” where the needles are inserted into the problem area such as tight or shortened muscles, without application of electric current (I have little time for non-scientific or traditional acupuncture that relies on mythical meridians to determine where the needles should be placed.). The results of IMS have been amazing and muscles that I thought had been irrevocably tightened have loosened up. There has also been a significant reduction in pain, especially in my right hip. IMS must be considered as part of a complete physiotherapy package that includes myofascial release and massage.

Currently, Dan and I are working on improving my posture. One of the progressive features of PD is the gradual tightening of muscles that progressively cause a stooped posture. With weekly sessions of physiotherapy and daily posture exercises we are keeping the ravages of PD to a minimum at least as they affect my posture and mobility.

Chiropractic

While some people regard chiropractic as a pseudoscience, my experience has been that it is very effective for treating lower back pain. I have had lower back pain for at least 30 years, well before my diagnosis with PD. Whenever I put my back “out” I see a chiropractor as soon as possible and usually a few adjustments set me right. In the past, I used to go for physiotherapy and it took over a month to get any benefit. Chiropractic is faster and more effective than physiotherapy for relief of lower back pain, in my opinion. In addition to chiropractic, exercises to strengthen my “core” help me to recover quickly from recurring back injuries.

Myofascial release

Deep tissue massage is another form of physiotherapy that I have found to be beneficial for PD. In 2010, I had a package of 10 sessions of Hellerwork. Over a couple of months, my Hellerworker Melissa Patton accessed and massaged all accessible fascia of my body. Despite the intensity of the bodywork, the sessions were soothing and felt heavenly.

Air splint

I am currently experimenting with an inflatable splint of the kind used for retraining of stroke patients by immobilizing spastic limbs. The splint is used to straighten my right arm and eliminate the crook in the elbow. I use it three times a day for 10 minutes at a time. It feels good to have my arm straightened.

Minimal contact therapies

There are a couple of therapies that have reportedly had good effect on people with PD. One of these is Bowen Therapy. I have had several sessions of Bowen and found them very relaxing but did not experience any lasting effects. I did, however, find that osteopathy was effective. I have seen in osteopath in New Zealand on a few occasions when I was working there and found his techniques to be effective in reducing lower back pain as well as being very relaxing. If there was a local osteopath, he or she would be in my “team” of caregivers.

Neuroprotective supplements

Neuroprotective supplements are also referred to as “anti-aging” supplements or “mitochondrial enhancing agents” and are taken in addition to the conventional antioxidants (such as vitamin C, beta carotene, vitamin E, and selenium). Most of these supplements are taken orally; the very powerful antioxidant glutathione must be taken intravenously. While I am normally very skeptical of practices that come across as pseudoscience, I can appreciate the rationale for taking supplements that could protect the brain.

The first neuroprotective supplement I began taking (in 2007) was co-enzyme Q-10 after I read that a small clinical trial had revealed that it slowed the progression of PD. Subsequent, larger, studies have not found any beneficial effect on PD but I was willing to go with at least the chance of a good result. I have since learned that the ubiquinol form of co-enzyme Q-10 is superior to (and more expensive) the ubiquinone form.

In 2008, I chanced upon “The Better Brain Book” by neurologist David Perlmutter http://renegadeneurologist.com. The book contains a chapter on maintaining brain function using antioxidants and other compounds that facilitate the functioning of existing neurotransmitters. The protocol recommended by Perlmutter for PD patients is more extensive than that recommended for normal people who simply wish to improve their brain function.

I am currently taking the following neuroprotective supplements:

– Alpha lipoic acid* (time-release) 1200 mg per day.

– N-acetyl cysteine* 600 mg per day.

– Phosphatidylcholine 420 mg per day.

– Phosphatidylserine* 100 mg per day.

– Acetyl l-carnitine* 500 mg per day.

– Co-enzyme Q-10* (ubiquinol) 600 mg per day.

– NADH 5 mg per day.

– DHA + EPA (omega-3*) 660 mg +330 mg two times per day.

– Glutathione* (intravenous) 2500 mg per week.

* Recommended by David Perlmutter.

The glutathione IVs are administered by my ND, Caleb Ng. The protocol is that recommended by David Perlmutter. By the way, there is a video with David Perlmutter showing the near-miraculous effects of glutathione injections on people with PD http://www.glutathioneexperts.com/benefits-glutathione.html that to me seems to be a startling example of the “placebo effect.” I have never experienced anything even remotely resembling the improvement rapidly shown by the people in the video but again, my PD symptoms are not as advanced as those shown in the video. If glutathione has any effect on my symptoms, I believe that glutathione has produced a small (1-2) decrease in my PDRS.

In addition to the special mitochondrial enhancing supplements, I take vitamin C in both in time-release form and also as mixed ascorbates (total 4800 mg vitamin C per day), vitamin D drops (4000 IU per day), selenium drops (260 mcg per day), and zinc drops (30 mg per day) and others. I have my blood work checked regularly and have near-ideal results (all parameters within reference ranges). For years my cholesterol was chronically high and required meds for regulation; now it is excellent (high HDL and low LDL) without meds. Also, I used to be on meds for high blood pressure; now my blood pressure is close to ideal (typically 110/65) and I no longer take meds.

Although it is difficult to say whether all of these supplements are having any effect on my PD, I figure that at least I am extending my life!

Diet

The first alteration to my diet was to eat mostly organic foods to minimize the amount of pesticides that I was incidentally ingesting. Pesticides have been implicated with PD in some cases so I was not about to take the chance that my PD was unrelated to pesticides. I also began eating more fish and less red meat. In 2009, I heard about Donnie Yance, an herbalist in Ashland, Oregon, who had a protocol for treating patients with PD. I read his paper, “Parkinson’s Disease and the Use of Botanical and Nutritional Compounds” and was impressed withhis knowledge. In July, 2009, I traveled to Ashland and saw one of his associates, Jason Miller who has become my herbalist.

Botanicals

Jason provides me with a number of proprietary botanical formulations marketed under the Natura brand from the Centre for Natural Healing in Ashland, Oregon www.centrehealing.com. These contain botanicals that have been known to have a beneficial effect on PD, including:

– Mucuna pruriens (a natural source of levodopa)

– Hyoscyamus niger (henbane)

– Withania somnifera (Ashwagandha)

– Turmeric

– Green tea extract

– Piper methysticum (kava kava)

– Panax ginseng

– Bacopa monniera

– Scutellaria lateriflora (skullcap)

Of these botanicals, the first two on the list are perhaps the most potent. Mucuna pruriens is a natural source of levodopa and has been found to be more effective than synthetic levodopa in clinical trials. I have experimented with not taking the Mucuna and not noticed any difference, although perhaps I am not yet at the stage of my PD were levodopa is necessary. I am currently in a trial of titrating in with Hyoscyamus niger that is supposed to be effective against the tremours of Parkinson’s. So far, at 30 drops a day of a 1:10 tincture, it seems to have appreciably mitigated my tremours but it is too early to confirm it as effective at this time. Any beneficial effect is overwhelmed if stress rears its ugly head. Stress trumps hyoscyamus every time in the tremour department.

In addition to the above botanicals I also use products such as Natura “Beyond Whey” and “NanoGreens” that, amongst a host of other ingredients including frozen blueberries, make up a morning smoothie that I make every day. The Centre for Natural Healing also prepares a custom “tonic for me that I take twice a day. The tonic contains ginkgo, gotu kola, milk thistle, orange peel, kava kava, liquorice, skullcap, and other botanicals.

Gluten-free, dairy-free, and sugar-free diet

In 2009, I traveled to Melbourne Australia where I met John Coleman, a naturopath who has recovered from PD. Of course, I was very interested in doing whatever he did to recover. Amongst his recommendations was a change in diet to gluten-free, dairy-free, sugar-free (and others). I saw John again in 2010 and he said that I was doing well and to stay the course. He said the last of his symptoms to go was the tremour. This gives me some heart as tremour is the most bothersome of my symptoms.

In their book, “Parkinson’s Disease: Reducing Symptoms with Nutrition and Drugs,” Geoffrey and Lucille Leader advocate a gluten-free and dairy-free diet for people with PD. I am not lactose-intolerant nor do I have a gluten intolerance (this has been confirmed by genetic testing with www.23andMe.com) but their reasoning is compelling. It is possible that people with neurological disorders such as PD are much more sensitive to lactose and gluten than are people without those disorders. Luckily for me, we live in an age where it is possible to btain gluten-free and dairy-free foods readily. My favourite gluten-free bread is “Udi” available from Whole Foods in the US (but alas not in Canada). I substitute almond milk for regular milk. Dining out can be a problem; however, I travel a lot in my work and have found that the chefs in hotel and other restaurants are more than willing to meet my dietary requirements.

Adrenal support

In early 2010 I had a saliva test to determine my free cortisol rhythm. Samples were taken at 8 AM, noon, 5 PM, and at midnight. My cortisol levels for morning, noon, and afternoon where all markedly depressed (only the midnight sample was normal), indicating (according to the report) marginal HPA (hypothalamuspituitary-adrenal) performance. I purchased an excellent book, “Adrenal Fatigue,” by James Wilson that help to explain the significance of my results. Low cortisol, or hypoadrenia, is normally characterized by fatigue, difficulty rising in the morning, a desire for caffeine, feeling run down and stressed, etc. Other than perhaps a desire for a daily cup of coffee, I have none of these symptoms. Indeed, I seldom experience fatigue and still consider myself as a high-energy person. Yet, people with hypoadrenia have a reduced ability to cope with stress. Interestingly, people with PD report that their symptoms are aggravated in times of stress. There has to be some sort of connection between the symptoms of PD and impairment of HPA performance, but so far discussions with my neurologist and endocrinologist have not revealed any knowledge by them of any connection.

The danger is that people with hypoadrenia are on the borderline of having adrenal fatigue (no cortisol). When cortisol reserves are too low, and a stressful situation occurs, one may not be able to produce enough cortisol to handle it. Adrenal fatigue has been responsible for high-performing individuals “crashing” and becoming effectively bedridden for months or years, too fatigued to do anything. Not wishing to come down with adrenal fatigue, I have begun taking an adrenal support botanical supplement (“Restorative Formulations Adrenal Px LOPB”) and have also tried adrenal cortex extract (“Adrenal Stress End”).

Hydration

I have tried the Aquas formulas available from John Coleman in Australia. These homeopathic remedies are supposed to enhance cellular hydration. I have a problem with homeopathy. If an infinitely diluted amount is good for me, then not taking it all should even be better! Yet, John Coleman swears by the Aquas and he has recovered from PD, so there may be something to it.

Red wine

Geoffrey and Lucille Leader recommend elimination of alcohol from the diet. John Coleman, sensible man that he is, recommends 1 to 2 glasses of vintage red wine a day. I am on John’s side. Drinking fine red wine has been a passion of mine since the 1970s and one that I am loath to give up especially since I have a wine cellar containing approximately 2000 bottles! Of course a big part of the enjoyment of red wine is the bouquet. Reportedly, loss of the olfactory sense is a common complaint in people with PD and is liable to occur early in the progression of the disease. I noticed no such impairment (and can still guess in a blind tasting that a bottle of Bordeaux is a fine old Burgundy!). For now, I enjoy each bottle of fine wine as if it were my last. To me, joy = dopamine. Also, there must be some benefit from the resveratrol!

Constipation

As PD also affects the autonomous nervous system, constipation can be a severe problem. Since my diagnosis with PD I have had some problems in this regard especially when I travel over multiple time zones and upset my daily rhythms. Currently, I have it under control with the simple addition of one or two rehydrated prunes to my morning smoothie plus a level teaspoon of organic psyllium fibre. These seem to be enough to keep me regular.

Hedonism

I stayed strictly on my gluten-free and dairy-free diet for over a year, but recently had the opportunity to travel to France for a combination of business and pleasure. I temporarily abandoned my diet and indulged myself for a full week in French gastronomy, eating foie gras, croissants, baguettes, rich cheeses, and just about everything else that the French are famous for. The consequence was that I had not felt better in over three years! Now, I am not so strict about my diet and allow myself the occasional indulgence.

Chelation

In 2008, a urine test for heavy metals revealed excessive concentrations of lead and mercury and other metals such as manganese. I have been undergoing chelation off and on since then and currently receive one treatment per week from my ND Caleb Ng. The treatments involve a small IV of EDTA solution. For any benefits to be realized, numerous treatments are necessary. Heavy metal poisoning (especially manganese) has been implicated in PD and welders are one profession that is at higher risk for PD. Since I spent many years working closely with welders and breathing welding fumes, I have no doubt ingested my fair share of iron, manganese and other metals. Interestingly, a CT scan of my brain failed to reveal any abnormal concentration of manganese. Note: the claimed benefits of chelation for PD have yet to be established through rigorous clinical trials.

Brain therapies

This section covers a number of therapies that may be useful for maintaining mental functioning and postponing the dementia that may occur as PD progresses.

Positive attitude

It is difficult to remain positive when confronted with a disease of no known cause and inevitable progression, yet this is precisely what must be done. Depression is one of the predominant symptoms of PD. If necessary, it may be necessary to take an antidepressant. One that has been recommended to me is duloxetine.

Body-mind psychotherapy

For several years in the 1990s, I had training in Hakomi body-mind psychotherapy arising out of the deep desire to know myself. I still keep in touch with my teacher, Ron Kurtz http://hakomi.com/. I regularly see a therapist,Mahmud Nestman, a Sufi who is familiar with the methods of Hakomi. In our explorations one useful technique is called “taking over”. In one session I had Mahmud take over (literally, with his hand) a tightness I felt around my heart.

When he did so, I was able to go in deeper into my own unconscious and to gain some valuable insights as to why the tightness was there in the first place. I have invariably noticed that during our sessions my tremours at first become almost uncontrollable but then they disappear, leaving me in a most serene and quiet and still place. Stillness is priceless.

The science of happiness

For several years I was an active member of the Ken Keyes community based in Coos Bay, Oregon. Ken was the author of the “Handbook to Higher Consciousness,” “The Power of Unconditional Love,” and many other books. For a number of years, I taught “Living Love” workshops in the US, Canada, and New Zealand. These teachings have served me well, particularly now that I have the symptoms of PD. I take responsibility for my own feelings. Nothing or nobody has ever made me upset are unhappy: I do it to myself. This is good news as the only person I am capable of changing is myself.

Neurofeedback

I have had six sessions of neurofeedback, also referred to as biofeedback from Mike de Jong, a PhD psychologist. During the first session and EEG was done to determine those parts of my brain that had abnormal brainwave patterns. Mike determined that my dorsolateral prefrontal cortex was deficient in theta wave output. Subsequent sessions (one hour each) involved application of a single electrode at the position on my head corresponding to the dorsolateral prefrontal cortex. I was provided with headphones to listen to the sound of surf while my eyes were closed. Whenever my brain produced Theta waves I could hear the surf; when no theta waves were being produced all I heard was static. At first, I struggled to hear the surf, but later just let my brain do all the work of figuring it out. After six sessions, some progress is being made. If I didn’t think there was some benefit to this I wouldn’t continue. Typically, it takes 20 sessions to realize any permanent benefit, so I have some time to go.

Meditation/relaxation

For many years, I was an adept meditator and meditation was the most important part of my day. Since my diagnosis with PD, however, I have found it very difficult to get into a meditative state. Sitting cross-legged is agonizing. Instead of stillness, I have tremours. By re-casting meditation as relaxation, I can derive some of the benefits, primarily reduction in tremours and tension. I have found that electro-cranial stimulation (see below) is a good substitute for meditation.

Electrio-cranial stimulation

In electro-cranial stimulation, a small electric current is passed through electrodes attached to my earlobes that produces a mild tingling sensation. Sessions are either 20 minutes or 60 minutes and are very relaxing, almost to the point of putting me to sleep. Tremours also appear to take a nap.

Neurocognitive screening

In 2010, I participated in a neuropsychological screening evaluation at the Movement Disorders Clinic at the University of British Columbia. These tests revealed that my cognitive functioning was “broadly average to superior” depending on which test was being administered. I take this as a sign that I have experienced some cognitive impairment as I would have expected all the tests to result in a “superior” rating!

Defiance

If I had one final piece of advice for anyone who has been diagnosed with PD, it is to defy it. If it is a fight that Mr. Parkinson wants, it is a fight that he will get. The worst thing one can do is to deny it. As long as one remains in a state of denial, the PD will continue to progress. But as soon as you turn to face your tormentor and fight back, the PD will lose its grip over you. Mr. Parkinson may win in the long run but it will be a protracted fight and you will win many of the rounds. And, who knows, you may just beat him!

Afterward I hesitate to call this section “Conclusions” as my protocol is very much a work in progress, and the effectiveness of many of the measures has not yet been verified. I do not have time to wait for the development of a “cure” from conventional Western medicine. I will be dead long before any such treatment has passed through all the hoops and clinical trials necessary for its approval.

Currently, the treatment of last resort for PD is Deep Brain Stimulation (DBS) but it is only done when a PD patient is essentially incapacitated with an advanced form of the disease. How humiliating! For people with tremour-dominant PD the option is thalamic surgery, either in the form of thalamic DBS or thalamotomy. Canada’s medical system is unable to cope with the (growing) numbers of PD patients, so in the meantime I will do everything I can to prevent the progression of my PD to the point where surgery is even an option.

I am doing the best that I can to not be a burden on the medical system. What I am doing is also expensive. Canada’s medical system pays for my neurologist visits and little else. The PET scan, physiotherapy visits, naturopath visits, botanicals, and supplements are not covered. Yet if there was ever a time to start spending what I have saved, it is now. I would rather have quality of life than a fat bank account anyway. I’m currently working my way through my “bucket list” and having the time of my life.

Angela Wensley

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Medications for Tremors

Question:

Do you think that using the medications can make your symptoms worse?  I have been taking L/Dopa for 6 months now and just increased my dose in the last couple weeks and I have noticed more tremors in my legs.

Mandy

Response:

Unfortunately, taking medications is a two edged sword. Yes, they can provide relief from some of the symptoms – especially in the short run. And yes, all prescription medications have side effects.

If you list all of the side effects associated with the prescription medications that are available to treat Parkinson’s Disease you will actually see a list of the symptoms that are associated with Parkinson’s.

Some people experience few side effects. They find the medications provide them with welcome relief. Other people report that the side effects are worse than the symptoms they experienced before taking the medications.

As you know, I am not  a medical doctor. I am not qualified to diagnose what is happening to you. I can offer a simple observation. If you increase the dose of a medication and the symptoms are worse than before, your body is giving you a strong message.  For whatever reason, the medication(s) you are presently taking do not appear to be helping.

It could be a single medication. Or, it could be the side effects created from taking more than one medication.

There are herbs that people with Parkinson’s use to treat their tremors successfully.  Several of the people interviewed in Pioneers of Recovery offer some novel suggestions. There is also a website

(http://www.favabeans.parkinsonsrecovery.com)

which recounts that activities of Aunt Bean who has a farm in Tennessee where fava beans and Mucuna are grown. Aunt Bean makes a tincture from the tips of the fava beans. When she puts a drop of the tincture under her tongue she gets immediate relief from her tremors when they happen to surface.

Aunt Bean’s solution may or may not work for you. But I can assure you that there are a surprising number of alternatives you can consider if the treatment you are currently using is not helping.

Robert Rodgers, Ph.D.
Parkinsons Recovery

Books
Road to Recovery from Parkinsons Disease
Pioneers of Recovery
Five Steps to Recovery

Resources
Vibration Therapy
Dehydration Therapy: Aquas
Parkinsons Recovery Membership
Parkinsons Recovery Chat Room
Eye Drops for Cataracts
Symptom Tracker
Parkinson’s Disease News

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Liver and Kidney Detoxes

Question:

Can Parkinson’s be caused by problems in either kidney or liver?  If so, would detoxification of these organs help relieve tremors?

Gino

Response:

Research has shown that many of the symptoms associated with a diagnosis of Parkinsons Disease – and there are many – can be caused by toxins. The kidneys and liver get clogged up with a residue of toxins that create a formidable bottleneck in the elimination system. New toxins that enter the body have no where to go other than hide away inside the cells. Cells are a nice place to hang out.

My answer to your question is yes. Detoxes for everyone – those with a diagnosis of Parkinsons and those without – are a critical component of health and wellness. Think of detoxing your kidneys and liver to be the same chore as brushing your teeth. Both are necessary. Both need to be done on a regular basis.

Will a liver-kidney detox relieve tremors? The answer depends on whether you are also able to release the stress and trauma that may be trapped at the cellular level of your body. Toxins are impossible to release as long as trauma resides within the structural membrane of the cells.

Robert Rodgers, Ph.D.
Parkinsons Recovery

Books
Road to Recovery from Parkinsons Disease
Pioneers of Recovery
Five Steps to Recovery

Resources
Vibration Therapy
Dehydration Therapy: Aquas
Parkinsons Recovery Membership
Parkinsons Recovery Chat Room
Eye Drops for Cataracts
Symptom Tracker
Parkinson’s Disease News

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Relief from Tremors

Question:

Where can I find how others relieve tremors ? Mine get especially bad after 4pm………..it drives me NUTS!!!!!!!!!!!!!!!  Sinemet does not help.

Thanks

Patricia

There is quite a bit of great information here on the Parkinsons Recoverty Blog. Look over to the right column and scroll down to the category listing that reads “tremors” Click on that word. It will take you to a listing of  postings that address ways people have found relief from their tremors.

I also suggest you listen to my two radio shows with Laurie Mischley who also has some suggestions that might interest you. I aired those interviews in June.

http://www.blogtalkradio.com/parkinsons-recovery

Robert Rodgers, Ph.D.
Parkinsons Recovery

Resources
Dehydration Therapy: Aquas
Parkinsons Recovery Membership
Parkinsons Eye Problems
Vibroacoustic Therapy
Parkinsons Recovery Chat Room
Symptom Tracker
Parkinson’s Disease News

Books
Road to Recovery from Parkinsons Disease
Pioneers of Recovery
Five Steps to Recovery
Meditations for Parkinsons

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I Want to be Proactive Rather than Reactive

Question:


I have been faithfully reading your daily mails and find them quite comforting.  Here’s my problem.

I won’t be seeing a neurologist until November 15th.    My family doctor’s suspicion of Parkinson’s Disease is based on the fact that my hand tremors are ‘resting’ tremors.

Whenever I have the courage to check for more information online, I find information which makes me think it could possibly be caused by something else, i.e. genes (my dad had a bit of a tremor in his hand), low blood sugar (although I am not diabetic.  The tremors seem to get better when I drink a pop, not diet.) … you get my meaning, I’m sure.

I also am very much aware of the fact that the tremors get a lot worse when I try to suppress them.  If I sit on my hand, they seem to move into my shoulder.  They also almost go away completely when I am totally relaxed (they come back at the slightest sign of stress).

I would like to do something to help myself while I wait for my appointment.  I would like to be proactive rather than reactive.  Is there something you can recommend?  I know there are many good suggestions on your web page, but it’s information overload for me still.

Any suggestion will be much appreciated.

Lis

Response:

I feel the information overload too. There are so many opportunities out there – which ones do you pursue? It gets really overwhelming. That really is why I began doing the Jump Start to Wellness programs – to help people shift through the maze of options to find therapies that are right for them and their bodies.

Let me offer a few suggestions you might want to talk with your doctor about.

Stop eating dairy products.

Exercise every day. Exercise addresses the stress.

Use body therapies that release the stress like cranio-sacral therapy, Bowen therapy, Tin Tui Na, vibroacoustic therapy, etc.  As you well know, when you can release the stress that is trapped in your tissues, your symptoms will not flare when you are under stress in the moment.

Toxins are a big factor. I have no idea what you have tried – but zeolite is a great detox. There are several companies who offer zerolite detoxes. I interviewed Robert Bonham,  Ph.D.  several months ago. You might want to listen to that radio show interview. Detoxing with zeolite has the potential to offer significant relief.

I am hot on the trail of a supplement that I have been taking which has given me incredible energy. It offers the body a way of making glutathione naturally. I will talk about it on my radio show this next week. It is called Can-C Plus -and has been used in conjunction which eye drops that reverse cataracts. Looks to me like it is a great anti-aging supplement and I am guessing it may provide great relief from neurological challenges. I think this supplement may provide many people with Parkinson’s relief from their symptoms. It is all speculation – but I am excited nonetheless.

Finally – are you adequately hydrated? If your body is not getting enough water – symptoms will be worse. John Coleman recommends aquas (www.aquas.us). Whatever approach you use, be sure that your body is adequently hydrated every day.

I would not worry over a diagnosis. It is just a guess anyway. Your body has the power to heal itself when given the support and nourishment it needs to heal.

Give you body the support it needs to come back into balance and you will be pleasantly surprised with the outcome.

Robert Rodgers, Ph.D.
Parkinsons Recovery

Resources
Dehydration Therapy: Aquas
Parkinsons Recovery Membership
Parkinsons Eye Problems
Vibroacoustic Therapy
Jump Start to Wellness
Parkinsons Recovery Chat Room
Symptom Tracker
Parkinsons Recovery Radio Network

Books
Road to Recovery from Parkinsons Disease
Pioneers of Recovery
Five Steps to Recovery
Meditations for Parkinsons

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